57 African American Female who made have lichen sclerosis.

Hi Angela, happy i found this forum. I’m in Canada and not much forums on L.S. over here. I have been diagnosed over 4 years ago and my only symptoms where 2 white patches. I recall having some eczema younger and struggling for years so maybe there’s a link. Anyway there’s just so much to talk about concerning this illness to try and find a cure that it would take all night. I just wanted to say I know what it feels like.... you think about it every day and you feel different, not normal, you feel like you won’t have a normal sexual life anymore. I feel the same but being all in the same boat at least we know where not alone. Feels like we are normal after all. Let’s all try and share our new finds and tricks all together we’ll beat this.... 

Thank you Brigitte!! I must say that since that post, I'm dealing with this a little better. I saw a vulva specialist. She really listened to my fears and concerns. Before that day, this forum has been a blessing. When I was diagnosed, my gynecologist gave me clob and nothing else. I am on a different steroid now, because it has been determined that I have a mild case; the clob was too strong. Thanks again for reaching out and God Bless💗