Billythehuynh- I am having exact same - heart/lung pain with hard to breathe. After many tests and some more on Tuesday, she told me I have whats commonly called a hole in my heart. She was explainly what you detailed. I understand this is often from birth and can be finr then have symptoms like these in adulthood. Interesting thing I also had 2 Lyme ticks in the last 8 years... I was stuck on that at first. Now am thinking maybe a combination of factors. Just learing and I am kind of scared.
Hi Minimemo, I have same/similar issues. Many tests came back normal but yesterday my Dr said I have heart shunt- commonly called hole in my heart. Still the things that helped me til today (3 months) are nasacort to help with cough. Its a steriod that cut coughing in half or less. I was coughing 1 time every twenty mins (I documented) and Breo steriod for breathing helps some but not entirely. Dr says I will need a cardiologist. I also keep thinking that antibiotics helped before but she wont give them right now.
I have been fighting the EXACT same symptoms for an entire year and like you it goes away for a short period and comes back. I only get relief when I wake up in the morning but as soon as I stand up, within 10 minutes I'm right back with heavy chest pain (like a balloon inside center of chest), coughing, shortness of breath. I've been to ER 5 times, pulmonary, ent and primary doc countless times and nobody has a clue. I have always thought I inhaled something but it's an act of God to get a bronchoscopy, still can't get a Dr to refer this procedure. Getting severely depressed and desperate, any advice appreciated.
Billy, I think your suggestion is the best I've had so far and according to my cardio doc I do have an enlarged upper heart and a leaking heart vavle. I have been fighting the EXACT same symptoms for an entire year and like others state it goes away for a short period and comes back. I only get relief when I wake up in the morning but as soon as I stand up, within 10 minutes I'm right back with heavy chest pain (like a balloon inside center of chest), coughing, shortness of breath. I've been to ER 5 times, pulmonary, ent and primary doc countless times and nobody has a clue. I have always thought I inhaled something but it's an act of God to get a bronchoscopy, still can't get a Dr to refer this procedure. Getting severely depressed and desperate, any advice appreciated.
Update : I found bad mold in my house behind the tiles in my bathroom. Once removed I got much better, but I do have contnued sensitivities now to everything. Mold, wood dust, heavy work/labor, perfumes, dust, dry cold air, just about any strong thing sets off a cascade of allergic reaction - ashma/allergies whatever you want to call it. On steriods and inhailers at times to help me breathe. STill have heart problem some and that adds to challenge of breathing.
Anyone found what it is . As I fine laying down but soon as a stand up and move around I start to cough feel chesty .
I have been searching for the reason as to why my cough wont go away after almost two months. After reading the experiences of the people here I feel really bad for everyone because my symptoms are not half as bad although still inconvenient. It started middle of October with a sore throat, headache, coughing with phlegm. I thought it was over 2 weeks later, but a dry cough continued and the puffer didnt help, I have mild asthma. Went to my doctor a month after it all started and he said it was bronchitis and prescribed antis and dimetapp which I took for about 3 days then stopped antibiotics because it made me feel sick. I drink lemon tea with honey and find that it helps and then when I go to sleep the cough goes away. The next morning I dont want to get up because I know its gonna start again. My only symptoms are a nagging dry cough that stops when I lay down and sleep. please help!
I too have been experiencing this but want to add another glitch, at least in my own case. A couple years ago I was poisoned by the antibiotic Cipro (fluoroquinolone toxicity) which is VERY common (millions have been injured.) Among my more than 30 side effects, which destroyed life as I knew it, was extreme breathing difficulties. It eventually went away, but now I am having breathing trouble again after an asthma attack, and many who are injured by these antibiotics do have side effects come back again, so I am thinking that is also part of my problem. Cipro also gave me fluid around the heart too. If any of you have noticed any other unusual symptoms, you might want to look back and see if you were given Cipro, Levaquin, avelox or any other fluoroquinolones. There is also a site called floxie hope for more information on this.
Wondering if you found out anything. October 2016 I got sick and had a terrible cough to the point of gagging and could not even walk to the kitchen without feeling exhausted and out of breath. My doctor tried so many different medicines and nebulizers and sent me to different specialist to have everything checked from heart, lungs, etc. finally in march they put me on budesonide inhalation suspension thru the nebulizer and I finally got better. I too was fine at night or when laying down. I did not have any problems until last month and it started again. I started the nebulizer again but they have no clue what is wrong?
Hey. If I was upright like standing I would cough if I lied down coughing would go away. Lasted over a year saw ENT and a bunch of specialist. Went back to ENT a year later EUREKA he prescribed me Amytripiline. In 10 days allí symptoms gone. Apparently nerve on back of throat was irritated and caused me to cough.
Hi anyone found What this is I have this every year around same time. Lung function test all OK. Ecg OK. Bloods OK. Thinking anxierty
Hi James, Ally lung functions turned out ok too. I took the advice on a different post to see if I had a heart shunt (hole in heart) although I didn't have a hole it turns out I had significant blockage in 3 arteries. Got some stents put in and most of my breathing problems went away. Occasionally I have minor discomfort but nothing like before. Good luck!
Hi thanks for reply. What symtoms did you have. Mine is just bad air hunger when upright alot better laying. Plus ache in upper back right next to spine both sides.
I could not stop coughing (non-productive), my chest always hurt, I felt starving for oxygen, at times struggle to breathe. The only comfort I could find was when I first woke up in the morning I'd be fine but after getting up within minutes I'd have the symptoms again. Then it would go away for a week or sometimes two but always came back full strength. Since my stents, it still comes back but not near as strong. My two specialized docs always told me I had chronic bronchitis.
Hi thanks for replying again will ask about it at docs tomorrow . As starting to get worried I'm 38 and suffer with health anxiety . What test found out u had blocked artieres .
Update - we found mold in my bathroom. When we removed it almost all the rest of my coughing stopped. Here I was going in my bathroom taking showers and cranking up the hot water to breathe in the steam! I am now very sensitive to the enviroment, esp mold but am breathing and feeling much better. So, after all that it appears I had multiple issues causing my problems. I encourage everyone to keep searching to find the cause(s) so you can get well.
you might want to look into silent reflux
Thanks will do. Do you have it.
not sure. just doing process of elimination. Have a lot of the symptoms
Hello everyone! I'm so glad I found this thread. I have the same issue - shortness of breath that comes and goes. It only gets better when I lay down, and gets worse when I stand back up.
I have spoken to my MD who thinks it might be asthma from seasonal allergies, but it's been over a year now and this issue comes and goes at all times of the year.
If you find out anything, please share it here! I'm 37 years old and look fairly young, and regularly get the impression that physicians don't take my complaints seriously as I'm "too young to have such problems."
Anyway, thank you for sharing your experiences, and any insights and tips you might have!