A DAY IN THE LIFE OF FYBROMYALIA

Bones, joints and muscles
1

Hi all

So getting out of bed and walking around is a major effort..Thank God the house isn't on fire or I would look like burnt breakfast..OOh forgot to mention have headache and nausea and yes feel exhausted and have only woke up.

You think your having a good day and your energy is soaring to the point you feel you could walk for miles, clean the house from top to bottom, revamp the garden, decorate the house..

So off you go enjoying that you are able to do more than normal.. Having coffee inbetween ( well i do)..Having the feel good factor that your achieving so much today..WOW GO ME

OOPS you have spilt your coffee on the floor..So you get on your knees to clean it up..But how the heck am I going to get up again?? Even the thought of trying to get up is a struggle.. The pain and stiffness is unbelievable..My face is so distorted from the effort I know for sure this could be a Youtube hit for ugly..

Anyway off you go continuing with your day and this heaviness in your head won't go away and you are starting to feel weak and tired..

Go on have another coffee..Take a load off ( rest)

Just started to gut out a room and mess everywhere and I feel exhausted..Getting up the stairs is starting to become difficult because my feet and legs ache.. My arms ache and now my hands are starting to get sore..(thank god I can still hold a cup of coffee)

I want to rest in a chair to get my mojo back to do some more, but my neck and back or aching so not feeling comfortable to rest..The heavniess in my head is getting worse so I have to lie down because Iam exhausted..At this point all appointments canceled. But you get a phone call you have won a million pounds and it has to be collected now or you lose it..Guess we all know what happened to that lol..

So I wake up after my nap and WOW I still feel exhausted and cannot think straight. Not forgettng I feel like I have been hit by a bus now aching from top to bottom..( Get me my coffee pleaseeee ).. Oh that's right I live on my own..

I want to finish the room I have started to clean and now I am trudging and having to stop and start.. I have lost my mojo and feel like someone has popped me like a balloon and all the energy has left me..

I ache all over, feel weak, my head feels like I am zoned out, every move is a big effort, I break out in random sweats, I am frustrated, I feel like 90 years old, now I am crying where is my life??.. NO I DON'T WANT A COFFEE.. 

This was a good day in the life of Fybro ( you all know the rest) 

2

well put its me to a T except for the coffee bit with me its tea the joy of having fibro NOT sad

3

That is sooooooo true that's how I've felt for the last few days and with 3 kids it's def not fun X

Massive hugs to all

4

I totally relate to every word, well described, and that's just a good day 🙄

5

So lovely that you keep your sense of humour Laura. And you have a good one! Well girl, I'm sure everyone can relate. Yes it is often a roller coaster of symptoms and having energy one moment, we can then feel shattered the next. I think the best we can do is to 'roll with the punches' as the expression goes. Take it as it comes and deal with each day. Keep a healthy balance both nutritionally, physically and emotionally. To learn the art of acceptance and the gift of being kind to ourselves. We often have thoughts of 'why me' or 'I wish I could!' Yet even if others are not suffering with FM, we can see that everyone has some trial or ongoing situation to deal with today. No one is exempt. And many are struggling with cancer. I lost two lovely friends from cancer in this last year. Others are dealing with MS and other similar conditions, like my dear niece. Many suffer with debilitating arthritis. So it just seems to be part of life today to have some health issue to endure. The stresses of life are becoming more difficult, so we must find ways to lessen our anxiety and worrisome thoughts. Keeping a Gratitude Journal can help us to get things into perspective. Dealing with ongoing pain can make us feel weighed down and discouraged. But I think sometimes, how hard it would be to have FM living in a country that does not provide sufficient health care or medication to help people manage their pain. We are so blessed to have such provisions. But I feel for your pain Laura. There is no cure as yet, but there are ways to help yourself by accepting your limitations and allowing others to respect these as well. I wish you peace of mind my dear. One day at a time girl! Warmest regards. x

6

Thank you for your lovely positive response.  You are so right that we are not on our own and people are a lot worse off..I totally agree in a gratitude journal as i have used one before many a times to get me through difficult periods of my life and yes a sense of humour is very important..

That is a very positive way of looking at are health care system.. We are a lot more fortunate than other countries and you have made me think how I need to realise that.

Sorry to hear you lost two of your friends very difficult time for you..

Wish you all the best

 

7

A sense of humour is the only thing that is keeping me sane just now, if I were ever to lose that then God help me xxxxx

8

I did lose my humour for a long time but its on the up hence the post lol

9

My heart goes out to you sadie..3 children to look after as well. You need a medal..

10

Shouldn't be drinking coffee but I don't drink or smoke..So I think to myself what the heck and have a bar of chocolate as well lol

11

Lol, I'm so glad you have your mojo, we really need it

12

Oh and coffee does help, caffeine can be a life saver with our illnesses x

13

You are doing just fine sweetie. You are a strong courageous woman as so many of FM women are. Giving ourselves what we need in the way of rest and care ...without guilt, is what we all need to learn. It is always worrying about and taking care of others and going beyond our own limitations that have often gotten us where we are today. We often lack balance and demand ridiculous expectations of ourselves. We would never treat a friend or loved one the way we regularly treat ourselves. Living and learning life lessons; that is our goal. xo

14

Good for you Trisha! And yes coffee helps with migraines. 

15

I regularly feel guilty when some days I can't find any energy to do daily chores and my family who are having to come in from work and pick up the slack, I feel as if all I do is apologise, family great but this illness is for life and none of them signed up for it, that's when I give myself a hard time and can get really depressed.

16

 it comes and goes depending on the day.. I use to be very bubbly, positive and always laughing until i took ill two years ago..My health knocked me for six and its taken this long to get back..But keep the coffee going ( throw in the odd bar of chocolate) and we have lift off lol.

17

Thank you Magpie..

Totall agree we need to be kinder to ourselves..Yes I have high expectations to the point I believe I am going to get better..Even my docotor hopes i will.. I guess time will tell as iam waitng on more results for my thyroid..

18

It makes me sad to hear how so many women underestimate their worth. Apologising for a condition that you are not responsible for or feeling guilt is counterproductive to your health Trisha. We build these things up in our minds and often our families do not think like that about us whatsoever. They are just grateful to have you in their lives Trisha. Don't believe everything you think! Know your worth girl and begin to realize how much you have done for your family and what a loss it would be without you. How would you feel if one of your loved ones became very ill with say, mononucleosis or arthritis. Would you think to yourself, 'oh I didn't sign up for this! What a burden this person is!' Oh my goodness, that would not even cross your mind! You would have compassion for them and you would want them to take measures to cope and preserve their energy. Why would you ever think that your family members would think otherwise. So have that compassion towards yourself Trisha. Stop that negative thinking as soon as your thoughts start in that direction. It is just not true! You are precious to your family and friends. Know this! Maintain a more positive outlook and build your self esteem and self worth. Get some books on this. Do self esteem tests online. Take a proactive outlook to counteract these ideas. xx

19

I know you will get better Laura. We are often our own worst enemies. The negative thoughts are usually what drains our energies. Have faith my dear. You will succeed! 

20

Thanks Hun lol I'm doing be in most days lol and I work full time xx