Band of Fibromites

Bones, joints and muscles
1

We are a band of fibromites standing strong to fight.

Although the road is abumpy one, theirs always hope in sight.

We face many a daily battle. a mountain we must climb.

Conquering the sumit each every time.

Supporting each othe rto help get through the day.

Trying to stay positive in all we do and say

We over come discrimination standing strong united as one.

We are the band of fibromites fighting on and on smile

2

Well said Kaz! A very good mantra! Onwards and upwards fellow Fibromites! Gentle hugs everyone 

3

lovely thoughts.  Although I have to say the word fibromites conjurs up images of wee beasties picked up in the long grass lol

4

Hi Kaz,

I have put forward an idea to Alan (the moderator) for Fibromyalgia Syndrome, to have a useful page of links and resources that we can reference people to with this disorder. This way you can ask Alan if he can add further resources, that are not available on patient.info to the Pinned post, without your post going in to moderation. In my case this happens a lot.

I have suggested one such link that I am sure I sent you already, but you direct others to the Pinned post to actually see the link and allow them to view the external information themselves.

I am also covering Benefits as well, so this will be updated ASAP.

Regards,

Les.

5

Hi Les you were on about sending me a link but I havnt recieved it up to now? I think thats avery good idea for us to have own page of information that people can access for them selves. the more information we can get hold of the better for us, things like benefits are a mine field, Much appreciated you putting that to the moderator for us take care regards kaz

6

lol little beasties um may e have to think of another name to call us? homework for the weekendlol gentle hugs take care x

7

Fibrorangers? I hadn't thought of the mites link, but now I can't visualise anything else!!! lol

8

lol xx at least its raising a laugh we certainly need that xx

9

smile onwards upwards battle on gentle hugs xx hope you have agood weekend and not too much pain xx

10

At the request of other fibro users I created a pinned discussion on the fibro group page a month ago with links to resources and as a way for users to introduce themselves and list symptoms etc but no-one has made use of it. It is here

https://patient.info/forums/discuss/fibromyalgia-introduction-and-resources-437341

As it says on the post I can edit this to add more resources as long as they conform to the rules for posting links etc. If anyone has any suggestions send me a PM with details rather than replying to that or this post. I have added a link in the pinned discussion to the Benefits discussion group which will also have a pinned discussion of resources once I get round to it.

Regards,

Alan

11

So true Kaz.  xx

12

New poet in the House?! Maggs got competition!

13

Maggers still our poet lauriet Im just filling in? while shes on a breaksmile xx hope youve had a good day today and hope you have alovely weekend with not too much pain gentle hugs xx 

14

How was you day? How's Charlie? smile

15

Love this thout Kaz

16

well said x

17

afternoon Teressa how are you today, I was in agony last night with my back, I was up all night what with the pain and charlie not settling. Been to the vets this morning with him, hes given him a cone to wear hes upped his tablet got to see how he goes on over the weekend. take him back next week.hope you have a good weekend and not too much pain take care gentle hugs xx 

18

My prayers go to you both smile

19

Thank you Terssa smile xx

20

Charlie will be fine. Hope you are feeling more positive Kaz.

Have a chillaxing weekend.  x