Hi, i have a appeal for PPI i was refused next week. I have fibro and in pain all day every day, i work full time which i am finding very hard. I would like to go part time and this was the only way i thought i could afford to do this but was refused at the first stage, was just wondering if any body had been through this process and what to expect. many thanks x
Hi Lindsey, I was refused twice, I have fibro and have recently quit my waitressing job as it was to physicaly demanding,I am looking for somthing more suitable.I also have functional seizures, up to 3/4 a week, mostly Catamenial.It was down to the Nurse I had to go and see( Assos), she was flippent, talked about her husband and books ect, My Aunty came with me as I cant go out alone.She put down the opposite of what I was saying I found out.Clamping down alright,Agreed I had a disability but not enough points!!!!!!!!. She made a coment that I could engage in conversation!!!, Just because I can hold a conversation ( even though I muddle up words) shouldnt make a difference should it. Dont give up. .
Hi Hazel thanks for your reply, this is what happened to me, i read the papers they sent for the appeal and a copy of the assos assessment was attached, no points awarded as i could sit and plan a journey and i made i contact, they isnt much wrong with my brain, i want to get up and decorate, do my ironing, general things people do, but physcially cannot, i find it so hard, theres no medication that works, i sit and cry sometimes as im finding it so hard to carry on. Do you attend an appeal what is it like?
Hi Lindsey, I appealed but they still turned me down because of what the nurse said even when the Doctor had sent a letter of support for me, I had also sent hospital records ect. I would love for them to spend a day in our shoes. I am going to phone up again, I was told to ask for a reason statment or somthing like that.Dont give up.Its frustrating not being able to do the jobs your used to,I deligate, get my kids to help ,I can spend a day doing jobs to be in worse pain for days after and your back to square one with housework.Literally a pain ha ha.
I wish you could talk to my daughter. She is miserrable alot. Good days and bad days.....live for the good ones. I was DX as polyneropathy...her DX was Fibro. THe difference????????????