Allodynia in fibromyalgia.

Allodynia is where your skin can hurt to touch and where mild pressure from clothing can hurt too. I have noticed recently that my clothes are hurting me the slightest pressure from clothing. feels like Ive an elephant standing on my back this is especially when wearing a bra, thin nightdress or top. The pain has been unbearable it has had me rolling round the bed in sheer agony. Have any of you experienced the same. 

 

Hello Kaz, yes, I get it on my feet. Sometimes I can't bear to wear socks never mind covers in bed, the pain and pressure on my toes is just too much, makes it difficult sleeping, especially in the winter when it's cold rolleyes

How long have you had this?

Hi Boqer Ive had this for 3 years some days are really bad sometimes it eases. I cant bare to wear a bra it hurts so much, I dont wear one in the house. only wear 1 when I go out, even wearing a silk nighty can hurt my back. it feels like Ive got a to weight on my back. I tried explaining that to drs and a specialist they looked at me as if I was mad?. its my back it affects me the most and sometimes my legs if I wear leggings. take care hun gentle hugs

It sounds like a very unpleasant symptom for you, I do favour not wearing my bra at home but that is because I get pain round my ribs from it even though it's not tight.

Take care, very gentle hugs

Hi hun no its not a very pleasent symptom to have,but nothing fibro throws at us is nice.Even the slightest touch at times on my skin is painful my poor husband is too frightened to touch me incase he causes me pain. horrid horrid condition. Hope you have a good week not too much pain. hope you are managing to sleep ok. take care gentle hugs xx

Just the slightest touch on my back has been the worst for me, the pains so severe that even when someone comes to give a hug, I used to tell them not so tight please. Since I have been on my ayruvedic herbal remedies, these pains have reduced by 90%, after 20yrs of constant pains.  xx

Hi Bee the slightest touch hurts its mainly on my back even wearing a silk nighty hurts. it feels like a ton weight back on my back. I cant bare wearing a bra I just wear 1 when one out. Those ayruvedic herbal remedies sound amazing. its goo when you hear of something working for us. take care gentle hugs xxsmile

Thank you so much Kaz for putting a name to this symptom.  I raised this with my doctor and she shook her head and said she didn't really have an answer for what was causing it.  I have it in various places, I cant bear to have my arms touched at all - my poor partner is getting very sad that every time he wants to give me a hug when I feel rotten, he cant because it hurts my skin.  I have it on the sides of my knees too, It feels like the skin has been grazed badly or a carpet burn but there's nothing visible.  If I kneel down at a wrong angle it feels like I've knelt on glass yet when I put a finger to the skin it's got a dead feeling, like nerve damage or tooth anaesthetic.  It was really worrying me which I why I brought it up when seeing the doc but she seemed to have no clue as to its cause etc.  I'm going to research allodynia and poke it right up her left nostril!!

Just read a bit on it and was interested to see its connected to migraine, something luckily I've never suffered from but the word allodynia means 'other pain', ie pain experienced when there should be none, as from a light touch and that it can be experienced other than in the head area.  Very interesting and more ammo to wave at the doctors.  Thank you Kaz.  Hope you're feeling okay today hon. xx

Hi Kaz.

I get this in my feet, when in bed.

Have to have my feet sticking out of bed.

Hi Janet,

I was just saying the same thing, do you find that even the pressure of wearing socks is too much at times?

Hi Boqer.

Most of the time yes. I find that sometimes I can wear what are just the trainer socks, so only small, other times not even them.

Having to wear tubigrip on my ankle at the moment and am in agony, but would be worse with the pain from my ankle if I didn't wear it

It's the better of two evils.

It's ok in the summer, but don't know what I'll do in the winter.

No, I agree about the winter! I just end up getting really cold feet 😑 Do your feet ever burn on the soles? Mine do often and along with the pressure of socks it's just a bit much, they also really ache in the joints and are painful to walk on.

Oh no poor you. Welcome to my world, it is something I have been experiencing for awhile,😒 I think people feel it in differing degrees. My specialist explained it in terms of the signals to our brains are being scrambled so we feel pain when we shouldn't, as the pain receptors in our brains are not working as they should, or receiving faulty signals. My specialist wants to put me on a medication they give to migraine suffers so it must be some how related. Good luck and air kisses as I don't want to hurt you, Meg🌺

i get that to but not while wearing bras im not that way inclinded lol but my clothes and even my bed plus covers hurt me i even get pain when i sit or lay down and the slightest pressure causes me agonising pain

Thanks Kaz...Yes we do suffer from a few, the root cause-this rotten Fibro...grrr

The different kinds of allodynia:

Mechanical allodynia (also known as tactile allodynia)

Static mechanical allodynia – pain in response to light touch/pressure

Dynamic mechanical allodynia – pain in response to stroking lightly

Thermal (hot or cold) allodynia – pain from normally mild skin temperatures in the affected area

and Movement allodynia - pain triggered by normal movement of joints or muscles 

That's us...

Allodynia is a clinical feature of many painful conditions, such as neuropathies, complex regional pain syndrome, postherpetic neuralgia, fibromyalgia, and migraine. Allodynia may also be caused by some populations of stem cells used to treat nerve damage including spinal cord injury. ..:-( xxx

Thank you for that Christine, it seems I may have the temperature thingy, as when I'm in the shower the water temp feels really nice on my body but I get pain in my feet from the heat of the water and so have to have cool showers rolleyes

Interesting isn't it all Boger, I get the dynamic, static and temporal one too..be blessed, have a lovely day Borger:-) xx

Hi christine Nothing we have with fibro is nice this is 1 of them. I go through all of them at different times. the 1 I get all the time is clothing hurts me wearing a bra is painful wearing a silk nighty is painful. clothes hurt me constantly. its a case of grin bear it as ou cant go out with out any on. Having 2 males in the house I cant walk around with nothing on at home.dont you just love fibro the condition that keeps giving.take care gentle hugs

Not pleasent at all is it when our clothes or bed sheets are causeing us pain. when I tried explaining this once to a specialist and dr they looked at me like I had gone mad. I thought they were going to have me catred away. At least us fibro sufferers no its not in our head what we are feeling and going through