Bloodwork/confusing/ question......

Ears, nose and throat
1

Hi everyone,
I am approaching the seven month mark, and feel awful-and more limited than I did a few months back-
which I was limited for the first few months as well*

I am curious, has anyone gotten basic bloodwork done and it all comes back ok?
I got the basics /Lipid/CBC etc
it all looks good indicating no infection.
A few months back I got my EPV levels checked, they were high.
I was diagnosed with EPV AUG/18
(took four months for diagnosis though)

EPV is a seperate test so it would only show on that???

My question is how can I have EPV and feel so terrible, but my overall health bloodwork is good? How can it not throw off other things in your overall system? It makes me think that these Doctors think I’m nuts and its all in my head.?

so confused…
would’nt my WBC count be up if my body is fighting this?

I have night sweats, muscle fatigue nausea etc all classic things-

How can this virus hide like this?

2

Nature of this horrible beast I am afraid!!!!! I wish you healing. TAKE IT VERY easy and rest as much as possible it can be a long journey xxoo

3

thank u may I ask you are you sick or have you had this? for how long?.......

so its normal to have good bloodwork and feel like CRAP?!

4

I haven't but my husband had in 1968 and he was in isolation hospital on liquids for 2 weeks and was told he would have relapses for 2 years which he did! my daughter had age 14 and I believe her health probs stem back to then. SHE IS 42. one of my granddaughters had EBV 2 and half years ago and is not in school because of CFS. . you need rest, rest and more rest. LOOK UP OPTIMUM HEALTH CLINIC. x

5

when i got bloodwork done after 5 months of fatigue at the er everything was good but still knew somwthing was not right so asked dr for ebv test and yes positive . i felt like i got worse once diagnosed as stopped working out and its been a rollercoaster ever since .and yes bloodwork can look good and still have ebv

6

thank u Lori-:-)

yea i knew /had a hunch- in beginning what i had some Mono" thing but had to go the infectious disease dr to get accurate info/tests sure enough EPV numbers high* it all made sense i got hit so hard i could not work out or move -nothing

i think its strange that bloodwork can look fine and i am sicker than a dog!?! it bugs me but am glad other things are healthy-

i live in the deep south in the US im from out west i grew up in mountains with zero problems move out here subtropical climates breed this stuff more i guess? ugh scary

7

dont think it has anything to do with climate could be when hormones drop depending on your age . stress...anything can bring it on . and yes 2 drs missed my illness i just happened to see a post on the womens forum about ebv and then everything was clear . its a nasty nasty virus that takes a long time to go unless you are 18.

8

yea who knows i was under tremendous stress when this hit me overnight! bad stress..... but also work in dentistry and my ID DR says I picked it up there because it was acute/fever the works?

lived here over 3 years i go back to work for three months and get super sick; fishy?

dr after dr after dr after er four months of BS/searching

i thought i was dying and went to infectious dr twice to push him to run EPV test bingo!- why are they so aloof with all this?! i just want it to go im tired of the games this virus plays with my body

if i got it young maybe id be stronger against it i had zero illness growing up....

9

My titer count was really high when tested for EBV but the rest of my bloodwork was normal. EBV is a monster that hides out, but eventually goes away. I remember feeling so terrible I felt like I had been shredded in a cheese grater. Hang in there because eventually you WILL get well.

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hi Forgetmenot

thanks for your info and encouragement the bloodwork is tricky doctors pay no mind to you because it looks good~

......i agree with u epv is a monster/demon same thing^^^ jeez!!!! i mean, cheese grader/meat grinder same thing--:-)

i feel like ive been in both i cannot comprehend that there is a virus like this that causes this many issues at once* approaching month 7 -:-|

i thank u again for your time, it helps a ton~

takeCare!.....

11

im getting and another ebv victim on here ozone therapy ...you may want to look into it people have had good results with it . they take about a cup of blood infuse it with ozone then reinject it into your body

12

hi,

sorry youre going through this. i had very very extensive blood work done repeatedly and all my results were PERFECT even though i was terribly unwell.. with severe fatigue weakness, short of breath, chest pain, night sweats, headaches, sore throat, etc.

like you, docs and family thought i was having a mental breakdown lol. I was very unwell from november-april and then things improved quite dramatically. a year later i am back at 95%. dont get discouraged by the months and try not to compare your timeline too much... take comfort that you will get better and it will likely happen slowly, slowly, with small progress, then rather suddenly with lots of progress.. please dont panic, after half a year of being home i was certain it would never end but it does..

13

Hey Starr,

I definitely want to reassure you that this is absolutely normal and CLASSIC for mono - I had a blood test at the beginning that that's when I was diagnosed with mono / EBV, but had several other blood tests in the months after that and they showed absolutely clear and fine. I was baffled too thinking why am I feeling so awful but the blood tests are showing fine?

This really is normal Starr, want to reassure you - although the blood tests are showing normal now, your body will still be dealing with the mono and fighting the post-viral effects. And it doesn't mean in any way that you won't get better or that there is something strange or wrong because you feel so unwell but your blood tests show as normal - if anything take that as reassurance that what's going on is just the mono and nothing else, it's a good sign Starr even though I know it's frustrating because you are seeking for some kind of explanation as to why you're still feeling rough.

So, really just want you to be assured that this is a VERY typical and normal course for mono, and the fact that the blood test are good means that it's almost certainly all coming from the mono and nothing else. And remember that things will get better with time, 7 months I was still struggling but another few months down the line I had started to a see a real and major change which turned out praise God to be the start of full recovery.

And I truly believe that is what's ahead for you too Starr. Hoping so much these night sweats and fatigue and nausea settle down, you're doing the right thing keeping getting your bloods monitored - that is wise for sure and do continue to do that if you can over the coming period and of course don't hesitate to keep checking in with the doctor and discussing any concerns you have with them.

Thinking of you Starr and you ARE getting through this, God willing you won't have to go through anything like this past 7 months again - the early stages are the worst and most intense - better times and full recovery lie ahead for you I truly believe that in my heart.

Craig

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ok good to know! sounds scary....though

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thank u i feel like im losing my mind here such difficult symptoms to deal with and explain at times but the muscle weakness/fatigue/nausea/headache/is tough leg back pain

although strangly my muscle fatigue and pain has been dimmed somehow like its there but being blocked-crazy right? i feel like a piece of jello when i wake in the am so weak and my symptoms changed last three weeks new stuff/old too ?

very overwhelming this event and at 7 months of being home and feeling even more limited lately its starting to become more difficult day to day people that havnt gone through this have no idea how ill you really feel

im ready to be well but not sure when it will happen.....

thank u for your encouragement im leaning on all of yo here more than my family right now.....

im praying hard!

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thank u craig,

im struggling feeling so strange and so so ill in a whole new way plus dealing with muscle problems/legs etc its like they dont want me to use them too much....

feeling very sad today im so glad i have you all its very helpful knowing people that actually feel what you have felt

im ready for this to end its getting harder......

hope you are well.....

17

interesting.....ive never heard of it.

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youre not alone .. im having the craziest past 2 weeks total relapse ..sick of lying down cant relax .. wired but tired..all a nightmare !

19

Hi Krys,

So sorry to hear about your granddaughter and daughter's health issues, this virus is so awful and tries to be so destructive, I just hope and pray for breakthrough and recovery and good health for you, your daughter and granddaughter. God is the great healer I believe He is going to help you and praying for blessings and healing from Jesus in your family.

Thanks for the encouraging words for folks here Krys, it is very much appreciated and do keep in touch and let us know how you and your family are doing over the coming period. Thinking about you.

Craig

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P.S. Bowen Therapy is natural alternative therapy I have found very helpful for all sorts of aches, pains and fatigue type issues over many years - maybe it could be something worth looking into for your granddaughter - it's very safe and non-evasive, certainly can't do any harm.