Morning hippies. Well my dr visit yesterday wasn't as fruitful as I hoped. The MRI of hip didn't shed any light on my nerve problem. On a good note it did show hip hardware is good. So this time my husband went with me and dr was impressed that he had done so much research on the spinal stimulator. I'm opting to give this a try as it will help a lot of my issues including the nerve pain in my thigh. Only thing is I have to get a psychiatric evaluation first! Dr says insurance requires it!! I also asked to get a MRI again of my thigh just to see if any thing going on as I still am getting swelling. He had requested a Doppler scan of thigh to check for clot but all was good there. I had wanted a MRI of thigh initially when I told him of the swelling and he assumed maybe a clot. I also received an injection, well 4 injections into the IT band as I've been having pain there as well. Talk about painful! 😖😖. Those "jabs", as my friend Alex calls them, hurt like hell!! Will see. I will let y'all know the outcome of this next MRI, my evaluation and spinal stimulator. Thank you for your support. Linda.
Dear Linda
Well the visit seems to have been a partial success but a shame the problem as being elusive. Great that the hardware is in good shape. All the best....keep pushing!
Cheers, Richard
I sure think that if we complain of pain that they cannot SEE with there eyes they think we are nuts LOL and is it guaranteed that MRI want miss anything, I'm not convinced, I watched star trek and he just waved a thingy over his broken bone and it healed, so when will they be available on the NHS cause the sooner the better
I hope a bit of straight talking from psychiatrists will cure your pain.
Pretty insulting that they consider our pain to be in our heads not our legs.
Hope the stimulator helps my friend
Linda, Really sorry for your pain and the "non answers" that you got from the doctor. I encourage you to investigate that potential of your problem being in your spine rather than the hip. I've had both hips replaced at different times and on the second one, I've developed pain in the hip, thigh, and foot. I've had two operations on the L4/L5/S1 area and last week had an Injection in the S1 area with 2 purposes; one purpose was to relieve pain via steroids, and the second was to explode a cyst that appeared to be pressing on sciatic nerve. That gave some relief; but I have a second cyst that was noted prior to the first injection and we are going to try again to get me pain free, so I go in on the 28th for another try. Incidentally, these procedure are done under a local, so no strain or pain. ---As to the stimulator, I had one installed for bladder control, and after about a year, had it removed, as I could not tell it was doing any good and I was having hip problems and the device being install prevented me from having MRIs. Some of the bands of stimulators will allow for an MRIs so be sure to consider that. Good luck on your pain and your decision. Bill
Good luck in your continuing quest to find the causes and treatments for your problems. Glad the hip hardware is as it should be! Do keep us updated.
Thank you William. That is y I'm doing this on a week trial base before it's implanted. But if it releases me from the nerve issues in my thigh I will be a happy camper!! I'm hoping the MRI for the thigh will reveal something about my issue. Hope you are doing well in your recovery. Hugs Linda
Hi my friend! Yea even dr thinks is ridiculous having to get this eval. Seriously why would one want to go through this if we had no pain?? Oh well. Not sure when I'm having this done but the sooner the better!!! How are you doing? Hugs Linda
Morning Ken. Yea it's good to know hardware is good. Now if only I can get this nerve pain under control and gone for good. Hope the MRI of my thigh shows something to this problem!! Hugs 🤗 Linda
Thanks Annie! Im hoping the MRI of the thigh reveals the nerve issue. Won't know till oct when I go back to the dr. Unless there's something there that needs to be addressed sooner. Which, I know sounds strange, I hope there is so just maybe we can battle this nerve and it goes away!! Hugs 🤗 Linda
Same same, told no op yet as pelvic to unstable, will carry on with crutches but its hard work and putting pressure on right hip and shoulders etc but hey can't complain it could be so much worse, I could still be in chair, no comparison, go for it, if it helps you are better, if it doesn't then you have lost nothing.
As for sonar scan on thigh
I hada gonising pain in right thigh following hip replacement physio thought I was just being lazy/ cowardly. Couldn't do any exercises. M R I scan showed 2 TRAPPED nerves in my spine leading right down my thigh. I had 2 steroid injections in my back. A week later pain started to get better. I am doing great now. 8 weeks post op. Hope you get it sorted..
Hi Ann sorry to here your op didn't go as you would have hopped but left you in pain like Linda, on a down note does your jabs mean you will be pain free or is it just a quick fix to ease your initial pain and will be back as soon as it wears off.
I'm assuming your pain levels are good at the moment
If pain returns I can have another injection. After that if problem is bad .. an op to release the nerves and support spine with a cage is possible. Whether N H S would pay for that for an oldie is debatable. So I pray that the pain relief is permanent .
Hi Ann....was nerve pain in your thigh sensitive to light touch? I've had one injection in back didn't do anything for nerve pain and sensitivity in my thigh. Dr says spinal stimulator will help.
Hi Linda.
I am glad that your hardware is all good,but sorry that they couldn't find what your nerve pain is coming from. I pray that the MRI shows something so they can work on correcting to make you feel better.
My prayers are with you.
God Bless.
Keep us informed please. Worried about you.
Thank you Charlotte. I appreciate it. I'm hoping too that this MRI shows what's going on with this thigh and the nerve. And it's something that can be corrected. It's been a real pain. I can't keep wearing shorts. I miss wearing my own clothes!!! 😩
Most of us thought when we had our hip operations that the pain would subside, boy were some of us wrong. Seems other pains have occurred and some drs don't want to agree that this happens or tells us the hip hardware is fine to make it look like it's all in our head -Wrong. Too many of us hippies have pain afterwards and sometimes just have "to deal with it"
Wish there was a magic button we could push to allow us to have our old lives back again.To me that seems like a dream just like a lot of others wish also.
Hi Linda
Im pleased your hip is looking good, at least that is some good news. The nerve problem is more difficult to detect. We have that many nerves in our body and they are so fine. It's surprising the amount of information they contain. It seems as if you are covering every area to try and get it sorted.
I wish you luck and hope you can get things sorted. I'm not having any luck with my nerve problem in my foot. All we can do is keep trying.
All the best Brenda
hi linda,
I hope you have some relief from the injections ...
I am so sorry, darling ....post-op nerve pain is so hard to locate - MRI, scans sometimes are not able to register it and even then, if there is some damage, healing will take a long time --
Great that all is well with hard ware and that your surgeon reacted so positively to your husband's research of spinal stimulator ...
You are such a trooper, Linda - you are going through so much and still come here to support and encourage others ...
big warm hug
renee
I send my prayers to join yours and maybe he will listen and grant that the pain remains gone and that Linda also finds relief from her irritation.