I have cysts on both sides. left hand side about 11cm, right hand side 10cm.
I am being sent for an "urgent" MRI in 7 days. Rather worried how I will stay still for a whole hour all by myself in the MRI? Any tips please?
Then I go back to the consultant the week after to see if they are cysts or cancerous and how we will treat them.
I am having dizzy spells where I feel that the world is turning to the right. Constant back pain that feels like something is pressing on my back which makes me feel like I need to go poo.. Gassiness. I can feel the cysts as painful lumps from the front too. My stomach is hard and stretched.
I'm feeling very tired from the discomfort and worry.
My appetite is still pretty normal.
Sex is a little painful in certain positions as my tummy is tender and I can't fold up my body properly. I'm not able to move as easily.
They have been "watching" the cysts for 2 years now and have seen them grow from 5cm to 7cm to 11cm. Only now are they doing something about it.
My Ca125 test was 31 six months ago, it is now 37.
I'm very anxious and on edge.
I have no idea what the 'cysts' are made of though my last report said they have a "mild vascularity".
Also, I am diabetic and I have PCOS.
Any advice or support ladies? I need it to get through this uncertain time.
I should have said... I am 44. Still have periods, though they are getting irregular, sometimes heavy, sometimes light, sometimes 21 days between, sometimes several months.
You must be worried sick.Why did they leave them so long and let them grow so big before considering surgery? I have had an 8×8 cm Dermoid Cyst removed along with One ovary and both fallopian tubes 4 years ago and another large Dermoid has now grown on my right side and I will be having that out soon.I have dizzy spells and remembered that from last time.Id no idea the Cysts were there.Im now 46 and have hot flushes,bowel issues and feel blah. I have pain in the right side mainly when I'm leading up to Ovulate and pain lasts until a week after my period.Also a bit of pain I certain positions with my husband.Id imagine as both of your Ovaries are bad at the same time you must be very uncomfortable. I also get stabbing pains in my ribs that is agony.I googled it and it's a strange pain referal from Ovarian Cysts.My periods vary between 3-9 weeks.I suppose as the Ovary ' s are battling to function properly.
I know how worrying this is and the lack of information and support.
I only found out I had another Dermoid growing 2 weeks ago and I was gutted but now relieved that it's been found and I wasn't imagining it all,I just thought it was pre menopause.
My Cyst appears to have calcium and blood and possibly hair in and a small chance of Cancer.My last one had Oily sebaceous stuff and a piece of pointy calcium and no Cancer.So I'm hopeful that it'll be the same outcome.I won't know until it's removed and analysed.
Feel free to ask me anything.It does help having these forums
Thank you, I am nervous about surgery and about the MRI and what they find they consist of but I do really want them gone so I can feel better. The waiting is hard!!! It gives so much time to think.
I get stabbing pains if I turn to the side, my neck is sore because when I turn my body to the side it hurts so I try to just move my neck and end up hurting that too!
I thought I might have been perimenopausal too the consultant says it is probably the cyst altering my periods.
I'm hoping they can just remove the cysts and leave everything else intact. I think I may have a lot of adhesions from a cesarean 26 months ago. It was at 25 months ago that they firs found "a collection" in my abdomen and they decided that as I was just after the birth that it may just be reabsorbed by the body and just go away.
You wouldn't be human if you weren't nervous.Ive been in that similar situation twice and given the Cancer chat.Luckily I turned out fine and am putting it to the back of my mind once again now another Cyst has grown.I know my remaining Ovary has to go along with the Cyst and I'll be thrown fully into menopause,great!!
Congratulations on having a little one,see it as a good distraction and try to focal on the possitive. The stress and worry can drive you mad,and add in a bit of Googling horror stories!!!
MRI ' S show up the structure and contents of Cysts etc and can give an indication of Cancer like structures.Ive had multiple MRI 's and in another unrelated surgery they suspected Cancer but ultimately I had to wait until post surgery and tests on the thing that was removed,it turned out fine.
The MRI is fine.You go in a Tunnel and you have to wear ear plugs.The staff working with you will keep talking to you and checking you're ok.I had my spine done recently (which picked up my Cyst) I just tried to keep relaxed and before you know it,it's over.
I try to stay calm as it sets my IBS off and then I get snappy and not nice to be around.I get busy and try to occupy my time.Distraction really helps
Sorry to hear of your worrying journey. I've just gone through exactly the same as yourself. I had two cysts, 13cms on the right ovary and a 6cms on the left ovary. I had exactly the same symptoms, feeling dizzy, nauseous, pain in back and going into the ribs, etc. my CA125 was 39. The cysts were both complex vascular and a solid area in the bigger cyst which the surgeon was not too happy about. However six weeks ago I went through an operation to remove the ovaries and I decided to have a hysterectomy as well as I have no further use for any of these as I am 58. I was in hospital for two days and came home on the third and rested up....no lifting, bending, carrying, pushing, pulling etc.....I am perfectly well and feel great. They will tell you a week after the op the results of the biopsy...mine were benign. It sounds like you are the same as myself. Don't worry about the MRI the nurses talk to you and it isn't a full hour. Good luck. Xx
Hey, so I kinda skimmed through all of your replies and discussions so excuse me if I missed any points.
So background for myself, I am 21 years old and I have 9 cm cyst inside my left ovary and I am scheduled for surgery on 06/09 which is in a couple days. CA125 markers are high and think it is a possible endometrioma. From what I read, You might have some sort of endometriosis which can cause cysts to grow in various places in the reproductive system so only way to treat it is by surgery, hormone treatments, or thorugh Birth control pills but they only prevent it for short term. Anyways as for your MRI, you can talk to your Doctor and tell them that you are claustrophobic and they will give you Xanax or something to calm you down. I did that and it worked for me.
I've just found this forum and am waiting to see the gyno myself, sick with worry, had a ultrasound scan where they found a 9cm csimple cyst and a small thickening of the endometrium - doctor did ca125 after this which came back 43
It's really scary isn't it. It kinda sadly alters my attitude to my hubby also because I feel like "what if I'm not here for much longer..." We have to try to be positive I guess. I'm scared of having an operation and being asleep but I really want it done too so conflicted!
We went to the fun fair this last couple of days and I went on the kiddie coaster and It was so painful whenever it jolted... I can't wait to get this huge problem out of me and get rid of the pain!!!
Thank you so much. Maybe they will play me a hornpipe or something I do hope it doesn't take the full hour!! I had a cat scan before and that was scary but not so long.
