This is exactly what happened to me. I really don't think health professionals understand cysts and how painful they can be. I had shooting pains at night, cramping pains, back pain and vomiting. This went on for months and (like you) I was put on a waiting list, although mine was 'only' 9 months.
At the time, it wasn't clear if my cyst was benign or not, so I was frantic with worry.
I went back to my GP several times (I got to the point where I didn't care what they thought of me) and demanded they contact the hospital.
When I had my cyst removed, they had left it too late to save the ovary as the cyst was completely wrapped around it. Mine was 14cm x 14cm (so I can't imagine the pain you must be in).
Oh, and the surgeon saw me the next day, she told me that she found "things floating in my abdomen and did I know what they were???" No!!!!! Turned out that it was poison and gunk coming off the cyst.
I'm now having problems with fibroids (does it ever end?!) and I've been a lot more vocal in getting treatment.
Seriously, just keep going back to the GP and demand to be brought forward. You need to be firm. I'm convinced GP's just don't get the pain that this causes and how it affects your life....let me know how you get on x
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Hi All
So since my last update I saw the consultant following my second ultrasound which showed nothing as the cyst had ruptured and she gave me a follow up ultrasound at the end of April. She said I could go back if I had any problems in the meantime though when I questioned why I was still having pains and my cycle was completely messed up she told me cycles can change as we get older and our brain can make us feel pain that isn't there!!! Was gobsmacked.
That was ten days ago and about 5 days ago I can feel a THIRD cyst! I contacted her as she said I could but her last day before a two week holiday was Friday and she never got back to me so have just been left! Got an appt with my GP on Wednesday and going to go private. Seriously fed up now!
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Hi
Thought I would add my timeline on for anyone looking (as that’s all I seem to do!).
Started mid March 2026 - noticed as I woke laid flat on my back (which I never do because I get lower back pain) a large hard lump to one side. I had been feeling bloated for a few months but ignored it. Went to gp who referred me for bloods within 2 days bloods came back with normal cancer levels..but referred me for a CT scan which I had 9 April 2026. Results on 15 April showed large cyst 20/18cm on left ovary. This was the scariest time as they couldn’t say if it was benign or not.
Referred me for consultant appointment 6 May 2026 who discussed possible Outcomes. (I’m 38 and have 2 children and sterilised so I’m in a much luckier position than other people.) he referred me for MRI 24 May reviewed by panel 29 May results came back 02 June. Said it’s benign fluid and someone would contact me to discuss treatment options. Currently have consultant appointment booked for 12 August 2026. Cyst is still growing and I look about 6 months pregnant now. Discomfort bloating acid can’t sleep. No real pain apart from the pressure feels very similar to pregnancy in the discomfort element . I’ll update the timeline when I get op booked. Overview below Hull hospital - initially fast track service.
25 March 2026 - GP appointment
27 March 2026 - bloods taken
01 April 2026 - GP discussed bloods referred to CT
09 April 2026- CT
15 April 2016 -CT results
06 May 2026 - consultant appointment
24 May 2026 - MRI
29 May 2026- panel review MRI result
02 June 2026 - MRI result (benign)
12 August 2026 - specialist appointment to discuss treatment options
Hope this helps!