Hi Tiffany, that is weird but I'm happy that you are getting the symptom free days. Let's hope they take over the other days soon. I'm still struggling with sleep and bring sent insane by the post nasal drip that never eases but apart from that I'm good.
Hey Tiffany,Amanda, Sheena
sorry to hear you are having these issues but know that you are not alone, I too am having nausea issues on and off. I have been off this medication for 44 weeks now and whilst I do have gaps where I feel ok, I still am susceptible to stomach and nausea problems maybe it the immune system that needs boosting. My sleep is a little better so that's a good thing. I've stopped going to naturopath as it is so expensive and my digestive system got so sensitive that everything seem to aggravate it, so just sticking to fruit/veg good food etc and hope that time will heal. I have ETD which I think was caused by this med so I am reluctant now to take anything, my trust in the medical profession has taken a battering and I just don't trust their judgment when it comes to medication.
I hope you find a solution to you problem Tiffany wishing you well.xxx
During withdrawal I have now developed burning tongue syndrome and a very itchy face especially around my mouth. Has anyone dealt with this before. I researched it and it seems it’s a side effect of anxiety.
Thanks.
Hi Sammy. I have now developed burning tongue syndrome which is a product of anxiety. Have you ever experienced this during your withdrawal? Currently at 5mg and that’s when all my withdrawals started. Presently waiting for a compounded creme of amitripyline to reduce even further. Don’t know what to take to lessen this burning sensation on my tongue and lips and itching on my face.
hi nancy, wow i also developed BMS the tip of my tongue during withdrawal. This happened in June when i was at 5 mg of amitriptyline. I did not make the connection as was told it was due to anxiety and believe me i was anxious. My tongue no longer burns but, the tip has lost some of its normal sensation. I went to the dental hospital who diagnosed this x
WOW Amanda....thank you SO much for getting back to me so quickly. I am also at 5 mgs....and that's when it started. I did some research and it is indeed related to anxiety.....and my anxiety is so heightened because of the withdrawal process. Thank you for the reassurance that it will, in time, go away. I see my dentist in 2 days for a routine cleaning and will ask them about it also. To know that you also had this and I am not going mad brings me much reassurance while I go though this. xo
Its OK Nancy, it is horrible and hard to deal with. I cried loads as joined a group of FB called BMS and many of the people on it have had a burning tongue for 5 plus years, so was really down. The dental hospital stated i may get flares when anxious and i have had one since it ended but, it only lasted a few days. For me it was anxiety and i am currently not suffering from anxiety xxx
Hi i haven't had the burning tongue but nausea but I have a hh and I'm sure ami has made it worse also morning anxiety I never had b 4 taking this terrible drug I 've dropped from 25mg to 15 and really struggling is their a light at the end of the tunnel
Hi All
I am now down to 1.5mg of amitriptyline and I am experiencing a lot of all over body pain, especially in my back, chest and abdomen.
I am also feeling very nauseous, the nausea seems to be linked to trapped has, if I burp it tends to help a lot.
I started taking amitriptyline 11 months ago for IBS symptoms (pain and nausea) but found it didn't do a great deal and due to tiredness and possible long term issues I decided to come off it.
I started coming down from 50mg in May this year, 4 months on I am down to 1.5mg.
When I was down to 10mg I tried to go every other day with zero. The day 2 days after I didn't take a 10mg tablet my head was horrid - couldn't think or function.
Has anyone else experienced the nausea that seems to be linked to trapped wind?
I can't believe the withdrawal symptoms I am getting, I feel so unwell.
Paul
Anita, I come here often to get help and support for going through this terrible withdrawal ordeal. There is strength in numbers and with each story I gain enough motivation to stick this out and carry on. I wish you well through this journey and that we all see glimpses of the light at the end. Hang in there and never give up! We can do this! One day at a time!
Hi Paul. I am right there with you. Nausea overload! I also have developed stomach pain and such increased head pressure that causes dizziness beyond what I can tolerate. Do you think coming down from 50mg to 1.5mg in 3-4 months was too fast and created the onslaught of symptoms? I was on 15mg for 30 years and am now trying to get off. I am down to between 7.5mg and 5 mg and its horrible. I have to take it extremely slow because I was on it for so long. I am getting the AMI compounded into a cream so I can come down 1mg at a time. I want this out of my system so badly yet when I rush it I get sicker. I feel so unwell also and wonder if I'll ever feel good again. But I derive so much encouragement from this group and that keeps me going on. That...and God will see us through.
I think I may have come down too fast from 50mg but not sure what to do - ride it out - cut to zero and ride it out - increase dose for a while?
Does your nausea seem related to having trapped wind?
Paul
I would definitely do this under doctors supervision and not by yourself. I would increase and stay there until you level out, but talk to your doctor. I wouldn't cut to zero yet. And yes, the nausea is from being bloated from trapped gas. Plus the nausea is from your gut going into spasms (muscle spasms) because it is used to a certain amount of AMI and it is not getting it anymore.
Thanks Nancy.
I will increase it tonight to approx 2.5 mg and try that for a while.
At the moment the nausea and pain is really taking its toll on me.
I don't trust the doctors anymore. I bet my doctor(s) would say you can't get withdrawal symptoms when on such a low dose.
When I was on 10mg and tried missing a tablet one night (big mistake) one doctor said it is fine to just stop taking it from 10mg
Before taking amitriptyline my doctor said I WILL get side effects but didn't mention anything about how hard it is to come off it.
Paul
Hi Nancy not worth talking 2 my doc he was gonna drop 25mg down to 10mg I said no too fast the Xmas b 4 last they stopped it altogether I was in bed all Xmas lost 2st so they put me back ok it 4 2 years I 've suffered gerd morning anxiety which I never had b 4 ami and constipation
Finally got off amitriptyline (for my migraines) fully about 2 months ago though I don't feel like the side effects of it fully went away until a month after I stopped. On propranolol now and I finally am happy with something. Did anyone experience any weight loss over the duration of taking amitriptyline or was it due to other factors?
Hi yes I had no appetite at all had to force myself to eat meal times became scary as I new how I was gonna feel
Hi Paul, i suffered awful pains, nausea, trapped wind, burping and many more symptoms. I felt like i developed IBS as a result of coming off of ami. Some of us get bad withdrawal symptoms. It will pass, i used to stay at the level i had reduced to until the nausea and other problems passed. It took me 11 months to get off of 10 mg x
Hi everyone, reading all your posts is bringing back the nightmare we have all been through and still, I am still on citalorapram and its hard to know whether I am getting side effects from that or still getting withdrawal from amit.
Paul, you have reduced these too quickly thats why your suffering so badly. My experience of doctors is they do not know about the terrible withdrawal affects, and too often I read and have experienced personally that coming off even low dosages of amit is really awful. There are others who do not suffer like this, but alot of us who do. I know its tough and it takes its toll, but hang in there and go with it. Stay on 1.5mg until you settle. Peppermint tea, or mints helped me a bit with nausea and my stomach and I have lactose free dairy which has helped plus i take magnesium supplements to help relax me.
It took me 7 months to come off 25mg, and wished I had weaned off slower for longer.