Advice please

Am reading a lot on here about people using Bicarbonate of Soda and Baking Powder? Is that right Baking Powder not Baking Soda?

i am keen to give it a try but need to know exactly what to get and in what quantities to use it. Also do you leave it to dry on the skin after use?

Hanny advised me its bicarbonate of soda? Few pinchs in a small bottle.

Morning Hazel, may i ask what the bicarbonate of soda was recommended hear for? was it UTI?

Hi Susan, think I read it was used for LS along with the baking powder or soda whichever it is.

Is there anyone on this forum from Dublin or anywhere in Ireland?

 

I just use a small tub to sit in and put in a couple teaspoons, in a tub during a bad flare up I put in about a cup, im not sure if that is the correct amount but helped me.

BAKING SODA/BICARBONATE of soda.  NOT baking powder.  There is a big difference between the two. 

1/3 cup in a bath and three pinches in a spray bottle (the kind woman receive in the hospital after giving birth)  

 

I use the rinse after every bathroom visit and then cover the area with coconut oil. 

The bath I do every other day.  

Next to that I follow an alkaline diet.  

It has been very beneficial to me.  No more fusing.  Better way of living with LS.  And use Globetasol only when early signs of LS flare up are felt.

Any more questions - just ask. 

I hope this is not a silly question, but what size isthe cup, as I know America uses ta cup full as a measurement, would it be the same as a teacup. 

 

Hazel whats LS ?

One cup is 250 ml.  Hope this helps. 

Thank you Hanny, that clears the confusion. Much appreciated.

Hi Susan, LS is Lichen Sclerosis, that's what this forum is all about. Sounds like you've strayed onto the wrong forum.

Ha ha thank you Hanny, now I know, do feel a bit daft now, tea cup ha ha. 

Hi Hanny.. I use a sitting bath, how would be the measurements for this?

Depending on the size.  I have not realy a good idea how big the sitz bath is, but I suggest you use 1/8 of a cup to start with.  You'll have to experiment a bit here.  But remember that too much is not desirable.  

Thx again

yes, i live near Dublin

Hi Kate, I was diagnosed with LS two years ago, after suffering with the soreness and pain for about 3 years, and not knowing what was wrong. I was using caldesene power and cream, which helped for a few hours. I was prescribed dermovate cream nightly for 2 weeks after diagnoses, and the relief was amazing. I use the cream maybe twice a week now to keep the symptoms at bay. My main problem now is fusing of the skin and I don't know if anything can be done about that. Do you have any problems with that, and how do you cope

 

Hi Hanny, I have problems with fusing, and I was wondering if there is any way of reversing the fusing. Can they do surgery to repair the damage at all

 

2 weeks seems a very short lead-in time for control of LS, it's usually in the region of once or twice daily for two months.  I don't have any problems with fusing at the moment, though I did lose most of one labia minora before treatment. As i understand it, fusing occurs when raw surfaces bond together - if you continue to have these raw surfaces then perhaps your LS is not fully controlled? People on this forum say that use of an emollient cream between applications of dermovate are very helpful, and some have reported that breadsoda baths can help to partially reverse fusing. Surgery is possible to reverse fusing, you should discuss this with your Gynacologist or whoever is treating your LS. Do you have private health care? I go to see a private gynacological oncologist in Dublin because waiting lists are so long and I was really upset at the dismissive manner in which I was treated in my one appointment at a public hospital. I've also been privately to a very good dermatoligist.