I had a Cystocele repair 6 weeks ago, and have been following the restrictions 100%. I saw my surgeon yesterday, and she said the prolapse was back...but only half as big as before surgery. She didn't want to discuss if it would get worse, or what she could do to fix it..if anything. She just said "baby yourself and don't lift over 5 pounds" and I'll see you again 3 weeks. I am so upset! Also my kidneys were enlarged because the urine was backing up, due to the prolapse. Now I'm afraid that will happen again.. And I was told if it remained swollen, called hydronephrosis, it would eventually lead to kidney failure. Have any of you had the prolapse return so soon after surgery! Or has any of you had it return at any time? What was done to fix it.? I am losing my mind with worry. Please someone respond.
Oh dear I've had a posterior repair..what problems did you have x
Hi oh dear bless you.,I had a posterior repair I'm a little worried x
Dorothy, I'm so sorry to hear what's happened. I can imagine your disappointment. I had a cystocele repair in November 2014 at the same time as a hysterectomy and my repair had failed by last summer (2015) so I've gone back to having a prolapse pessary. I had one for years before the repair, and because I've also got a posterior prolapse AND now the vaginal vault is coming down too, and I have a connective tissue disorder, I'm not a good candidate for further surgery, so I'm very pleased that they found a suitable prolapse pessary again for me. I'm perfectly happy with that and they tend to stop prolapses getting worse, so I'm hoping to have that for the rest of my life now. I hope you can find someone who will talk through your options now.
Hi what is a cystocele repair..
Hi there,
I had an anterior repair last feb and by the August the prolapse was back. I am 43 but do not want to put myself thru anymore surgery when there is no guarantee that it will be successful. I am careful when I am lifting and what exercise I do. I also use my neurotrac machine every night which helps maintain things the way they are. It is definitely better than going down the surgery route again.
Debi
It is a repair of a prolapsed bladder. I don't have the technical name, but the doctor lifts the bladder with sewing it and lifting it it, because it has dropped. And uses a mesh sling to hold it in place. Thanks for asking
Thank you for your reply. Unfortunately a Pessary is not an option for me. There is not enough tissue left to insert it.
Thanks for responding. I'm glad that you have a solution. I'm praying thatI have one as well. I just wonder how many women have unsuccessful surgeries? And how many bladders fall again so soon after surgery?
Debi, What is a neurotract machine? Could it help me?
I would think that 6 weeks is too early to make too many conclusions hence why your doctor wants to review you in a few weeks first. Some ladies take more than 6 months to feel more like normal!
Your body has been through a lot and will be feeling weak in all areas due to the op. Please stay positive and allow it to get stronger and please dont worry too much.
I think we do expect these ops to solve all our problems but unfortunately it doesn't always. Although it sounds like yours may have at least improved some things slightly and hopefully other issues may get better as it heals and strengthens x
Hi,
It is a machine for doing your pelvic floor exercises correctly. I had a TVT procedure done too to cure incontinence at the same time using the sling and mesh. This has been 100% successful it is just unfortunate the bladder has dropped down again but it is common for this to happen. So at least the whole operation wasn't unsuccessful. Look up the pelvitone machine on google or Amazon it is about £65 but worth getting going forward although you cannot use it until your surgeon says it is safe to do sdebi
Thank you Debi. I will look into it
Thanks Merlion, the doctor did say It was down to a stage 2. It was a stage 4 before the surgery. I pray it doesn't fall any farther. But once it lets loose? I am so scared because my kidneys could swell again. Thank you so much for your words of encouragement, and I'll try to stay more positive.
I didn't have a sling or mesh to repair my bulge into the vagina from the bladder, but just the bulge stitched together to tighten the vagina in that area.
Dorothy there is another procedure that they do on VERY elderly women where they actually close up the vagina to stop anything dropping down but I know this is a last resort.
I think roughly one third of prolapse surgeries fail within five years.
Hi Dorothy,
i do feel for you and do hope ther is an easy solution or things improve. It is our worst nightmare. I am 6 weeks too, see the consultant next week and I'm going to ask how likely is it that it stays successful if it is and it feels good. I think it is dreadful that you didn't get immediate help or reassurance or at least an explanation after going through all that.
I would like to ask you how does it actually feel now compared to before? I don't think it is too awful living with a prolapse if you feel okay, I had mine for 10 years and it was very manageable until more recently when it was awful ,nothing much stayed inside if you see what I mean, the pessaries couldn't stay up so just not livable and really there is no comparison now. But I've no idea what's really going on inside of course or whether it will stay. That is the main worry. My friend had a repair done last year and it lasted three months ..all not good enough. On the other hand I have a friend who is 76 who had it done in her 40s and is still dancing around ! It seems so hit and miss or individual. I wish you all the best.
Alybee, I hope that your's holds. On Jan 2nd, I noticed a pinging feeling inside the vagina for a few days, then I took a mirror and saw the same thing as before surgery only higher. I had the problem for 20 years, and it progressed to always being out, except in the morning after being in bed for the night. I now have trouble emptying. I'm retaining from 130 to 180 cc's. I followed all the rules, but it still happened. I wonder if anyone else had it so soon after surgery and what eventually was done about it. It's too soon for more surgery, I Would think, because I'm not healed. My husband does everything for me when he gets home from work. And since this happened I Stay in bed most of the time..I'm so scared it will continue to drop and I'll be back where I Started before surgery. I tried passaries but they never would stay in. This is a nightmare. I didn't ask the right questions before surgery...like how many of these operations have you done in the past? Thank you for your support, and if you pray...please do for me. I'm afraid the .hydronephrosis , swollen kidneys will come back, which could mean dialysis. Bless you for your concern. Dorothy
Chris, that is what she was suppose to do, because my husband had prostate cancer, and we agreed to it. But now I'm thinking that she didn't do it. She is a young woman, only 35 and maybe didn't have much experience. I hope other women contemplating this type of surgery will learn to ask many questions, especially how many of these surgeries has the doctor performed.