How common is the above? Could you still have an adenoma with normal prolactin?
Not sure Im answering your question. I had a dual pituitary tumour. It was prolactin and ACTH producing. Never experienced symptoms of Prolactin.
hi,
did your blood test show extremely high prolactin though?
It depends whereabouts on your pituitary gland the tumour is as to which hormones it affects. I had a 3cm macro adenoma, but it only affected my cortisol and testosterone. My prolactin levels are normal.
I have extreme galactorhea but my prl is normal. and theyve asked me to do an mri for which im not very happy about
Hi there, I would have to say yes. I just recently had my MRI and still have tumour, but yet my levels have come way Down so if they went with just my levels. Not sure what they would have done. Hope this helps
of course
there are many types of
pituitary tumors or adenomas
well around 4 types
prolactinoma
tsh-oma
etc...
too much cortisol- Cushing's
Question why would you not be happy to get an MRI to confirm? Is it a money thing? Hell I would jump at a chance to get an MRI to keep an eye on what’s happening.
May I ask why you have not had this removed 3 cm is pretty big? How is your eye sight that size I would think it would push on optic nerve.
your lucky to get an mri
that is a good way to see a tumor
or parasellar mass
I would try to do it without contrast though
Hi Kim, yes the adenoma was removed in 2013, because it was affecting my eyesight, although I hadn't recognised how badly. Eyesight is back to normal, but cortisol and testosterone production are forever ceased. But it is easy to get an injection to replace the T, and hydrocortisone to replace the cortisol.....although the latter is a bit more tricky getting the right dose.
They are looking at my Cortisol levels now I can’t sleep at all..... I now have diareaha for more than a month and half and my stomach keeps getting bigger but not nescesarly gaining anywhere else.
yes, I guess that could sound like Cushings
after they will check if it is
Cushing's Syndrome or Disease
Because im sure its not this, thats all. If it was an adenoma, it would be the best outcome for me. But im sure its not. Im just slightly depressed and tired of going to the doctors
hi Maddison
I would not dismiss it til you know for sure
Unless you were breastfeeding recently
this is very odd
hi,
no i wasnt breastfeeding. ive never breastfed. my prolactin level was 29 though, which was within normal range according to that lab. so, i think that if it was prolactinoma the levels would be off the roof
no, not necessarily
sometimes with large adenomas
the prolactin level is only
slightly raised
your slightly above the general ref range
I really would get the mri just to check it out
Adding to Cournay26's reply...
... and that is just the functioning types.
You can also have a non-functioning adenoma which means it blocks part of the pituitary from doing its job. Other aspects continue to work either normally or substandard. So there is no overwhelming reason why you should have some normal hormones and still have a tumour.
Total block on all hormones seems rare nowadays, I guess the adenoma finally gets found first. A scary number of people struggle along until they go for an eye-test complaining about blured vision only to be told to go see a consultant like yesterday.
getting my mri results later today.
and i suspected. its not adenoma. its menopause at 30. lol.