Bone Pain

Chest and lungs
1

Does anyone have localized bone pain or joint pain with their Sarcoidosis?

2

Yes I do I am in most days waiting to see specialist. I have sarcoidosis in my lungs , eyes and skin waiting for further tests to see if any other organ is affected but I do have pain in my bones and joints and feel so so tired most. Of the time 

3

Yes i have been complaining of joint and bone pain since my diagnose june 12/16 at night i wake up with such pain in my ankle bones i have told Dr it feels like bees are stinging my ankle bones but im not getting much aid in pain its just terrible also getting rib pain and shoulder pain so hope u get some relief maybe one day i might have something good to take!!

4

The simple answer is yes. I have Ostioarthritus, which was masked by taking the steroid Predisolone. When l stopped taking this drug the pain in my joints became apparent. I am currently on a course of physiotherapy to assess whether my right hip needs surgurical treatment. It is really very painful despite anti inflamitory drugs.

I hope this helps

Kind regards

David

5

Hi, l am David and l have had Sarcpoidosis of my lungs confirmed by biopsy a few years back.

I also am under investigation for Neurosarcoid in my brain/spine. I know there is an eye element to my issues and wonder if you can explain the symptoms of Sarcoidosis in your eyes and how your doctors confirmed this?

I look forward to your response.

Kind regards

David

6

Hi David I had really light sensitive eyes and they were constantly streaming and aching started in summer last year went to optician who said it’s conjunctivitus but it carried on still, after my diagnosis of sarcoidosis I went to eye enfirmary they checked my eyes and confirmed sarcoidosis.

7

Thank you guys for all of your responses. This site is so helpful. I hope that you all feel better.