aches and burning sensation related to RA?

Bones, joints and muscles
1

Hi everyone,

Not too sure what going on with my body. But about 2 weeks ago, my lower back, hip and elbow was started to ache. I was thinking that it could be nothing because I was starting to get back into my normal exercise routine.

Just last night, my whole back and between my shoulder blades had started to ache like I was exercising funny or something. Then I noticed my chest had a burning sensation.

This morning I still have the same symptoms but not as intense as last night.

I don't want to jump into bigger conclusions just yet but what was popping up on the internet was that it could be fibromyalgia.

Does fibromyalgia have anything to do with rhumatoid arthritis? Have anyone else experience anything like this before?

I'm getting a slight anxiety because more symptoms are happening and I don't understand what's going on.

2

No Idea.

Call Doctor ASAP!

3

Yes call your Dr. There are two many answers you could get from to many people. Best to listen to a Dr. first and good luck

4

Do you have rheumatoid?

5

Hi there.

Yes I have rheumatoid.

6

Are you on any medication? Have you had any recent blood tests?

7

Hi,

Yes I'm on medicine. My doctor has me on prednisone, leucovorine, methotrexate.

Last time I had blood work was last month.

8

Hello there,

I have RA, Osteo and Fibro and you could be describing my body! 

It might be an idea to talk to your GP with a view to being referred to a Rheumatologist.  Mine did loads of tests Xrays, Scans etc and  Fibro was finally confirmed.   There are meds you can take and lifestyle change usually helps, so make an appointment with your GP and go on from there.  Good luck. x

9

Do you seem to tolerate these mess or have u had side effects? Just checking you don't think these new symptoms are from meds hope you feel better soon x

10

Hi Sukes do you mind if I ask what meds you take for your RA and fibro I think I need to talk to my reaumy about new meds x

11

Hello,

Thanks for the reply back!

I'm planning on calling my rheumatolou tomorrow to see if I can get a earlier appointment.

12

Hello,

Well when it was just two weeks ago and just my lower back was aching, it was tolerable. And last night when my whole back was aching and light burning at the top of my back and chest, that's when it was unbearable.

I had to take a stronger ibuprofen, but even that didn't help too much.

I'm not too sure if it's side affects from my medicine but from what I was reading online.. it could be a possibility?

13

Rheumatoid swells, swelling compresses nerves, compressed nerves tingle and burn. And yes, another possibility is fibromyalgia.

I am on

150 mg Lyrica-pregabalin as a single dose for the nerve pain

Rituximab infusions for JRA

1000 mg acetaminophen nightly

14

Sorry for your discomfort. You should get to your doctor soon. Often you can get a shorter wait time for your appointment if you tell them you are in pain.

Best of luck to you.

15

Thanks!

I didn't know that rheumatoid can cause a burning sensation.

I will definitely be calling my doc today!

16

Hi there,

Thanks for the reply.

Hopefully my doc has a appointment available for me.

17

Hi Emily,

​unfortunately I am one of the awkward ones who seem to be allergic to most meds.  I was extremely sick almost immediately after taking methotrexate and had to stop hydroxychloroquine within a few weeks.  

I've had injections, some of which have helped, but I don't rely on anything really.  

18

These were developed as chemo therapy for cancer patients...

The night before I take

acetaminophen 500 mg

benadryl 25 mg

Allegra

Then the morning of I take the same three drugs.

When I arrive at the hospital They run saline in for thirty minutes.

Next they run in solumedrol 100 mg

all of this is to avoid adverse reaction. Severe adverse reaction is not the same as allergic reaction.

Perhaps something here might help you

hugs

19

how frequently are the infusions, I think all are monthly but I can't say for sure   

20

Infusions vary.

I infuse 1000 mg of Rituximab

two weeks later a second 1000 mg of Rituximab

Rituximab is generally given like this every 4-6 months.

Another of my rheumatologist's other patients is now in her second year of complete remission from rheumatoid! Personally, I had been doing fabulously well on every four months but mt immune system suppressed a bit far so this last time I went six months. I will suggest five months this go around...final decision is up to my rheumatologist.

I also have an immunologist who is prepared to intervene if necessary.

If your rheumatologist is not following with you every three months, I would be concerned. If your rheumatologist is not checking your blood levels every three months, I would be concerned. If you have not been instructed to avoid live vaccines, be concerned. A great, conscientious rheumatologist is critical in your care. Rheumatoid is a team effort that includes you, your rheumatologist, your physicial therapist, your immunologist, and your infusion nurse.

Each medication is different. Methotrexate can be taken orally or as an injectable. Enbrel and Humira are injectables. Way back in the mid nineties we had to reconstitute the Enbrel before we could inject it! Imagine mixing the medication first!

The day is coming when joint replacements will become rare...we are each so very blessed to live now with the availability of medications to boot rheumatoid right in the rear. One day, bad days will be a distant memory.