Anyone else eish to share experience/s with "pseudo"-seizures?

Brain and nerves
1

Hi.

My name's Randy and live in Chicagoland area. I was diagnosed with "pseudo"-seizures primarily I believe because my doctor could find no hard evidence (scans, in-hospital eeg stays, no abnormal brain waves while totally off meds, etc...). So, he tells me he's 90 percent sure I don't have epilepsy and 10 percent I still could for some unknown reason. I then saw a clinical neuro-psychologist who specializes in diagnosing pseudo- seizures, and after about 6-7 months, I was told in her opinion, I have pseudo-seizures.

Mine started out of blue one night at age 35, (now 47). They happen, on average, about once every 3-4 months and seem to happen now after a stressful event (very upset about something), and lack of good sleep. I get about a 10 second aura before mine. My aura is a light lightheadedness that gets stronger and stronger than start hearing voices, until it happens then.

I'm also looking for a support group in Chicagoland area too to talk and share experiences.

Anyone else wish to share?

2

Hi I live in the UK and have had very similar problems with doctors being quite slow to diagnose pseudo seizures or NEAD as it's called here . I feel that because this is a relatively new form of seizures most doctors give you a title such as NEAD hoping that will suffice .

    My seizures are mostly caused by severe pain , also stress , however none of the doctors have tried to control these triggers , all they do are throw pills at me and consider it to be non-life threatening and therefore needs no medical invention .

   I hope you have more success in your country . Please let the forum know if you discover a different type of treatment . Best wishes from Janet .