Thank you ALL for sharing your experiences and advice.
I went to see the consultant today armed with all of your suggestions and research off the net. Turns out I only have two options. If I want to have another child then they say open myomectomy as they feel I'll get the same result in another pregnancy. If I don't want anymore children the hospital suggest just leaving the fibroids if I can cope with the bleeding and pain(pain is a new symptom around ovulation) I choose myomectomy and they say I will get a date within two months. Thanks ladies your help was very much appreciated 🙌
Happy belated birthday 🎉
Thank you. I saw a different consultant today and was only given two options, leave them but don't get pregnant as they think I'll have the same outcome or remove and it will increase my chances of going full term. I've chosen to remove and signed the consent form. She was a little younger than me and very understanding. She said they don't recommend hysterectomies just like that anymore and her colleague shouldn't have. She said only if the uterus has lots of fibroids and there's no chance of saving they will. She also said my fibroid should be solid again now it's not degenerating, I didn't realise that was possible. When is your surgery date?
How would I find the group? Things on this forum can't be deleted so I dare not post my name/details 🙈
See if you can find someone who does single incision laparoscopy (minigel point access). They go through navel, one incision, less down time and recovery. Good luck!
Hysteroscopic myomectomy is removing from the inside of the uterus.
Hi Carebear,
I take it the two options you were gived were hysterectomy & myomectomy. It will probably be due to size & location of your fibroid. The only thing with myomectomy is a fairly high proportion of people get repeat fibroids. My London consultant said some people are more prone to them. There is disagreement on this but diet plays an importnat part. I was your age when I was given those two options & 10 years later, I'm finally having to decide, though I have one beautiful little 9 year old (& would have loved another) it is highly unlikely at 47 that I will have any more children. Not sure if it's my fibroid, just my back or issue after an epidural, pregnancy & emergency C Section but I do suffer from back pain. So really need to do something as I've given this fibroid now which is about 13cm / 13cm a home for far too long. Seemingly the other treatments are not right for me various medics say & it has to be a surgical option.
Hi there Carebear, Just seen this comment & would be very interested in your feedback please. Has your fibroid shown as degenerating? I've been on hormone & injections for a period spanning over 2 years (with break to see consultants in between as th actual drugs 3 months, (month & cycle break) 3 months, (a few of months break) 6 months, (couple of months break, 3 months, (month & cycle break) 3 months. I've had 2 scans May 16 & January 17, both whilst I've been on drugs both showing degeneration. But my wonder is once off the drugs does that degeneration reverse?
Hi Heather, Yes that's correct about the growing back but it's just to give me the chance of getting pregnant and going full term. One option was myo and the other is leave the fibroids alone until the symptoms become too much or I need a transfusion from anaemia she said. I'm on fertility friend and there's lots of older mothers 45+ if someone's healthy enough and any age then why not. I think you should do what's best for you.
Your back pain could definitely be down to the epidural or the fibroid on a nerve. Why not got for a myomectomy? I've already changed my diet to stop it from getting bigger so I'll just carry on with it.
Hey All, it's Saturday and I've just gotten my surgery date for August, 3 days is so quick only seen the consultant on Wednesday.
The procedure on the letter says GYN: Abdominal Sub Total Hysterectomy & Conservation of Ovaries
Im confused as she wrote out Myomectomy in front of me and I signed consent for it? Why do you think they have changed the operation?
Hi
That doesn't sound right. Be very careful to check and make sure they have the right procedure on your file and ask for them to confirm the correct details in writing. It could just be a mistake, but you don't want to discover they have done the hysterectomy after the procedure.
You would think they would be a little more careful when it could have awful consequences, especially after everything you have already been through and the long discussions you have had with the surgeon this week.
I hope you get things sorted out on Monday and they put your mind at rest.
re; "my new research doesnt work "
Do you have more info on your research?
Yes, you need to check because when I spoke to physician we were set for myomectomy, but when they called for preauthorization to tell me my payment, I asked for the CPT codes (procedure codes) and looked them up and they had me scheduled for a total hysterectomy with removal of my ovaries and didn't even have myomectomy to remove the fibroids at all. So, BE CAREFUL and check for yourself.