Hello Kaz, Just laughing at that, yes i have had pretty much all of them over the years. My husband is a classic he always says " I want you to give up work as i know you are struggling " but then in the next breath says " we can manage on beans on toast , dont want to loose the house , we wont have any holidays" . Its hard to take comments like its all in your head ect ect. I think thats the biggest challenge with this condition getting people to understand and accept its bl**dy painful and dibilatating. I have found the more people i chat to have actualy heard of fibromyalgia and its a relief when they know someone who has it and understands. The people you know and love understand.Thats why this forum is great , its helped me alot.
Hi maggers, I am 43 and i really look forward to my bed , finding its getting earlier ha ha. I wish and i have said it before on here, that you could just for a few mins touch someone and they feel your pain ect ect, that would shut them up. Fibro fog is one of the worst , i just had to change my pass word on here as i forgot it, and this morning at the doctors i kept sighning in my daughters date of birth i was thinking this stupid system. recently got a puppy names Charlie but i keep calling him Tyra ( who died few years ago) its annoying everyone ooopsy. Just another day eh !!!!!!. hugs
spot on Kaz - number 11 would also be 'its all in your head' - I'm like....yes it is - MY BRAIN - my brain sends pain signals, my brain fogs up, my brain tells me i'm exhausted. The most annoying response I find I get when I try to explain a particular symptom on a given day, eg my leg hurts today and I'm having trouble walking - they reply that yes they understand because they bruised their knee last week and it aches 'a bit' - oh brother, swap my collapsing body please for your bruised knee any day!
agreed fibro-fog is dreadful. If they get annoyed at you calling the dog by the wrong name just tell 'em "he doesn't care what I call him as long as it's not late for dinner" my dog is used to being called all sorts.
there's a wonderful cartoon by a famous cartoonist along the lines of 'what humans say to dogs' and a second picture 'what dogs hear' wish I could remember who drew it...it's just so true
So true - I reckon my sprite removed part of my brain - the bit that controls what comes out of my mouth. I can think one thing but the words that come out are certainly not what i am thinking. There must be quite a collection of brain bits somewhere on a shelf!
joe public has no idea what fatigue means. A colleague of mine thinks we all get tired and cannot understand about the crushing fatigue and finding it difficult to put one foot in front of the other. She suggests I stop going out so much - if only!
Bee i remember that feeling when i got told that. God it stung because i new that once upon a time i never had pain soooo long ago and now its daily today 10 out of 10. So when someone who cant figure out whats wrong says that, its a horrible feeling, i mean who would want to suffer. Why give medication if it is in our head !!!!.
Maggers so true Charlie is only four months old, he has been called allsorts especialy when he bites. I say that to my husband its the tone of your voice . I mean i call my husband some names and he definatly understands what i mean ha ha. Love him really.
I cant believe your gp said that to you omg thats terrible and unproffessional wheres the compassion strikes me your gp is in the wrong job shame on them gentle hugs
Hi loxie if only we had a bruised knee to worry about people have no idea the best was when a friend of mine said I think ive got fibromyalgia, I said what makes you say that she said I have a pain in my hand. I said is that it, I said if you had fibromyalgia believe me you would know about it honestly best of it is shes a social worker and has dealt with people with fibr plus she knows what Im going through
Hi maggers I have no control over what comes out of my mouth what ever Im thinking at the time isnt what comes out of my mouth. my husband said to me last week youve put your foot in mouth again my brain is haggled Im forever putting my foot in it brain is stuck in reverse instead of 1st gear
Hi hazel Ive got abichon frize his name is charlie.I hate fibro fog today its been terrible, Im forever having to change pass words as I keep forgetting them today I forgot what date my husbands birthday fell on I thought it was the 5th sept its the 7th same day as our anniversary Id forgotten that they were both on the same day its so frustrating. If people were to able to feel our pain they would know what sheer hell we are going through gentle hugs take care