Over the past two weeks I've been experiencing terrible arm deadness it feels like I've slept on them even thou I have not. Really freaking me out now anyone got any ideas, I have recently been diagnosed with possible fibromyalgia could this be another symptom. I have also recently started taking amertripolyn tablets could this be a side effect? Any help or advice would be great.
Lee
My arms and legs get quite heavy. However I have been on amitriptyline 100 mgs for over 4 years after being on 50 mgs for 6 years. No side effects. I couldn't manage without this medication
Hi Lee
I experience this too, I find it most prevalent when I would read a magazine, or a paper or when I would reach up using my hands and arms. This was one off the first symptoms that made me feel that "there is something wrong here". I also feel instantly exhausted like I'm going to die. I don't think that it a side affect off your Amitriptaleen,because I had it before I started taking this drug.
It is a symptom off the fibromaligy, as it causes such weakness in you arms and other parts off your body
Hope this helps, at least now you have got your diagnoses off FIBRO so read up on everything you can as I always say Forearmed is Forewarned x
dont freak its perfectly normal for fibro
save the freaking out for when it happens to your legs
you just got to go with it nothing much you can do about it
i dont take any meds just supplements and acupunture and the numb dead arms and legs happen to me
I am having the same problem, I also have pins and needles, problems with my wrists and elbows and drop things all the time. It is replicated in my legs - knees and ankles and feet, I have gone down quite a few times this week, very gracefully but down I go. I don't take amitripaleen so I don't think it is a side effect. Just Fibro!!
Hi Mr G
Yes, unfortunately, this does happen with Fibro.....I have a lot of weakness in both my hands and when they get tired the arms to feel ever so heavy. As I have had this over 20 years, I have got used to my pains. I am not on any meds but trying Ayruvedic herbal meds and it's too early to say anything as only been taking for a few months, but have noticed the pains in my neck, shoulders and back have reduced but the pains in both my hands have increased.
Hope you find the answers you are looking for on this forum.
Take care and try to stay calm and positive.
I experience a cold senstaion at the top of my arms. It's awful. Hope you will get answers soon as I'm sick of all of it. I really am. I cannot understand that this doesn't show up in blood tests and its worse than many illnesses . Sorry, just having a bad day x
Sorry i swore. Just so fed up with this but basically saying how there can't be a blood test to test this awful thing
Hi Mr.G. Some FibroM patients have peripheral neuropathy. I was having quite a lot sime time ago. Then 2 things, I believe, helped: started suplementing 1500mg of magnesium/day and started LDN therapy. I believe both had a positive influence.
Besisdes this it seems that ALA- Alpha Lipoic acid is good for peripheral neurpathy as well. I know nothing about "amertripolyn" - sorry!
All the best.
i wish i could get my gp to prescribe ldn
Hi Mr G; I too, get numbness/tingling, (the dead/heavy feeling), but in lower legs and feet after lying down after 1/2 hour....I have discussed this with my doc, and know that it's not a circulation problem, and no, I don't think it's related to the Amitrytilline, as I've been on this medication for about 5 years, but this feeling has only started in about the last 6 months or so.....I wear Tubi-grip (it is dsigned to increase circulation....they put it on under plasters etc), and can be bought from the chemist/physio....it really helps me.....I feel it's just ANOTHER symptom of the b.... Fibro? hope this aleviates your worries, but if not, do speak to your doctor to ensure it's not a circulation problem?.....Bron
also adding that I also take Magnesium, too, as it is supposed to assist in Muscle weakness.....Bron
It was the first symptom that I had back in the 80s. In my case nothing to do with medication as I wasn't on anything. Mine comes and goes in intensity - sometimes can't lift arms at all and certainly couldn't drive other times it is just there and very annoying. Did some physio but that didn't help. Bio Freeze helped distract from the feeling but it is just one of those things amongst others that dear old Fibro throws at us. At least here on the forum we are not alone and we can usually find support from fellow members to help.
Yes Maggers.....it's places like this forum that does give us the answers we need, and the support.....I also feel lucky that I have my computer....imagine how many others don't even have this form of communication to ask these questions? When I read re some who are sooooo desperate, that they are thinking of suicide (and not just Fibro patients, but patients with other conditions too).....how they struggle...it's really helpful that we can support/answer each othe....I'm very grateful for all the help that I have received....even amazes me how I found this site in the first place.....Bron
My neck and shoulders are very painful, but they are constantly cold too, my bones are cold if that makes sense? I have had so many blood tests recently I feel like a painful pincushion - waiting for last lot of results, but nothing yet! Thankfully a sympathetic GP!
I know exactly what you mean regarding coldness. I think part of Fibro is intolerance to cold. I've now developed ' flashing light' syndrome without the headache. My GP said this was migraine and Fibro sufferers can get migraine. Glad to hear you have a good GP. Wishing you well with your test results x
Thanks Julie I have flashing lights too without a headache quite often, and 'floaters' in my sight vision too!
I hope you have a reasonable day today, I am not doing too much today as I keep forgetting what I start to do!
Gentle hugs to you.
Those flashing lights are v scary. I cannot focus on anything when it happens and have to lie down until it passes. God knows what I'm going to do when I go back to work. Not doing too much myself today either x
I teach so a combination of symptoms means I am signed off for another month, but realistically I don't know what will happen, I drive 30 miles + to work, and apart from the pain, the fatigue and brain fog make it unsafe! Standing in front of class and forgetting what you want to say is not good either! Oh well, hopefully I will have answers before that! Take care, hope you have a reasonable day x