Hi, just wondering if anyone is on this age and if it is active ? it appears to be the biggest group for UK sufferers and really want to engage with other sufferers who may have been treated at the same hospital I am out and think this may be the best chance.
I am in several other facebook groups and have asked but only so far found one other patient and they were treated by a different NS.
I sent a join request to this page several weeks ago but it has not been accepted so just wondered if anybody knew how acticve it was ?