Been suffering for over 8 months with symptoms of fibro and finally gor a rheumatology appointment in a months time. Yesterday I got up and completely keeled over, the pain in my hips and knees is unbearable. I'm finding it so hard to work as a nursery nurse, its hard holding the children, getting down to their level, even walking most days. I'm never free of pain and cry or sleep most days, not sure I can last another month. Anyone else have balance issues or am I going mad?
no hun your not going mad
iv had a couple of episodes of close contact with the pavement
the first one i broke ribs and a bone in my hand
the second one 13 yrs later i broke my nose and the same bone in my hand but the other one so have a matching pair ,
i think its the signals just not getting thru ,quicker enough to the brain i dont pick up the signals until its to late a simple piece of gravel or uneven slab can have me down .
i have had dizziness to but i used a homeopathic remedy for that which seems to have helped .
Hi Deborah, yes I often lose my balance but never so far, to the extent that I actually fall over. I have enough warning to grab the wall, or furniture if I'm at home. If I'm out I use a stick, and can't walk very far anyway. I think it's part of the condition but may also be caused by medication. xx
yeah i do that esp if iv been sitting a while my legs seem to go numb
i stand up and wobble like a weeble .
i use furniture to walk round and hold on to , to
i wouldnt mind if i had had a drink or two
Hi Deborah
Yes, I do tend to lose my balance especially when I walk. Have fallen a few times but nothing too drastically that I have had major injury.
I couldn't hold my children when they were 18months. Things have dropped out of my hands on many occasions due to the pains.
It's the weakness in the body that may cause all of this.
Take a day at a time x
Can't be meds, I've not been given any!!!!!
Thank you for all your helpful replies, I've just got back from doctor and have been signed off work till I've seen rhemetology. Six weeks in total !!!!!!!!
Hi Deborah
Yep not only do I lose balance but if I shut my eyes in the shower I fall over. Door frames are forever bumping into me - I am sure the doorway gets narrower the minute I approach!
Have you had any blood tests done as low vit D can cause constant pains. I know the pains were not as bad once my vit D levels were back to within a reasonable range. Please do not be disappointed if you do not get a diagnosis immediately - it is a process of elimination. I won't depress you with how long it took for me to get a diagnosis. The label of fibromyalgia hasn't made any difference to me really, I still suffer the same and am the same person I was the day before diagnosis and the day after.
Hi Deborah,
I am in a minority here but I was Diagnosed last Septembr but have had serious balance issue's ever since I damaged my neck in August 2013. I have had five falls out of which I have been injured three times once having to be taken to hospital by ambulance.
These balance issue's really do catch you out sometimes so I have just about learned to take my time while getting up or changing direction.
I have a lot of pain in my hands and feet at the moment to along with head, neck, shoulders and back so I am waiting until I am allowed more Cortisone injections to help with the control of the pain.
I have finally been referred to a Rhuematologist who I hope will shed some light on this gruelling issue that we have and also I am hoping to get on to the Pain Management Program at Walton Liverpool soon.
Sorry I don't have any other advice on balance other than take your time but that's the best answer I have.
All the Best xx
My doctor has given me every blood test imaginable and the only thing that I had a problem with was low vit D. I've been on long term supplement s for about four months now without much improvement.
It takes ages for the vit D levels to improve. I was on 20,000 iu every other day and still it took months and months to have any beneficial increase in my levels. I came off it for a couple of months and it nosedived again and I noticed an increase in pain. May be worth checking you do not have an ear infection as that too can throw us off balance. It is very difficult knowing what is down to fibro and what isn't. Best to check these things out as not everything is down to the dreaded fibro.
So sorry for you, I've suffered badly for over 40 yrs now but it started in my childhood. Can't get about now outside, have to use my Mobility Scooter and walking stick inside the house. A few yrs ago now, the pain was so bad in my back and legs that I blacked out and fell down in the middle of the road on 3 occasions, came round and could see cars heading straight for me, fortunately on each of these times someone came to me to help me get up. Once out with my husband in the park walking behind him, went down again and had to shout him when I came round to come back and help me, he didn't notice that I had fallen down. ( Miles Away ! )
Last year the pain got so bad after I had gone to bed that I went into shock with it and the whole of my body was shaking and would not stop. Got really scared and my husband phoned the GP she thought I was probably having a heart attack and sent for the Ambulance. They gave me some Oxygen and said I had to go to hospital to be checked out. I couldn't stand but they said I had to because they couldn't lift me due to one of them having a bad back. My husband who also has trouble with his heart, had to help me to my stairlift and put me in their wheelchair when I got to the bottom of the stairs, to take me to the Ambulance. On arrival they took me to a room and I was left for 4hrs before anyone came to check me out. They then gave me an E.C.G. checkout, said it looked OK ( Good Job ) if it hadn't have been, what could have happened in that time of waiting for them ? Because I was already under my Rhuematologist at the time they said that I would have to see him and they sent me home. I could not get an appointment staight away and I didn't see him for another 3mths. When I did I was in so much pain my Blood Presure soared to 205/185 I've already had 1 major and 3 Mini Strokes and with my B.P. being so high my GP said I could have had another one. I asked if they could give me something for the pain 3 times, they said I would have to ask my GP. They have found that I also have a ANA ( Antinuclear Antibody ) that is attacking my red blood cells and they are waiting to see if a rash develops. Each time I go that's all they are bothered about, not concerned about the pain that I'm in, so because I complained, I have now been taken of his list.
THE REASON I HAVE TOLD YOU ALL OF THIS IS BECAUSE ;- None of these people who treat us don't realise just how bad the pain is that we suffer and go through everyday. ( If we were an animal they would put us down ! ) Nothing is being done in this country to try and really get to the bottom of it all and sort it all out for us. Unfortunately I have known quite a few people who have died with Cancer but they said that none of them were allowed to go through the pain that I go through. I can't take pain killers because I can't keep them down and I'm sick. They can't find anything to help me at all. So I have to put up with the pain. I'm 70yrs old now and know I won't get any better but I feel sorry for you Deborah because you are still young and want to do your wonderfull job as a Nursery Nurse. I hope the Rhuematologist you see will be more understanding and be able to help you ! I'm sure so many of us on this forum will be wishing you lots of luck. Take Care !!
Thank you so much for you kind words of support, its reassuring to know I'm not alone in this. I get so tired of people telling me to pull myself together x Take care x
I have had vertigo/ inbalance for over 10 yrs now..24/7..can't even turn my head or bend over without feeling like I'm falling...however, I guess I've just learned to live with it..the Neuro said that some of the fluid in my left ear has probably crystallised causing the problem..he said it would go away as quickly as it came...mmm..11 yrs later...he never mentioned it being related to the Fibro but.... I think perhaps now all these years later that it might be related to Sjorens Syndrome I have also...I'm actually going to my local GP today and am going to ask him...it will probably be yet another mystery...best thing to do is..have it checked out if I was you-less stress.....I thought I had a brain tumour at first I was soooo worried -stress is the worst thing with Fibro too...mm...well once I was diagnosed it was like a celebration for me..was soo grateful that it was nothing sinister.....now I just get on with it..yes it's quite disabling BUT it will not win..there's always many worse off than me...and when I think about what it could have been...glad it was the half full glass and not the half empty one...trying to be positive in a negative situation can only be empowering fir us..have a lovely day Deborah . Be blessed :-) xxx
U r not going mad i have the same problem i have oesteoporosis and fibromyglia when im walking i sometimes lose my balance and fallen down i cant pick my grandson up since he was a baby he knows to sit on my lap to go down the stairs it breaks my heart but he thinks its fun for nanny and him to bump the stairs i had xrays and scans done seen rheumatologist im disgusted i had to get my results from a nurse and a message to say go hack to my doctor hope u have good luck whhen u go to see yours x
can you tell me/us what the homeopathic remedy for your dizziness is?y Thank you
Hiya tiswas, i have not seen your name on here for ages, hooe yoh didnt get really sick..i knew you were moving, hope you settled in ok...hope your doing well too.have a lovely day..be blessed..😚😚😚👍