After H Pylori

Hi everyone,I have posted here before,I have been treated for h pylori,antibiotics and lansoprazole.Prior to treatment I had complete loss of appetite and loss of weight.Although by force feeding I am keeping my weight between 117 pounds and 118.I still have no appetite,most worrying is I am losing body fat,I am so skinny,weak,tired of fighting this,feel like giving up at times.I have a appt to see specialist but that is nearly two months away,I do not think I will make it that long.I was a size 14 now size 8-10.my skin is wrinkled,I am now just getting over vaginal thrush,but now have soreness around that area and itchy rear end.I just wonder if I might have a different infection caused by h pylori,or it has damaged my tummy so badly.I am small framed so it is very obvious of my fat loss,now wear big jumpers etc as people ask what is wrong with me all the time,has anyone ever experienced this? I would be so greatfull for any advice .Thank you.

Sorry to hear you are feeling that way, I am going through it myself from 75 now I weigh 60.. At the beginning I had problem eating, chest pain, body ache, under breast pain.. I have had two endoscopy done and a colonoscopy all is clear but the first endoscopy found h.p and d second one said it's gone but found mild gasteris.. Now I still get pain in my arm n some sort of numbness in my small finger and on and off tommy arch, every test is staying clear.. My Hope/Faith is in God that all this will clear off soon and my weight will start raising because I hate it when my friend ask what is going on, it stresses me out.. If anyone has suggestion pls help

Hi Tasha ,

I too had hpylori treatment last June . I did the antibiotic treatment as well . I was on a family holiday in Cuba . Can home unwell- loss of appetite and loss of weight . It's good that you are maintaining your weight now . 

How is your stress level ? If it is high it will upset your digestive system . Do you have any other symptoms? Tired? 

The best that's helping me is working with a Holistic Nutritional Mediciene doctor -  she helps with supplements and diet... If you want more information let me know .... Audrey

Hi Tasha, what type Holistic nutrition medicine are you taking, at the moment I am taking omeprazole 20mg and ranitidine 150mg at night... I stop it before but I was told to use it to help stop acid build up... I don't know anymore... I want to stop using them soo bad 

Hi Diane,

It was me Audrey suggesting to Tasha to try holistic Mediciene. Using supplements and herbs to heal inflammation of the stomach and intestines... Do you still get symptoms and pain ?? How is your appetite ?

Mine is slowly coming back .. I use slippery elm, activated charcoal , probiotics a whole lot of them !!! Bone broth ( excellent for protein and healing ) zinc, vitamin D...

No gluten, dairy or minimal sugars ..

It can take a long time to heal ... I gave up on acid reducers ... You need to slowly ween yourself off if you have been using along time ... 😃👍

Hi,

difficult to know exactly where to start...your in the forest

and don't know your way out...many on this forum are in

the same forest.

The suggestons posted I deem "worthy" and point you in a good direction.

You've had HP...we don't know how it was diagnosed and what prompted

the diagnossis....

You've probably have had tests....what?   and results?

Exactly what was your hpylori therapy...? meds, mg/s etc..you developed a yeast infection most likely antibiotic caused..what meds were used to treat your "thrush"?

I'll start at the bottom:  rear end...this itch could be from  several

insults..my first "guess" would be fungal...there are antifungal suppositoriesantifungl that are effective without needing dr prescriptions,

they contain small amount of the effecive antifungals,(a zole) usualy 1%.

In the US, and Mexico the local pharmacist can direct us to the 

best product, Give it a go..increase your intake of natural yogurt,

plain wtihout fruits/sugar but not other milk product for now...let us know.

If you can, start taking daily a small amount of bismuth before bedtime.

(125mg to 250mg) 

Water: force yourself to drink filtered water...its ph is about 7, if

you can obtain 8 would be better.

Nothing hot or cold should you put into your stomach

Nothing raw

Nothing difficult to diagest

Plan your small meals around what your body needs not what you want.

If your gut controls your good intellect..healing is either blocked or thwarted.

Your intestinal flora is probably ineffective for proper absorption of

needed nutrition...once you've followed the above for a week......can offer some 

detailed suggestions, and I'm confident others on this forum will chip in and

give you what helps their similar condition. 

An alternative medical practioner could be your best bet...be very selective.

Claudio 

Ooh sorry thanks, I will look into it... My appetite is coming on very slowly, I am getting tummy cramps on and off.. Sometimes It feels as if there is stuff stuck in my throat but not often... What type of pro-biotic do you use and what is Bone Broth???? I will check it out from the health shop... Or where is the place to buy them... I live in London... Thank you, pls update

Do you get arm pain and some type of numbness at any point in time during this???? 

I am seeing my Gp today, it's not like she is doing anything because all the test came back clear.. But I am been seen by Gastroentology... Not that they are doing much either 

Claudio 

I totally agree with your suggestions...

If the flora and inflammation are out if whack along with stress makes it difficult to absorb healthy nutrients.. Be very selective as what your eating ...

I would be truly interested in your further suggestions ??

Audrey

Diane 

Are you from London , Ontario.

Yes medical doctors are not much help with nutrition and how to heal inflammation except with acid reducers... 

I have seen both my family doctor an gastroenterologist ... And all is clear ... I have had many tests with no answers...

Eating healthy , taking holistic medicines ..

Yes call a health food store to find someone who can coach you back to healing .. Best thing I did smile

I also had a initial colonscopy which found h pylori,as yet cannot have a retest for three months so my doctor said,my heart goes out to you,I pray you will get better,one of the worst infections to get,although I know many after treatment get better,many do not,maybe at times h pylori causes other problems.Please let me know how you get on.

Hi Audrey,thank you for replying,I find it so strange that this bug which can be in us for a long time suddenly and instantly stops appetite.My only symptoms were loss of appetite,loss of weight,mostly body mass,and slight uncomfortable feeling upper mid abdomen,nausea at times.Yes I had severe tiredness,and still have,can very easily cry,which gets me down.I take probiotics,yoghurts,anything to get me back to normal,so far do not feel any better.I am worried that left to long one of my internal organs will fail.I can hardly function at all now,legs feel to weak to hold my body up.May I ask what diet and supplements you take.I hope you are doing well

To be honest was taking lansoprazole,was getting tummy ache,but I read somewhere that ppi stop acid in the stomach which in turn means the stomach is not functioning normally as it needs acid to break down food,I have stoppped taking it now to see if my tummy might go back to normal,but please do not do this unless you talk to your doctor.My only reason for doing this is desperation.I had taken them for three weeks after treatment,I am supposed to have another two months to go on them,depending on how I feel,that is if I feel worse will then take them again.Maybe your doctor might let you reduce the dosage,or change to another,there are quite a few out there you can try.Best wishes to you

Thank you so much for all the information,I will certainly try it all,was very kind of you,so many suffering either with h pylori or its after effects,but hese forums are truly a lifeline,and I thank everyone for replying to my post.I pray we all come out of our problems

Audrey, 

I totally agree with you they are not helping at all... I have just been to see my Gp no result, she still can't give me any answers but what I realise is that my weight has stay d same for a week now.. My Gp, she keep asking me for more blood test.. They are sucking out the little blood in my body, she can't tell me why d pain in my arm won't go away :-(.... I live in London UK not Canada. I will get on to fine d holistic medicine, I was also told that peppermint oil does help for inflammation????   

Hi Tash,

The 3 anti inflammatories that have worked for some are:

Sub lingual B12

Bromolain/Quercetain 

Nattokinase

START A DAILY DIARY

HP, inflammation, antibiotics and PPI's.

If, you've completed the tripple therapy for the first time

and meds were: Amoxicillin (mg?_____), Clarithomycin (mg?_____) and PPI (20mg x 2 or ?_____)

for a period of 7 to 10 days...plus a continuation of the ppi mg?______ for how long?_______

Any other conditons?

 disorders?  diagnosed or not?

Because Gastritis has many "probable and possible" causes, if you know what may have caused it would be helpful.

Audrey  came back from Cuba .. .......most likely "food toxin" but a few others as

well.

A tip:  good bacteria vs bad....this is a war in all living things....the biggest army wins.

Probiotics are "good bacteria"...how to get them thru the stomach without being destroyed by stomach acids? Regardless of the muber advertised like billions and billinons...the same question applies...how?

Long term use of any PPI is "not good" over 50% of patients lose magnesium, iron, and B 12

High powered Antibiotics kill both good and bad bacteria,

kill too many good guys...fungals have been sitting back

waiiting for some help, and bingo...now they are "in charge".

Now another med must be introduced into your system to fight

the yeasts...

Summary....supplement with Magnesium...sublingual B12 (several times daily)

....not iron...iron rich foods only...If you can get zinc gluconate...25mg daily with meal

Many with digestive troubles, plus antibiotics become deficient in Vit D....D plus K2

only (K2 is the copper that directs Calcium to the bone...and not elsewhere.)

Again about food....google GAP diet....while its a very very difficult process (not really a diet) but if one is devoted to gettng back to a normal person///may be good for some...not for all. 

 bone soup...this is good stuff provided the bone has NOT BEEN GROUND..very

important due to BMAA. We use a stainless pressure cooker to make bone soup...use the bones

over several times extracting minerals..

Balance balance and more balance...protein/carbs/oils.....turkey/chicken breast (preverablly ground)

cooked vegetables puree first week....oils olive or avocado...nothing fried...poach everything first week

or so.

Audrey also mentioned "slippery elm"...this is good stuff pre meal. 

Sip somthing like pomegranate juice during

the meal..no more than 2oz blended 5050 filtered water...so 4oz total...one meal only...preferably 2nd or 3rd...not forth.

No food 3 to 4 hours pre bedtime....slighly elevated head and shoulders

DGL....get the chewables....when your stomach feels a tad "uncomoftable".....take one. (it has anti HP properties but is used mostly for soothing...

For tea: chamomile is good stuff...better is "marshmallo" provided it is not imported from Inda nor China...

a good organic mix can be used a 2nd time for a more mild taste. No mixing....just water, steep...cool to room temp or 37/38C max. Maybe althernate between the two teas?

For those of you who have GERD....the "link" abstract would be extremely important to you and your GP, GI, or ENT

....take the time to read it...the ref dr J Kaufman is a New Yorker MD/ENT with all kinds of credentials..who has recently suggested a homeremedy while waiting for a better therapy.

Claudio

JPT in the hpylori forum thread is "on spot"...here is JPT..just passing thru's post to a member:

JPT • 7 months agoHi Tickled or should I say tortured?

You have been through the mill.

just sent you a private mail with my email address.

will send my notes as soon as you reply with yours.

The HH you have if it is not too big will be fixed with sutures during any surgery you choose.

I think your reference to mucus is the natural body responsew to the attack from all refluxate products.

Acid,Pepsin, Bile salts , food, etc.

The oesophagus can cope with some insult as it produces bicarbonate to deal with some relux.

PS. Everyone refluxes several times a day. We just do it more often and to a higher level.

Having low saliva production is a good reason for the insult to be much worse in your case.

The overview I have for you is that the solution is multi -faceted.

No one thing will fix it completely.

Its certainly worth trying all the beneficial add-ons before you jump to surgery

and even then its worth changing lots of lifestyle things at the same time.

1 Try to eat your last meal of the day at least 3 hours before retiring to bed.

2 Try eating smaller portions at regular intervals rather fewer larger meals.

3 Eat slowly.

4 Wear loose-fitting clothes. A tight belt will trigger reflux

5 Avoid foods and drinks that are known to trigger heartburn symptoms, these include:

onions, peppermint, chocolate, caffeinated drinks, citrus fruits and juices, tomatoes and

high-fat foods.

6 Keep a symptom diary and record when your symptoms appear and what specific

meals and activities this relates to.

7 Maintain a healthy weight. Keep your BMI in the normal range.

8 Stop smoking.

9 Learn how to breath using the diaphragm it tones the LES

10 Avoid alcohol.

11 Take regular gentle exercise such as walking. Avoid lifting weights.

12 Exercise can trigger Reflux symptoms if this is a problem wait at least two hours after

a meal before exercising.

13 Drink plenty of water.

14 Use PH 8.0+ alkaline water to denature Pepsin in the mouth, airways and oesophagus. Take a peptest to see what levels you are refluxing and retest to see how the levels have come down after these changes.

15 Raise the head of your bed so that your head and chest are higher than your feet.

16 Sleep on your left side, because of the shape of the stomach reflux happens less often in this position.

17 Increase the speed of transition through the stomach with something like Fybogel'

18 The pyloric sphincter at the stomach exit needs magnesium and acid to make it work. PPI stops the absorption of M and reduces acid and so is counter productive. Get off PPI and take Magnesium supplements.

19 Use deglycyrrhizinated licorice, or DGL. But be aware too much can cause ankle swelling and hypertention.

20 Use Probiotics to help positve gut flora aid digestion. Antibiotics kill all flora not just Hpylori.

Best Regards JPT

justpassingthrough

Claudio..

Do you do the GAPS diet ?? Beneficial ...

I just started making bone broth how often do you drink it daily ? With food ? Empty stomach ??

Did your gastritis heal ? This is what I am still trying to do ... I have a holistic nutrition coming to see me Saturday ... Hope she gives me clear instructions for diet!!

Thank you for all the information you and others have taken the time to write,I will be trying it all,am so desperate.Hopefully everyone here might benefit from every one,s input.I was on first week Metrondonzale/Clarythromicin.Lansoprazole,the first week,second week was one of the Amoxicillan plus clarythromicin/lansoprazole.on the second week.I have undagnosed Fibromylgia ,but my doctor now thinks I might have a autoimmune disorder.Spoke to another doctor yesterday and was told unless I fall ill /or signs of organ failure,I have to wait to see the specialist.Thank you again.

My wife is the one with Gastritis. Gaps...we do the modified..meaning we do pretty much "what" but not the lengthy process. Bones...big soup bones we purchase here in SF at asian markets because of freshness. There are good and not so good..and actually bad bones (rare)...soak in room temp water ..rinse often..when water becomes clear...takes hours...then we cook..2 ways...pressure cooker (stainless not aluminum) or in a slow non metal cooker for 2 plus hours.any fats or akkapucky on top of the liquid is removed.  We now have bone soup...can freeze in cubes to use when poaching fish and infrequent meats. We can use it as a soup, adding vegetables etc. We then sometimes take the bones and pressure cook...keep the liquid for soups as well but do not freeze in cubes. Gastritis....wife was diagnosed with Atrophic Gastritis..bad stuff..we managed to lower it to "mild gastritis"..(most recent endoscopy), Her Gastritis was sensed even with a light touch to the stomach area, and it was distended or tight light a drum head...not now...the sensation of some "inflammation" is mild and centered...suspect continuing small inflammation at the duodenum.

There is no GERD..bloating, pains, no big discomforts immediately after nor 2 to 3 hours post a meal. She is a "non compliant" patient...and when she reverts to "her kind of food" as she puts it...she has "flare ups" that can last a day or two but then it resolves with proper food....she tries DGL during these flareups and it helps...nothing else seems to help her...only proper food. She does mild exercise post meals with deep breathing (compliant).since we differ, what works for her may not work for others and vv. The basics yet make good sense...stomach is inflammed...don't insult it with anything...so small meals..easy digestive foods..especially in the beginning...and one can always "re boot". Wife was 124lbs...dropped to 96lbs...and is now at 104lbs....we had her at 114lbs but she had to have "her food" not once but twice...and since then its been a big struggle and slow improvements....if she can remain compliant, she will recover 100%...I would guess she is presently somewhere between 70 and 100% at this time.....and hope she can refrain from allowing her tummy to dictate what's best vs her intellect. She eats 4 small meals..and a snack. I will be increasing amount of

1 of her meals once she reaches 106 lbs would be her main meal which is her 2nd meal of the day. I still do not use garlic, onion, nor ginger...the only raw is papaya but at 106lbs will suggest fresh apple (small) amount.she does sip 50 50 pomegranate juice/filtered water during her 2nd meal....we did use digestive enzymes initially but have weened replacing with pomegranate juice...seems to work ..for her.

A good alternative medical practioner can be of excellent help...and I'm hoping the one you've chosen can get you to normal...this isn't a fast healing process...takes a lot of time..even when one feels great for one month...may not be enough...I haven't a firm understanding of When?

Claudio

Thanks Claudio for all the great advice ..

I was diagnosed with mild gastritis after last endoscopy .. Damages caused from hpylori infection ... I have been frustrated with trying to heal and given so much misguided information!! 

I think I need to try to keep it simple ... I have never tries the DGL licorice and going to give that a try ...  And go back to simple eating ... Steamed veggies , soups and definetly going to make bone broth ...I was taking way to many supplements making my stomach so painful !! Totally wipes me out .. No energy!

Your right it's a slow healing process ... 

Hope she stays on track to healing ... Many thanks !!