A diagnosed after 20 years

Brain and nerves
1

i has to share some exciting news. my CfS has been confirmed. ive seen a specialist after my doctors referral, she was amazing, and out of the 8 symptoms i had 7! I took my mum for moral support and so glad i did as she was able to hear that im not a hypochodriact like everyone thought. The specialist has dated me having cfs since glandular fever exactly 20 years ago. Ive had 2 operations thinking my symptoms was endometriosis. ive got an activity plan which i have to follow and its Really tough because its changing the habits ive had since i was a teenager, im such an active person, always on the go and now told to slow down. However I am willing to try anything as long as I can manage these symptoms for the rest of my life. Keep going everyone.x

2

Hi Caroline,

Can hear the relief in your message! Fantastic you got the answer after all this time.

Hope the activity plan helps too.

Beverley

3

Hi Caroline. That is fantastic news. So pleased for you.
what are your 7 symptoms?

4

Thank you.
Most of these we just put down to it being “a Caz moment”!!

  • Clumsiness
  • Forgetfulness
  • Difficulties with pincer grip
  • Fatigue
  • Leg & finger Spasms
  • Over sensitive to noise (even at a “normal” level)
  • Pains in my joints and muscles
5

Thank you Beverley.
Not going to dwell on it, I’m way to positive for that but now can start to change my habits and routines to fit around life.