anyone else in same boat as me?? pain spreading rapidly?

Has anyone elses found that their pain has moved into different areas within a year as mine seems to be spreading around my body like wildfiresad((?????It s like its getting worse everyday too scared what tommorrow will bring when i wake up!sad

Hi Melissa

Yes me too, in pain..all over.. all day ..every day..unfortunatlycry

Hi Melissa , If i had a crystal ball where my pain would be when I wake up in the morning I would be a millionairess by now !!!!!!!

Go to bed with one pain , wake up with it somewhere else  , sometimes its short lived other times its here for a while , no rhyme or reason why , havnt done anything different , I use gel to try and relieve some of the symptons, thats ok but there are parts where I just cant reach!!!!! , maybe one day the researchers will find a cure , until such time we all have to "grin and bear it" , easier said than done .

Having fibromyalgia certainly takes its toll on family life , just cant get up and go any more , hope your day improves x

 

Hi Melissa , like you my pains seem to travel around and multiply!  Just when I find a way to cope with it, something else starts! All the extremities hurt, head, hands and feet and everywhere in between, but 

Hi Melissa

Yes, unfortunately the pains travel from one area to another. I have found my herbal remedies through ayurveda has really helped me.  It is worth looking into it.  Read my experiences I posted a few weeks ago.

Take care  and sending gentle hugs from ME to YOU  wink xx

Yep same here sweetheart, not had a day ill free in 7yrs, I got to the point 4yrs ago that I don't want to be awake any more, never heard of fibro untill  4yrs ago and I wish I never had, prob the same as most on here I bet. xx 

Evening Melissa I feel that too today hasn't been a good day I've been in pain in every place today and feel compleaty dined and light headed . Sending you warm hugs x

Yes, since being diagnosed in 2013 my fibromyalgia has just gotten worse and worse!

Hi Melissa, I have the same issues too. I have pain from head to toe, but, it's never the same from hour to hour let alone day to day! I think most of us are in similar situations, take care. Gentle hugs.

Yes Melissa, but there is light at the end of your tunnel..I've had Fibro 30 odd years and I only suffer from flare ups now..bad at times, sometimes more of them one year to another..isn't it so  like this Fibro, does what it likes, but it's not at all as bad as it was yes ago..it did take me years to get the right medication then dosage..suppose we all can say that, but it works wonders...feeling for you Melissa, gentle hugs from across the seas..be blessed..and have  a lovely weekend..:-) xxx

I'm the very same...... No let up 

Yes Melissa, I am the same.  I haven't a day go by in 13 years that hasn't been crippling.  After my car accident, my injuries and head injuries have caused on top of it all this dam Fibro condition.  So may injuries spark off all sorts of pain issues everywhere.  It has affected my everything from memory, (which has improved in the last 4 to 5 years overall) to having Fibro fog.  Whole of spine, but my whole of neck and lower spine is the worst.  All the peripheral pain that goes with it, and the internal pains, reall weird sensations, pins and needles in arms and hands, shimmering, cold and hot pain, noring painful aching, migraines, Vocanic heat or extreme coldness, stabbing pain, seering pain, cramping pain, and painful stiffness ... any time of day and night, 24/7....  Then there comes the Flare ups...  Oh my oh my...  nausea..  body racked in all a myrid of pains and deep noring painful aching, sweating due to extreme boiling heat!  The more pain the heavier the sweating.. I can drench my bedding and clothes in just minutes flat...  No painkillers will be touch it ever!   Even my daily pains etc won't settle with painkillers, just my 24/7 head ache can be minimalised with Ibruphren.  The Tramadol, is enough to settle my upper neck spine into my head... But in a Flare 'Nothing helps'...   I rest on a boarderline level now, I have no remission except if I am lucky I will get 6 hours to 12 hours approx NO PAIN, NO Stiffness at all,  once about every 7 months 'IF I'M LUCKY'....  

Over the last 4 - 5 years my legs and hips have gotten really bad.  Now I have periods that I can't walk, or even lift my leg off the floor because of my hips...  PAIN and STIFFNESS..  just won't permit me.  Before 5 years ago I was still able to walk any where and everywhere.. but not now, dammit!   My legs were the only thing that I had free of pain up till then.  I could exerise my legs walking, on bike or even on a gym but not now.  They have gone just like my arms, permanently locked in with Fibro...24/7....

So your not on your own possums!   You just simply have to roll with the flow, keep yourself nourished with healthy fruit, vege etc keep up your bodies defensive means, and it's energy.  Find other things you 'can do' or interests that you can throw yourself into and to help get your mind off 'Pain'...  Try to focus past the pain whenever you can...  I understand perfectly well that in major Flare ups that is not possible.  

Again, your not on your own.  It's not a death sentence... and HOPEFULLY yes, the great minds of this world can find something of a cure, or remission product...  Bless them..And then we just pray we can afford it!!!

May I ask what part of the Globe you are?   I'm in New Zealand...

yes me too its really bad and painful

 

Hi Melissa, I too seem to be in pain in different parts of my body,y legs and ankles were the worst by far but now it's my shoulders and neck! I was diagnosed with fm only recently but have lived with it for about 15 years! I am worried tat soon I won't be able to do anything anymore! Thoughts n hugs for ya x

Hi Melissa yes unfortunately I to am the same, no 2 days are the really, I find some of my tablets help sometimes but they never take the pain away completely! Baths can help a little to sometimes. I am only now just realising how any of us suffer with this awful burden! It's not something that gets much attention in the media etc and I think it should! More people should be made aware of fm!

Hope you all have a lovely weekend

Thoughts n hugs

Jane

I am also of the same mind...'Why is there not more awareness or knowledge put out there'...  Unless it's a condition that to many folk can immitate to easily ????   Hence the relunctance for doctors sometimes to diagnose, till at least there is some form or type of secure and sound testing method??   Doing those excellent head scans on folk is one thing but the cost is HUGE!!  and no government Health Board can have a budget that big..  hmmm  However I do think 'a lot more can be said, and put forward in support of those sufferers'...   Good statement Jane to melissa..  bless ya both

Hi deb, I never even have it a thought that people would imitate/fake a condition like this but your right I think, there are people I'm sure that would!! It's a shame tho because we do suffer with others knowing very little about how and why! It would be good if there was some sort of test that could be done to prove that a person has this condition?? Probably a long way off from there yet though?

Hope you all have great day

Thoughts n hugs

Jane

I've had this since my Car accident where I got compression fractures in my thoracic spine, crunched up my whole of neck and lower spine, and head trauma issues.  Central nervous system they said had also been compromised.  BUT our system here in NZ craftally wangled out of 'any assistance' for head trauma bar paying for my glasses, which I had to get because on the day of my accident I lost a large junk of eyesight accommodation.  I never ever wore glasses as I never needed to.  I had perfect long and short distance vision.  I had really really good vision.  BUT bang!  immediately affected and I never recovered my eyesight loss.  The system paid for my glasses and that was it! poof... Even denied me assistance with my speech, fatigue, memory etc... even though it was 'their chosen Neuropsych' specialist that tested me over 4 days battery testing...  Shocking absolutely shocking!!   and to think we 'Pay' their salaries etc....   Any way it's taken over 10 years for my speech and memory to improve, but I still have processing delay and the fatigue doesn't help the head. 

The pain and 'Rigamortis' I call  it has only gotten worse.  The more I have strived to keep active over the years as my mobility got better, (as I wasn't able to walk without being helped for weeks and then I found I dragged leg and my arm was always locked bent at the waist.  I perservered myself and slowly got my arm better and could use it better, took a long time, about 5 years.  My leg improved but left with a very slow walk (Brain), and the leg still slows up most days especially if my body or lower back is 'Pained, fatigued and stiff'.. Doesn't help with my balance either.

However in better times after a recovery period I was able to push through my pain somewhat and walk really good distances.  Once I even had a small lightweighted pack on my back which I modified so it didn't put pressure on my neck muscles and my lower spine and I did a 4 day light walking trip, slept in my tent.  I was in a lot of pain and lived on painkillers which it's hard to know if they help or not..hahaha because of the pain your still in!!  Anyway, as the years have slipped by the worse I have become for pushing through pain to try and keep active.  I even had a home gym and big X Trainer which was great, but again could only do so much at any time and was limited, but it was good.  Didn't stop the Flare ups though.  And NOW, I have absolutely NO Recovery time at all.. I just go from really bad painful stiff days and nights, usual fatigue whether I get to sleep or not, and all the other incidentals to then  morph into MAJOR FLARES that  an take days to weeks to come down from and now everything just settles back to painful stiffness, bad balance, weakness, fatigue, and s l o w n e s s, which has become my upgraded state of normal now...  till the next flare.

It feels like or seems like, I only have to look sideways once to often and Boom Bang' I'm back all Flaring up again...  Driving me up the wall.  Honestly I don't know if I can survive putting up with the 'not being able to do for myself' for much longer.   I honestly wonder when if or when I'm going to crash and burn and 'Never recover' from a Flare as it's gotten so bad in the last four years.  Or wonder if I'm going to wind up in a dam wheel chair all stiffened up with the chronic pain and nausea.....!!!!  Sorry just a wee grizzle as I am so dam tired and sore....  

I just some days cant get myself together i cant honestly believe that i have this much pain and i often find myself thinking there must be something else wrong with me because i cant accept that i have to just put up with this condition as my doctor told me theres not much else she cand do for mesad sorry very frustrated