Does that help chronic urticaria?
Wendy
It helps me...when I have stopped the treatments I am itchy the minute I start moving around in the morning. I see a group of doctors including the main doctor who handles my case every four months. They have asked me all sorts of questions, do I eat a lot of maraschino cherries, or blue cheese. They take photos of my fingernails. One doctor manages how I am reacting to meds, side effects etc. Anyway at one these meetings a doctor suggested UVB light therapy as a shot in the dark and it definitely does help. In regards to bone loss from prednisone I take 10mg. ALENDRONATE daily. It is a bone metabolism regulator.
I have been told not to eat foods that are high in histamines.....aged cheese, yogurt, sauerkraut, processed meats, anything pickled are a few. Google high histamine foods. I don't know how much or if it is helping at all, but I try anything at this point
I am not in the UK but i have been on xolair for 1 year now. When i started the injections i wasnt experiencing an outbreak. But, for the past 6 months and 30 additional pounds from the prednisone, this has been my worst outbreak yet. And, i have been dealing with CIU for almost 13 years.
Ive been suffering from this for almost 3 yrs also but with no diagnose yet very hard to live with specially when you have to work. Some days i feel like im going to have a nervous breakdown. Like you anything i take works for a few days that's it my itching is always worse at night. Seems like the more i work on it it's getting worse. Im going to see a immunologist hopeing for a diagnosis.
I am happy i found this forum I felt I was the only one but i see now many suffer with this and it's a shame that it has to be this way. This is almost unbearable at time. Having hope that you found an answer and finding out it doesnt work i've been dissapointed many times. I don't put my hopes up anymoe it's been 3 years no and still no answer.
Now that you are hive free can you eat anything you want ?
Seven weeks ago I had my last Xolair injection of a 6 month course ... and without jinxing it, so far the hives haven't returned! They cleared up after the first injection and I've had a blissful 7 months but with the daily fear of their return!! Each time I feel an itch I panic ...
I can't take anti histamine (allergic to this) so I'm really hoping they don't return as I had them every day for two years. I apparently have chronic spontaneous Urticaria with no known cause ...
Hello Irishcree
looks like it's been 6 months from posting. How are you doing with the hives..hopefully they are gone. Are you still doing the UVB light therapy also are you still in the Prednisone?
hope all is well. Please keep us posted.
wendy
Hello Hanneke
so happy to hear that the Xolair has worked for you even from the beginning! That is great! Please keep all of us posted.
Have a great day!
Wendy
Im hoping for something like that would be so great can you eat anything you want though or do you still have to watch
Hi Rose
please talk to your immunologist about the Cyclsporine and Prednisone VERY SLOW taper...It has taken me a year to go down on meds the way my awesome doctor instructed me. Praise the Lord I am still hive free. I am able to eat normally. But always good to eat fresh foods vegetables..meats. Cut back on coffee and chocolate 😟 I have one cup a day. Drink lots of water and I take L-glutamine each day with a probiotic. Urticaria is a horrible disease...such a blessing I found my doctor. I wish you well...hope this works for you......Xolair works for some as well......but not me.
hope this helps!
wendy
Wendy
Thank you for your reply. Depending on what she says i will mention that to her hopeffully i can get some relief. So there is tests tio show that it is actually urticaria ?
I tries xolair didnt help much
Hi Rose
i don't think there are any tests to determine Urticaria. There is a biopsy to determine if hive is vasculitis urticaria. Usually a doctor can tell by examining hives....symptoms. If more than six weeks suffering with hives they call it Chronic Urticaria.
It startes 3 yrs ago for me with rashes only no hives. The hoves only started a couple mnths ago but is getting worse. Thanks for the info
Hi Amey
How are you? Were you able to see Dr. Sabroe months ago? Was she able to help you? If so what did she recommend. Just checking in to see how you are.i hope you are well.
Wendy