Greetings to all
I started having many issues at 4.5 so as decided with my friends here went to 5
But feel so lousy, different than pmr, muscle weakness fatigue nausea at time lack of appetite etc etc. Also odd sensation in my head.
So my rheumi feels this is an adrenal issue and started back on 7.5
Second day of this today, still awful but hoping will take time.
Going in to have my electrolyres checked today as well
Any one experience this issue?
Thanks Gina
Lucky you to have a rheumy who recognises this may be the problem!
Of course - it could be something else so do keep a weather eye out...
Hi Gina. I have been on 6.25 and 6.5 for 2 months and have dizziness, nausea and feelings of pressure, tingling in my head. Weird sensations, very difficult to describe. My docs just give me stematil, for the nausea and dizziness, but I havent taken any as I am on so many different things already and react strongly to everything. I also feel awful. My dizziness (not vertigo) seems to get worse when I am up and about. Settles down a bit when I sit or lie down. But my head feels weird all the time, not painful.
My appetite varies from day to day, if I feel nauseous, I cant eat. Also my fatigue varies a bit too. Yesterday and today have been bad. I also have tingling in legs and feet.
I have had mild dizziness, tingling before when I reduce, but this time it is more severe. I have been thinking of increasing my Pred. My doc doesnt think its necessary. I am having 24 hour blood pressure starting this afternoon to see if it is to do with high or low blood pressure.
It does sound as if we have similar problems. Do keep in touch and let me know if the increase helps you.
I have the same , muscle fatigability , general fatigue , nausea , loss of appetite and a funny feeling in my head. Those were my symptoms at diagnosis.I recently had a flare when tapering from 7 to 6, and for the first time, felt the "classical" PMR symptoms of shoulder and hip pain even when at rest and stiffness after sitting or awakening. I had felt great at 7 but when I had the flare, going back up to 7 didn't work. I incremented till I hit the spot at 15 and then started the taper again . My rheumi says my symptoms, the ones you mention, are more in line with GCA. PMRpro also thought that at the time.
Im feeling well presently, as far as the PMR, I don't have that extreme fatigue anymore but I still have almost a constant , low grade diffuse headache , sometimes shooting pain in different parts of my head and neck, ears and jaw. In my case, I had a tumultuous journey so far due to several extraordinary , stressful circumstances in my life and also a broken pelvis right at the beginning , I was put on mtx and told to taper 2.5 mgs at a time. I knew the rules but I thought since I was taking mtx , putting up with all the side effects, that at least I could taper faster but I was wrong of course.
I m sorry you are confused about your symptoms.Hope you get it sorted out.Thank you for sharing, it is comforting to know there is someone else out there who has the same symptoms.I feel validated.