Hi,
As the title suggests, I have recently had a brain scan which showed some abnormalities. I am having a repeat scan next month but no one from Neurology has directly spoken to me. I am getting conflicting information and am feeling really low.
I was admitted to hospital a couple of months ago with severe abdominal pain. It turned out I had a bile stone lodged in my bile duct, even though I had my gallbladder out 3 years ago, I have all the luck lol.
This developed into a severe infection and I was really poorly and bright yellow from jaundice. Whilst this was going on, I developed a crushing headache, pretty much across my forehead. Then I lost part of my vision, which terrified me. It was like parts of words were disappearing.
I was seen at the Eye Hospital and they said my eyes were fine. Then I had a brain MRI with and without contrast.
I pestered the doctors for my results but they were all Gastro specialists and said they weren't as familiar with the report.
One doctor said it showed something pressing on my brain. Ashamed to say that this sent me in to a massive panic. Assumed he meant a tumour and I got myself in to a state. No one has mentioned this to me, though.
I was so upset and confused that I asked another doctor who said it showed inflammation pressing on the optic nerve. They said they were going to give me high doses of Prednisone introveniously for three days. Shorty after this I then had my operation to remove the bile stone. Following this the jaundice settled and my eyesight returned and has been fine since and no more headaches. I have never really suffered with headaches in the past.
Whilst in hospital a different doctor told me that the scan showed potential signs of demyelination and a lesion. He told me not to Google it but as soon as my sight returned, I did and of course it brought up MS as a possibility.
Then my GP rang, when I was home and said nothing was definite and it just showed pale patches.
Apologies for the long and rambling post but feel so down and alone. I am not normally a worrier but just frightened for the future and the effect on my children.
Before my op I was really ill and the the operation itself did not go smoothly and turned in to major surgery and then I got an additional infection.
After all my rambling on, I suppose main thing I am wondering about is, could the lesion and demyelination have been caused by some thing else? Does anyone have experience of this?
I also have psoriasis and have been recently referred to a rheumatologist as I have had some joint pain. in my back, ankle and hip.
My second scan is a month away but feels like an eternity. The sensible part of me says to accept the waiting game. The other part is already coming to conclusions.
Been thinking about posting this for a few days but been too scared to admit to myself how I am feeling. Also feeling scared about potential responses, I am such a mess today. I have re-read this and I sound neurotic making such a fuss
Thanks in advance, in case anyone can offer reassurance. Sending best wishes and positive thoughts to all.