Oh do I just hate the world somedays. Insert swear word.
I have now officially been diagnosed with Fibro, a five year battle. I mean cummon. I have been managing this for so long I feel like I got it down most of the time. I know what not to do and where to ask for help, I gym five days a week and eat healthy. Wish I'd loose the weight faster but then doesn't every woman.
What I don't get, and I'm hoping some of you might have some answers for me here, is the injuries. I get the whole i feel alot of pain where others don't and I hurt all the time, but to a large degree it is mostly just background noise most of the time. What I don't get is how I keep slipping my disc in my back every two months or how my legs keep giving way under me for no reason and I end up tearing the ligaments in my ancle. Its the pain of these injuries that is so extreem and in all my reading on fibro and reading through all your blogs I don't see this as a symptom and i don't understand how the doc's don't seem to care about this, it seems almost irrelevant to them.
Yeah, unfortunately im familiar with knee buckling! Was advised to give up strenuous exercise by physio i attended after being misdiagnosed with patella tendon problems. The gym isn't a friend of fibro I'm afraid. I tend to do yoga and I swim and walk a lot, I also have a cross trainer in my house which I have found to be much btr than a treadmill when it comes to injury as u don't get the same pressure on ur joints
Not sure about the slipped discs, I have pelvis and hip problems tho so it is possible!
Hi CharkiS! I'm sorry to hear about all of your pain. U certainly r not going mad. You are suffering from chronic pain.You state that you have disc problems. It soulds aweful that your legs give out... u certainly don't want to fall. I have hip, lower back and leg pain daily. I don't know if I have disc problems as I have never had an MRI. I just adtribute the pain to muscular and nerve pain from the Fibro. On FB I has a lot of friends that also had disc problems like you. Have you found anything that helps your pain so that you can sleep soundly? Feel free to write back.
Hi you are neither crazy nor mad, welcome to the world of fibro where it can just about throw anything at you. As it affects your entire body. I am having problems with my discs I have tears in them they are very painful and not healing as they should.My legs have given way on me on occassions causing me to fall . Most drs arnt interested Ive found we are just expected to get on with it? theirs no underatanding of fibro in the medical world on more than one occassion I was told their was nothing wrong with me and it was all in my head.ggggrrrrr take care gentle hugs.
I was diagnosed over 20 years ago, know what you mean about legs giving way, though with me it's just the one leg. Normally all that happens is I sit down, but in Feb I was coming down some steps when it happened, broke my ankle and 5th metatarsal, which at 21 weeks still hasn't healed.
Thanks, I've put on 3 stone as I've been off work since Jan and unable to exercise at all tho SK feel a bit of a fraud haha. Think I'm mostly comfort eating as iv always been very active and I'm finding it frustrating not being able to even walk down stairs!! My fibro has always been a (literal) pain in the neck but never to this extend and its so lonely!! Thats why im gtn on forums etc. Been throwing myself a pity party and needed a reminder other ppl suffer too lol.
I'm keeping my fingers xd its just a long flare up and I can get back to normal soon, I really do find exercise helps but its impossible to get the energy up when ur in pain..I'm sure u know all about it
I sympathise with u on the medical front, I got told recently that 'half the doctors don't think it exists'. This was by a supposed professional who was giving me a medical assessment on behalf ofy work. Luckily they've been a bit more sympathetic. I got referred to a pain clinic at my local hospital and it has been amazing, the staff include physios, psychologists etc. and they all specialise in chronic pain. I live in Glasgow, Scotland, unsure where u are and what would be available but u should enquire. Don't be afraid to switch docs, I went thru 3 before I found someone I felt was taking me seriously.
It was sugested at a point I was hypermobile but they discredited that theory as only some of my smaller joints are hypermobile but none of the bigger ones.
You all seem to know that it is all good and well for them to tell a person the pain is in your head but on the days when you can't walk it is so bad and you have the MRI's that show actual injuries, how can they still treat you like it is in your head. They can be so contradictory. The same doctor tells me one minute I have a rediculously high pain threshhold and that he knows if I say I am in pain I am in pain tells me in the same sentance it is nothing to worry about and to keep on keeping on. For crying out loud I am 30 years old. I want to start a family and want to know if I can manage being pregnant and they can't give me an answer. I want to live life and am trying everything in my willpower which I bet you can all understand is hard some days, to get up and just live, instead of being cooped up in my little saftey net.
Welcome CharliS, we are one big family, with lots of experiences...you'll find answers here that you won't find anywhere ..(we are from all over the world) through people's experiences we gain much knowledge. Be encouraged your not alone....hooe you find an answer to your question..I've had no problems with my knee through Fibro...have had an op on one through Osteo Arthritis though..I've had diagnosed Fibro for 24 year and 10 years befire that like most if us on here...be blessed and have a lovely day..:-) xxPS. stress free is the key to living with Fibro...
i have had fibro for years however was recently diagnosed but all my passed issues was down to that according to my doctor and verious other health pros but my legs constantly give way and i have severe back pain constantly and it does not go away it just eases slightly and my doctor and rhuematologist are useless and dont seem to care and to be honest they dont seem to understand fibro they just fob me off with pain killers is that the same for you
Fob off with pain killers, well put. Yes Derek, they fob me off and push me asside. My physio and Bio dont though so that helps. The worst part is how it makes one feel to be pushed asside.
You are meant to trust and rely on your doctors. They have the education and the know how that we just cant do without. If we could heal ourselves we would instead we go to them and trust they have our best interests at heart. Its like we are too much work for them, as long as they get their pay cheque at the end of each month they will treat coughs and colds and you difficult cases stay away you make my job hard. They are all the same, no matter how many doctors you try or where in the world you are. If the answer isnt given to them on a silver platter its a prescription for pain pills and out the door in five minutes.
I will not take pain pills for this right now I refuse. I end up in hospital first. I am young, they are addictive and notoriusly bad for a persons kidneys and liver. I dont want to have further medical issues later in life because the doctors are lazy.
Hi CharliS; I agree re the pain "not being in your head", and You are not mad !....the thing that I Think I would look at first, is the "slipping discs"....that means that the ligaments/muscles that are mean't to be holding the discs in place are too lax.....has your physio given you "particular" exercises to strengthen these? They should be gentle exercises, as too strenous will cause them to dislocate/slip.............I feel that I would be making an appointment with an Orthopaedic Surgeon (one who specializes in backs) and take your latest MRI to the appointment.........Slipped Discs are Very Painful....and do cause other problems with your legs/walking etc....I am not saying that you are not, also, a Fibro sufferer, but as you say, you are only young, and if wanting to carry a babe during pregnancy, with slipped discs, this is going to be Very Hard, and the delivery will be difficult (? need a caesar)....so, perhaps try the Orthopod, and keep visiting a Rhuematologist to get treatment for other Pains?...If you research LND, as there has been a lot of discussion on this forum re same, this is a medication that IS NOT addictive (usually used to counter-act overdoses)...but some are finding it beneficial.....however, if all else from above proves negative, then you will need pain-relief to cope with looking after your future child/children.....I have been taking medication for nearly 20 years, and have NOT suffered any liver/kidney other organ damage (have regular bloods done to ensure same)......YOur anger is understandable, as we all have to go through this, as we all, too, have been very active individuals in the past, but as there are many conditions that others get, that also change/take their lives, it is something that we have to accept and learn to live/cope with.........am Not saying it is always easy, but we do manage,....I think the hardest part of something like this, is getting others to realize that THERE is something Wrong with us,: finding a way of saying "please believe me?"...as the song goes? will be waiting to hear back how you get on, and will help you on this journey...........Bron
Totally agree with you CharliS......just popping pills for the sake of it is not the answer, but to get a proper diagnosis. The Health System has all gone to pot....It's all about the cheque in their bank accounts, there is NO patient care anymore.
I have a great physio and Bio that has me set up with a great excersise program from light to strenuous depending on how recently i have injured myself. Been to the Orthopaedic Surgen and the Nuro Surgen, both are taking the conservative aproach. Problem is that some of the muscles are too lax and other to tight from always over compensating.
They have now given me the fibro diagnosis officially but I can't help feeling its just because they don't know what else to say and I won't just drop it.
totaly agree Bee with what youve said their is No patient care any more theirs certainly no compassion. I dont agree poping pills is the answear to everything drs seem to think it is though take care gentle hugs xx