Hello,
I am new to forum. I have neuropathic pain in my feet and now part of leg. Occurred post cortisone injections pre surgery to treat ligament damage caused by an accident. Unable to have surgery now due to pain condition.
To date have tried Topiramate, lidocaine patches, pregabalin, amitriptyline, codeine, tramadol and celicoxib as anti inflammatory. Currently taking duloxetine, 60mg of codeine 4 times a day, lidocaine and celicoxib.
Was discharged by hospital pain team after a very upsetting appt where was not even asked about my symptoms and told there was nothing else that could be done. I am still relatively young and rapidly losing faith in medical profession.
Any ideas what I can do. I am still only able to work part time, cannot stand/walk for long periods and average 3-4 hours sleep at night if I am lucky-sometimes I go to work on no sleep. Any suggestions re what I can do treatment wise and anything to help manage pain at night. Not mad keen to try gabapentin as heard it can make you really drowsy which would not be great for my work. Tramadol did nothing.
Many thanks in advance for any ideas.
Hi
I would give Gabapentin a try along with Duloxetine. I am on 1800 Gab and 600 Dul and live a very normal life as long as i remember to take them also find any form of exercise helps i.e. Yoga.
Carol
I am very sorry to hear this. I take it that you have researched the effect of medication and that several can cause neuropathy?
Sorry but I tried duloxetine and it made things worse even on small dose, well worth remembering that what suits one may not suit another. Sorry Carol.
Hi
I too have leg pain from spinal stenosis and bulging disc at L-4-L5. I have some relief with a heating pad,alpha lipoic acid ,and cream you massage in area. Just started gabApentin. It helps with pain and sleeplessness. Good luck
Sandy
Sorry but I tried duloxetine and it made things worse even on small dose, well worth remembering that what suits one may not suit another. Sorry Carol.
Carol How long have you been on Gabapentin for?
Hi, I am so very sorry you have to deal w this situation. I have been dealing w nerve damage, painsomnia (very little sleep) for a very long time.m have had every procedure and Meds available. My biggest learning curve has been accepting the new normal that my life is now. This is a very depressing illness. First of all it is invisible, most folks feel bad for you but don't really understand. Believing in your knowledge of you and what is going on is big. Think of yourself as a warrior who is dealing w a battle to be as well as possible. Pain management clinics are the most knowledgeable re. Your options . It is a lengthy process. Takes courage to not give up! I have heard that fentonal patches are helpful to some. I never used them. I am on morphine and have recently had Nevro implant for nerve stimulation. It helps is not cure. I am able to get around a bit but need to determine what Activity I will pursue as it does influence pain level. I am an old duck so I am able to adjust to activity level I
I hit wrong button! Anyways hold on tight to those you love and be kind to yourself. I wish you the very best and am sending a hug your way!
Thanks for your wise remarks. I too am a senior and have been very active my entire life
This is a big adjustment I am finally going to a pain management doctor
Sandy
I know it different for different people but just had such major problems with side effects with nearly everything I have been on. Do you mind me asking if you are getting side effects with gabapentin. I have a few friends on it that have really struggled with the drug?
It is a journey and I hope it is a successful one for you. Be a warrior!! Good luck.
I just started with gabApentin. Seems to work. Will let you know about side effects
Sandy
Sandy Just pm the side effects of gabapentin/n
I have been on it for 2 years but get blood taken every 6 months to check if its ok to continue with them.
At the start i felt a bit spaced out and got the runs all the time but its all settled down now.
Carol
Gabapentin is not as powerful as progablin . This could be a nerve or nerves in ur back. It's such a big area people have all different back problems. Change hospitals that's the 1st thing. Put pressure on u Doctor keep making appointments. Injections in ur back alot of people come out worse. I have the feet and lower leg thing. I have cauda equine syndrome established. I have a colostomy and a urostmoystoma they removed my bladder as well that went sepitic. I had urgent surgery as I had a major compression of the lower nerve root I was left for 6 days I would have been OK if they had done the operation within 48 hours. I won a lot of money in damages. I have mobility issues I can't feel much from waist down. Only the intense pins and needles both legs I have so many bad feeling running on pebbles with no shoes on hot and cold water. List goes on. I was told the operation was to relieve the compression. Not the pain as I have so much nerve damage my last mirror scan shows my whole spin as discs and osteoarthritis and other fluids they said it's a lost cause to operate. I will end up in a wheel chair but I keep going I have had hernia major surgery twice then colostomy revision. As the area I had was going bad. 7 major operation the scar goes right up the middle . Pain wise even with 30mg slow release twice a day.ŕmorpthine. progablin 600 mg. Notripiline 125 mg various sleeping pills. I have just been left. I am now under guys and St Thomas's. Their pain team are good I am going to stay at the hospital in October for 2 weeks in one of their flats I am having assessment so mentally and physiotherapy. Assessment so I pass their 1st assessment. I have been told I will qualify for neuromodulation it's a disc with batteries go in the back they disrupt the pain signal . If it works I could lose my pain even if it reduces it is will be happy. I write this not for pity I have had 8 years of this I walk with a stick. I won't give up I am 58. I was a really fit 50 year old had a good job in the mod in security. I played golf went to the gym done all the work in the house gardening decorating never left any thing my wife is disabled since 1990 I have been here care. She just got on with life. So I do now. Anyway point is don't give up keep on till u get some one to help. I was told except my situation. I won't I want to be able to do things I have been in twice for having falls 2 month's the 2nd time on my back for 6weeks then major pyhiso. Keep going 1st try as many different tablets find the cheapest0nes that help with the pain.
So sorry to hear your story. I am trying to stay positive. I swim and do water exercises. That's about it. Afternoon I start to get relief. Alpha lipoic acid,Heat,cream,apple cider vinegar. I tried it all. I am non medicated diabetic and still I hav
Neuropathy. I also have spinal stenosis and bulging disc. Good luck
Hi Where did u go to for your nevro implant?How long ago was it done?