Hi Klaregee; Charlottes suggestions re writing down what helps/doesn't help is a very good start.........I do understand how you are feeling Klaregee, as it has happened to me (and others too), when we get to the stage of "where do I turn from nere?"......and you, of course, are naturally feeling very down, due to your age, and yes, I, too, have the feelings of What do I do? How do I continue like I am/in this body????? I had a Very (what I call) remindful episode the other day, as I have fought the need to start using a Walking Stick in Public, but got the fright of my life, when I lost my balance on an esculator (my son and grand-daughter had taken me out to do a couple of jobs), and were a few steps ahead of me on the esculator, and Why, I don't know, but have done this same thing a Million times before, tried to take another step up to get closer to them, and lost my balance and Nearly fell down the whole exculator.......just can only imagine where I would be today, if I had ( and it had to be "someone" who stopped me falling, as I Don't know how I didn't.......I guess my message is, keep trialling, and find as Many sites/helpful people with new ideas, to Get you there......when trialling new meds/treatments, I have found that we need to give them a Decent Period for them to Get into our system, and to see if they work?? I know that there have been times when I "think", "these arn't helping at all"......and yes the one that I Did stop was Cymbalta, as it made me Cry All the Time, so after giving it a couple of trials, have stopped.....but others, like the Amitriptylline, I started again, and found that they are My Saving Grace..........I do really think, that the fact that you have been trying to continue working (and yes, I understand that finances are always an issue/necessity), but it amazes me how anyone with this condition, Can Work?......I would love to have even a Part-time job, doing a few hours a week, spread over the week, but know that I am TOO unreliable.....I have even undertaken further "light courses (A Diploma and a Certificate1V), but these have proved useless, as I still could not Guarantee to be able to work, when the Employer wants me..............but you can be the full-time mother for your daughter, who Really does Need you, as she is at her Most vunerable age.
​Have you Ever been seen by a Rhuematologist (and a Good one at that).....this is where I get ALL of my help from, regarding treatments etc....even the referral for Pain Clinic etc?...........I am thinking of you, and will be waiting to hear more from you, as I know that this Forum will get you through............Bron