I saw vulva specialist last week. She still cannot confirm fully that I have full blown LS according to my biopsy results. I am getting patch testing done to check if I am allergic to certain medications such as dermovate, as I had no benefit from it. She has prescribed Elocon to try along with Oilatum cream and emulsifying cream to use as a wash. I also got bloods taken to check my thyroid levels. I am 52 and post menopausal! I have to try this regime for 4 weeks. Fingers crossed to stop this continual discomfort of feeling raw and being able to wear certain clothes comfortably!
hi Alison,i asked my GP to prescribe Aveeno shower wash but she wouldn`t but did prescribe Aqueous cream to use as and when needed as a moisturiser along with the Dermovate,i have an under active thyroid for which i take Levothyroxine,and have been told that this does go hand in hand with LS.Luckily the dermovate helps but the aqueous cream is very soothing and helps to keep the skin supple and therfore helps with skin tearing,i hope you get the right meds soon x
I looked up elocon - it's mometasone, just an alternate ultrapotent topical steroid to Dermovate. Hope that works for you. I was switched from Dermovate to Protopic six months ago and this is the secong time an adhesion along my perineum has released itself. My perineum was getting oddly narrower, resulting in a tightening of my vaginal introitus. The releasing process at first looks like it might be a tear, but there's new pink skin in the opening instead of a bloody open wound. I see the gynae in two months, so I'm looking foward to her response to this. I've also been applying jojoba oil from a tiny dropper bottle to which I add six drops of pure frankincense. So, who knows whether it's either or both. The fusing of my inner labia over my clitoris has certainly not reversed.
Yes I hope so, such an awful condition to have, constant trial and error with lotions and potions! Will keep you posted if these help.