Where do you live? I did send you a private message
I’ve emailed you some photos!!! Hope you are not squeamish!
I live in Epsom England x
Wow! Just responded to one of your emails
Hi Rachel, yes I am seeing an endocrinologist. Having a repeat cortisol blood test in 6 weeks time and a further one 6 weeks after that before they decide whether to go ahead with another synacthen test. The fatigue is unbearable, not a usual tiredness but my whole body and mind is tired, limbs feel like lead and an effort to find energy to do anything
This isn’t rubbish I’m
Sure they will get it sorted out. Xxxx
How big was your tumor? Curious what your symptoms were? Thanks
Tumour was 6cm. Symptoms were weight gain, difficulty breathing, anxiety, hypertension (admitted to hospital twice with hypertensive crisis), chronic fatigue. Removal of adrenal gland seems to have resolved hypertension, and anxiety but still suffering with chronic fatigue
HI, when did your pain start?
Just a few weeks before it was found!
Rachel.....can you share what your symptoms were before you discovered the tumor?
Hi No symptoms really that jumped out I didn’t have any Cushing or anything. I would say I was tired and I had quite bad ibs bloating and my stomach always felt full. Obviously that was the 15 cm melon sized tumour! X
Hi, Nancy. I just want to know how you feel after surgery. How did everything go?