2 years since operation

Hormones
1

Hi folks,

i am now almost 2 years since my operation. i appreciate that i am very lucky in that my levels are now good and i am in remission.

i just wanted to ask how others may feel in a similiar stage. i still find that i am very tired. i could literally stay in bed if i were able to. it just seems as if everything is a struggle to do.

how are others feeling at this stage of the process??

2

I had a pituitary gland adenoma but was able to avoid surgery with medication.  Ask dr to check your Iron Studies - not just Iron.

 

3

I also had the surgery two years ago.  I am tired much of the time and feel on a different planet.I have had frequent sinus infections and a feeling of general ill health. All my bloods are normal so I wonder if this is as good as it gets.

4

I know how you are feeling. Im told all my levels are surprisingly good but every day I'm exhausted. I'm starting to also think it won't be any better than this.

I just tell friends and family I'm ok now. They must be tired of me saying differently!!

5

One year since surgery. GH levels have been on the rise for past 6 months and I am scheduled to start injections of lanreotide (90mg) very soon.  Fatigue is worse than pre-surgury and it is difficult to function each day.  Does anyone have suggestions for coping ??  Will this get better ??

6

hi, am now 4 years post surgery and 3 years post radiotherapy.

finally finally energy levels are picking up now.

nothing like previous ie pre-intervention or when tumour was at its biggest.

but at least am able to do things and able to do a few hours of work a day.

but still not fully functioning ie if i do a 'full' day of work one day then i need to take it easy the following day. when i try 2 'full' days in a row i am on another planet afterwards.

have you looked on the pituitary foundation website? they have a lot of information, which may be of use. also a forum.

and yes, every so often i have times when I could sleep forever.

this has all become easier as i have got used to it. i try to follow advice of counsellor to 'be kind to myself' and of endocrine sister to 'take things a day at a time'. so when i cannot do something i used to be able to do i try and not think about my regression and instead just sleep/slob/do what i feel like.

good luck all.

7

sorry - meant to say energy levels are nothing like pre-intervention or pre-tumour!