Firstly thank you all for your support and for the words of wisdom you send to other sufferers. The occipital headaches I have had every day, worse in the morning, for the last two years vanished a week ago.
I started taking the pred at night, against my docs wishes as he said I would be hyper with it - never any sign of this for me, and over time they are gone. I have been taking my pred at night for 3 weeks now and the difference is amaging. I do have temper flares but no worse I think than before, frustration at not doing the things I want to do and could do before, and they pass quite quickly.
Many days I was unable to function without zomiltripan to bring the 'migraine' type headache undercontrol and usualy the pain would last 4 to 5 days and started to be back to back with one day relief inbetween. Over the past week I have had a 'normal' for want of a better word frontal headache due to stress.
I feel that the inside of my body has loosend up to and I am able to bend and cross my leg over my knee, that is a milestone for me. And though I am dizzy and liable to fall anyway the pred hasn't made it worse.
I see my specialist tomorrow and I hope the bloodwork is good. Just wanted to share my good fortune and the importance of keeping a diary of your conditions.
Love to you all
Christine
PMR GCA PPS and Pernicious Anemia. Makes me smile when I see it like than as it looks like a qualification :-)