Anyone Experiencing Tingling/desensitized sensations?

Ears, nose and throat
1

I started getting tingling off and on all over mainly upper body/face-
it started after taking Three doses of Elderberry-

Now my touch sensations feel off-
when its not tingling my skin feels dry/hurts?

Now all of the pain I typically have after using my legs/this whole duration is dim and I’m not feeling pain but I know its there -again desenstized
getting concerned

Diagnosed with EPV /sick since 8/18
Never had this tingling and now its making me think I have something else like MS? Very frustrated…

2

Yes i get that too . I could be wrong but i think its from EBV .

3

yes ive had that on the side of my head i think its all due to the virus as it effects your nerve endings . try not to worry and i dont think its the elderberry i take that every day and its good immune booster.

4

Hi Starr,

I remember some kind of strange feelings / sensations like this at certain times during going through mono too - I want to reassure you it can be normal to have strange things like tingling, pins and needles, strange or different sensations on the skin area, just feeling different or 'stunted' in those areas.

I think this virus really knocks your nervous system for six and can put it out of sync for a while and it can cause these horrible sensations. In most instances Starr this is likely to be just a symptom of the mono virus and not anything else more sinister, but of course I do understand your worries and concerns and maybe checking in with the doc and discussing these concerns would be a good thing and hopefully put your mind at rest.

My experience was that these kind of sensations of the nervous system settled down with time as my body started to recover physically and find balance again - so hang in there Starr, there is hope and just remember you ARE going to get through this and make a full recovery, God is the great healer and Jesus is the great physician - He has got you firmly held...

Craig

5

Hi Star

Yeah I to have had this feeling, mostly in my left hand and foot. Im currently at 16/17 months and only tend to get the tingles if Im stressed out and do too much. One of my GPs too thought it was MS, but all the tests came back neg. So Ive personally just put it down to the EBV. Try not to stress about it, but do let your GP know about it next time you go see them.

Stay strong

6

yea....ok thank u; its one of the worst symptoms, in the top 5 as there are so many bizarre/painful things ive experienced with this virus

7

ok, thank u mine is mainly upper body/started in arms and in spots in lower body-the desensitized feeling is really all over head to toe ive been getting burning too which i had in the beginning its been causing great anxiety making me feel so strange and more sick.....nausea is creeping in which i havnt had since the very first few wks- eye headaches/strange headache is back to feeling as if im sliding further backwards just trying to rest more.....

hope youre doing good/hangin' in there

8

thank u Craig i appreciate your insight its been a brutal week since this started ive never really had this symptom so it has created great anxiety for me which doesnt help

this desensitized feeling is so strange/tingling mainly upper body face/a little on lower and feeling my pain dulled is very strange as ive been in pain so long it just seems off pretty mych from head to toe this feeling....of desntitization i feel sick too, really just different from before things keep changing weekly it seems eye/headache is back nausea too/ which was an early symptom- burning muscles which i had in the way beginning is this thing started all over again-:-( i feel like im going backwards lately.... im losing my appetite again too trying to eat well though keeping up on good nutrition

its emotionally draining to live day to day wondering how or what you'll feel-

thank u for your encouragement i need it this forum is the only thing that really calms me down knowing folks are or have experienced the same things as I, because this virus mimics a lot of diseases that are scary!

i did go to a nuerologist he tested me nothing too concerning but suggests brain scan to make sure if im really concerned~ he wants to play it safe i dont really feel up for more imaging-

he also says B12 depletion can cause these issues too i got bloodwork going too ugh back to the hunt^* more dr's more tests with this symptom i have hit the panic button so many times- i feel like im in an Epstein-Barr prisoner of war camp and im being tortured daily and have PTSD from these last 6 mos...... tough

anywho-...... i hope you are well and are having a good/healthy week! i thank u again ,I am faithful but wish GOD could speed up nature.....I pray all day everyday....... this has been a such a test for me in all ways.....

9

wow 16/17 mos huh?

thank u for your insight- ive never had it but the six month mark has brought on a great deal of new symptoms/old symptoms and some in between

my whole body feels desenitized then tingling but it could be b12 lacking* i went to dr to check blood nuerologist says i can get brain scan if i want too just to play safe- this has been happeing for about 1 week and i feel sicker too with other things....old/new symptoms

this game is getting old....im so ready to be whole again~

best of luck and healing to you!

10

hmm.. I kind of got tingly feet and legs and they would sort of lose sensation if i kept them still for a while but as soon as i moved them it would go away. i never experienced any pain though. I'm afraid this virus just causes many strange unexplainable symptoms and sometimes all we can do is wait it out. if you have pain maybe it is worth visiting a doctor if it worries you. it is always our tendency to think the worst and sometimes reassurance can help settle your mind. all of us with this virus have had these scares, you are not alone!

11

14months in... my arms and hands itch like pins & needles the last 2 months. I HOPE this is a sign that this virus is ending?? This virus is weird and strong. When you get better from one pain it seems to go elsewhere. Never wants to give in...we just have to show it we are stronger!

12

so true last 6weeks my symptoms change weekly! old/new i cant keep track

now my muscles feel weak, which is nothing new/but really intense i cant feel my pain in low back/muscles/legs all that well like its desensitized not numb i can feel anything from outside but im in pain 6months all the sudden its numbed/no pain ? seems strange two days ago tingling pain now pain dimmed/less tingle- i know its there dull ache slight throb burn

im worn out thinking about this very tired on top of tired

im ready to heal up good luck and healthy healing to you!

13

yea it varies..... thank u for your insight

ive been in pain 6months i cant keep up

this virus is straight from the depths of hell

im so tired of it ready to heal!!!!! working hard daily to heal eating healthy juicing im working towards recovery just feels like it isnt moving..... much? strange

14

Hoping and praying for much better times ahead for everyone on here, everyone has suffered with this awful virus and I just hope and pray so much for healing from God and new hope and health and peace in everyone's lives.

Thinking about you Starr, Sweebee, Cjay, Dominika, everyone. Keep believing in your recovery, the enemy wants us to stay discouraged but he won't succeed with that. God tells us all things are possible to those who believe. I know it's easier said than done when in the midst of terrible trials, but I am believing that God is going to pull each of you through, remember others are believing for you, something to hold onto in the moments you are finding it hard to stay strong and optimistic yourself...

Craig

15

Hi Starr, I don't know if I can be much of a help since I still don't have a diagnosis and I still don't know what my body is fighting, but I have All these symptoms and many more. Reading posts here has helped me much more than doctors have the past 12 months... I have seen so many doctors and spent so much time and money and no one ever suggested to be tested for ebv or any kind of herpes virus like shingles etc... The thing is I was healthy and happy before this and overnight I woke up thinking I was dying or poisoned! You can read my post, before x-mas, titled "been suffering since March, is it too late for a diagnosis" to see how it all started for me 12 months ago and I haven't stopped researching this .... Hopefully, next week I will be tested for ebv and I will have some answers. I just wanted to share that the only thing that was found while I was tested was a very low b12 count, which all doctors agreed was not normal for my age , I'm 45, and that it had to be treated. Since September I am on a b12 injection treatment that has almost given me my life back, I almost feel like myself again. My treatment ends next month so I am just praying that my body absorbs it. Unfortunately I am still left with a very strange internal vibrating, pulsing, earthquake feeling inside me, especially at night but its not as intense and strong as it used to be, like its fading away or losing its batteries!!! I also get a shooting pain every now and then, here and there, or a muscle twitch, but way less than before, like a sensation or two a week! Generally, the "feeling sick" sensation and physical anxiety is almost gone.... I kind of feel like I am reborn and am starting to remember how it feels to be normal again... So, some kind of bug was/is depleting my b12 so now I just have to find out its name.
Hope this helps since I read that you are being tested for b12! U are not alone!

16

Hi Starr,

It's distressing and upsetting when you get new symptoms which cause you to worry and just feel very unwell and unsettled, I just hope so much that things stabilise and that this weekend and upcoming week can be better than this week. This virus can often have different phases where maybe one week or month certain symptoms or things may be bothering you and that phase can burn out and pass and it might be something else another time, so frustrating I know.

Just want to reassure you that in no way are you back to the start of this thing again - there were times I felt like that when it felt like I had gone back the way and almost like back to the starting point - but believe me Starr your body is already six months down the road to getting this thing under control, even if at times it feels like it's going backwards, and it will get it fully under control with some more time. Every day is another day away from the day of infection and towards recovery, even though sometimes I know it doesn't feel that way, but that is the truth!

The strange zig-zag nature of this thing means that there are times it can feel like you are going back the way after a period of stability or progress - don't panic Starr because that is very normal during recovery from this thing, and it will settle and move in the right direction again. Sometimes a big step forward can happen in a short space of time after months of feeling like no or little progress is being made - often it goes this way with this so don't panic, progress and recovery will come!

Craig

17

I think that tingling, tremors, strange crawling feelings on the skin can all be VERY common during mono Starr, I absolutely want to reassure you. If you find the low grade fever is a symptom which bothers you a lot, then these things can be particularly present, but this low grade fever does cease with time and so do all the associated tingling and strange feelings / sensations on the skin.

It's so hard not to worry about other conditions - I went through the same horrible cycle of googling things and picking up on scare stories which frightened me and made me feel worse....it's an awful experience Starr and I do empathise. But remember that 90%+ of the western world get this EBV virus at some stage in their lives, many as babies or children when they don't get the full effects of the illness like adults do, and the vast vast majority of these people fully recovery and get well again, even if it is after a period of several months, and don't go on to have any other complications or health issues - please be reassured Starr. I know it's so hard not to worry, but none of the symptoms you have described sound out with the realms of mono to me, in fact much of it sounds like classic mono so just hoping very much that your mind can be put at ease - definitely discuss any fears / concerns with the doctor Starr, it's always wise to do that and just hoping that you can feel a bit more settled within yourself over the coming period.

Thinking about you still and believing fully you ARE going to get back to FULL health again with a little more time.

Craig

18

I am actually currently in therapy with a diagnosis of PTSD from my bout with mono. Took 6 months to get diagnosed and I lost my mind thinking I had a deadly illness.

19

thank u Craig i do value all of your pure of heart words you have a true gift!

i hope you are holding up too......

20

you said it! its mind boggling Craig this zig zag up down you have no way of knowing what its next move is i cannot keep up it plays with your mind this process you truly know exactly the way this virus operates! i mean i thought i was on track then whack backslide that vaccine started it i swear ill never let that go-:-)

i feel as if im on a roller coaster in a funny house at an amusement park the twists the turns things jumping out at you this virus is so abusive and a horrible room mate that i feel i have put up with far too long~

i hope you find yourself well.... praying for you and your health/healing

a tip: have you tried fresh pressed ginger juice? it burns going down but if you add apple/beet its good- ginger root is easy to come by, i find it dulls pain/it cleanses your adrenal system too....many benefits-it may help your back?...... i have a Breville juicer it works great not too expensive~$120+.00 range......

although lately this "virus" for some reason im having dimmed desenitized pain/sensations tingle?

id rather feel things honestly i like to know whats happening with this virus .....