Well i had my surgery on friday. Ns is very pleased with how it went and with my recovery still very sore havent eating anything but toast lol but so far all good just thot id let yous all no how i got on x
Good on ya nice to hear your doing well
oh great,
i am having issues with my appetite still 7 months out....idk why....so happy everything is fine
Leanne73120
Well done for posting so soon. Time for some decent TLC and time. Def with explaining to people up front that headaches can be constant or temporary and movement can make it worse.
Hope you can find most comfortable pillow for you
I never got that right.
If you get any food down, your doing well.
Keep in touch, sending you thoughts of good sleeps and relaxation.
Onwards and upwards..
Glad all went well I read were you were having problems with pillow I got a medium fill my pillow and has been great during my recovery your lucky you are able to eat. Get lots of sleep good luck to you!
Appetite isnt great still havent found pillow last night was first night home and bein honest had the sh*test sleep lol. Pain killers aint the best either so going to see doctor today to see if i can get some better pain killers. Think im doing pretty well maybe doing to much. Typical me tho dont like to sit on my ass for to long lol thanks for the replys guys n gals means alot to speak to people who are or have gone thru the same as me.
Hi leanne73120
Only obvious short term benefit was loosing over a stone in weight.
Good luck on the pillow. I still haven't resolved that one.
What pain mgmt you on. I was 2 x tramadol with 2 x paracetamol three times a day. Still on tramadol 5 weeks later, but only once or twice a day. Really important to get something that helps you manage.
Only consistent advise from everyone who went through this is you must listen to your body and not force yourself. This weekend I went out after 7 pm to get a takeout for an hour (still not allowed to drive) and following day wen to beach with family and dogs, just for couple of hours collectively gave me more intense headaches that have lasted 2.5 days.
Your health is priority for a while. Just because you can do something does not mean you can be relied upon in future at that time of day. Nature of our recovery also means we go backwards as well.
Now your home, you can start the real progress!
Onwards & upwards
All the best
I got 2 paracetamols and 2 30mg codeine and tbh i really cant find the comfy barrier i had when i was in hospital. I feel im oki todo the walkin about and things but my partners a gem wont let me do much lol
Meds are v individual in understanding what works and what doesn't. Co-codomol has made me hallucinate.
Comfort at this time is open to interpretation... It's a relative term.
You have a caring partner which is best start you can have once away from all official medical people 😀😀😀😀
Hi Leanne
Great to hear you are doing ok so far post op! Fingers crossed everything keeps going well for you. I have just had my pre-op booked for the 9th of October. So getting quite nervous, but be glad when it's done. Thanks for posting and I will be keeping a eye on your recovery. First time posted on hear but been reading for a few months since my diagnosis.
Thanks again
Tom
10days post op for me and so far im doin fine downd my meds a little im still pretty active just tryen to not do as much but all in all worth the surgery id post a pik of scar if i could but duno if i can its healing well and lookin healthy i was really nervous thot im gona have major sore head after but its mainly been my neck ul be fine us chairians are all here to help each other out so if u need any advice please do ask
My heafs still bit numb but will ask at follow up if thats normal on good side tonights the first night iv washed dryed n straightened my hair normaly not big for u but it is for me lol
Thanks for getting back to me so quickly and great news that's you have been able to wash and straighten your hair lol I can really imagine how nice something like that must feel for you!
A little bit of normality for you to after what I am sure have been a long 10 days. Fingers are crossed for you to carry on with a good recovery :-)
I would like to say I am not nervous but I am, but am just thinking of the future. I am 30 years old and have had the headaches as long as I can remember, but last year after a particularly bad chest and a month of coughing I started getting new symptoms and unbearable headaches which led to me being sent to the Walton centre in Liverpoo Where I was diagnosed.
Thanks again for speedy reply
Tom
Hi Leanne
Every step forward that puts a smile on your face and helps you feel more like you is worth celebrating.
Hope headaches are playing less of a role in day to day life. Even though there are backward steps, as well as forward in how we feel.
Here is to your progress.
Hi Tom
Sending positive thoughts for you and your October date. Had similar fears, but now 6 weeks post op today.
Lots of people on this site seem to have positive things to say about specialists in Liverpool.
If you got any Q's, do ask. Lots of people helped give me patients perspective and confidence to face the procedure. It's not automatic guarantee of improvement, but when I researched, could not find any other option for potentially improving quality of my life.
So now I'm a Zipperhead too.
Best Wishes
Heres to us zipperheads were warriors let carry on our fight and raise awareness
Thanks to you both for your replies :-)
Hope the recovery is still going well Leanne? What day are you on now, post op? Been having a week getting things in place for mine now, the days are flying and pre op is a week on Monday.
Went and had a filling on a tooth yesterday which has been giving me trouble lol thought the last thing I would want post op is a trip to a dentist!
Do you know roughly how long it is once the pre op is done until the op itself?
I am sure it's differs from person to person? What usually goes on at the pre op? Never had any form of op before so it's all very new to me.
Thanks for your speedy replies last time.
All the best
Tom
I had my pre op on the monday and was in for my op on the friday. Im now 19 days post op. Spose it will difer for each person. I accually had 2 pre ops 1 was about 2months before the other wich o thot was pretty pointless but hey ho thats what my ns done were are u based about
Hi Leanne
I live in North Wales and am having my Op in The Walton Centre in Liverpool. My NS is Dr Buxton, he's a lovely fella and has been really helpful with everything so far. In fact everyone I have delt with at Walton have been :-)
Thanks for the speedy reply, how are you getting on now?
Fingers been crossed for you, hope all going well!
Oki im in scotland my ns is dr candasamy hes very nice aswell. Im oki feelin bit crappy today just a bad day for me lol im recovering well though