This site will not allow me to put on the link. Google bubble pep. It is a DIY PEP for children written by Great Ormond Street Hospital.
xxx
Hi Cynthis
Yes many bronchiectatics here in the UK use a nebuliser. I myself use it twice a day to nebulise a bronchodilator, followed by hypertonic saline 7% followed by physio and for 28 days on and 28 days off I nebulise Tobramycin antibiotic. My nebuliser is on permanent loan from the hospital and all the cups, piping, masks or mouthpieces and nebuliser are replaced.
Personally I am what they call here a 2% patient i.e. 2% of patients at a GP surgery who are considered most likely to have unplanned hospital admissions have that status, which means you are seen or contacted by 'phone by a doctor if necessary. Unfortunately some folks do have to wait longer but I don't think it is as bad as you have heard or read and of course our NHS is free at the point of use.
Hope you are well at present.
love cofalot x
Hi,
Thanks so much for all the helpful info.
When I saw my consultant, he seemed very stressed and rushed off his feet, he literally ran down the corridor, with me trying to keep up, to get me a leaflet on the condition in order to get rid of me asap!! Bless him! He actually is a Lecturer in Respiratory Medicine so hopefully has some interest in Bronchiectasis lol!
The physiotherapy dept rang me today because I am having trouble with getting rid of the gunge, to say they will try and get me an appointment sooner. I mentioned the acapella device to them and they said buy one and they will check if I am using it correctly at my first appointment with them.
I google bubble pep and have a look, thanks for pointing me in the right direction.
I really must drink more water as am sure this will help me.
All the best and ta ever so for info
x
Hi Trish.....You can go onto You Tube and find out so much about Bronchetasis...I found several videos that answered so many questions....I have good days & I have bad days...I did get oxygen finally....I have a small one for when I go shoping ..I get so out of breath...I also have COPD.....Stay Strong...we will make it...This site has helped me a lot....
Hi Cynthia
Thanks for reply. I have had a look at the videos and yes they do help with the questions. I saw my doc yesterday and he said I should not get too hung up on whether I am mild, moderate or whatever, worrying about my sats etc ....... the main thing was to try and avoid getting another infection, drink lots of water, do my exercises and on the good days "live my life and enjoy"! He is probably right ........ mind you he was 6ft tall, obviously athletic and as fit as a fiddle, so what does he know lol!!
Sending you a hug
Its good you can get out to do some shopping with the help of oxygen, I am sorry that you get so out of breath
Hi Trish, Iv just been diagnosed with Bronchiectasis, I have been lucky to get my acapela devise and i find it quiet usfull even though I am having to use it four times a day at the minuet as i have a cold, I am doing the best to keep infection away, I find that deep breathing holding the breath for count of three, 5 times and then the huffing is good as well.
Hi Ttish, I was lucky to get a speedy appointment at the physio, and given an Acopella devise it is good but I wanted one to carrie in my bag and saw the Fltter devises were smaller, I sent for on off of the internet, £54 but I find for me it works better and I am glad I sent for it , although I have fornd no way yet of compleatly clearing my lungs I havs asked a question on here you may be interested in reading the answers. it starts . I can not clear my lungs properly.
Hugs pam
Trish hi
No answers for you, just empathy. I was diagnosed 3 years ago
and have never been able to move enough sputem to put in the samples
bottle! I rather gave up because apart from being a bit tired I had no
symptoms. All that changed this year. I had the virus going around , a chest
infection, , 3 lots of anti-biotics and now 2 weeks later the chest infection is
back again. Still no sputem to speak of. Nobody ever told me what to expect
I also have had a bad back during this time, is that a side effect?
I will certainly try the appliances you mention. Am I to assume that this now my
Normal?