HI
I had such a GOOD day yesterday. Not much itching, no burning just kind of feld normalish. TODAY is way different. My back end bum cheeks were extremely itchy. I tood a BS bath and that helped and then I put CLOB ointment on (first time ever). Was okay for maybe 10 minutes then the burning started again. Used an ice pack and that helped for awhile but I am burning again. Sooo uncomfortable. Burning itchy all the way up the back to the tailbone. Top of legs are itchy again too!!! Now put some Panetin (baby cream on) but still uncomfortable.
Does anybody have any suggestions on how to get relief or do I just have to wait it out? I also have a cream for Yeast and was wondering If I should also apply that to the bum part. I hate this.
Hi Sue
I know what you are goint through. Ive been on CLOB ointment for 2 months and as soon as I cut it down, the problem starts again.
You could make a paste of Bio carb of soda and organic coconut oil and put that on. Be wary of CLOB. My hair has started coming out!! I have to reduce it or I am in real trouble. In fact I already am! I sit a lot with a cold pack and wake up during night burning!
Hi Powerwoman
Since I just started the CLOB was wondering if that also causes burning? Though had burning before starting it. I am supposed to use 3Xday for the first week but will only use 2Xday for the first week. Just not really sure where to put it. Does it go all over the sore itchy parts? Are you losing hair on your head or down there? I will try first try just the coconut oil. Haven't put it on in awhile. Want to go out shopping but feel sooo crappy
Sue, I'm a bit confused, didn't you try the baby cream like I suggested in your earlier post.? The first and last time I used Clob on the crack of my butt brought me out in a terrible rash, terrible reaction!, it is why I suggested using baby cream, I believe the Clob to be too strong for that area.
Never make a paste of bio carb of soda, it is dangerous taken like that, I should know I tried it before I knew better.....
Hi Sue,
Just like Powerwoman, I also had hair loss with CLOB. By the way, based on my online research and what my doctor confirmed to me, CLOB doesn't cure LS, it only helps reduce discomfort. The only thing that works for me is diaper rash ointment with zinc. The zinc in it really helps.
When you have a flare-up, ask yourself what you ate that day - tomatoes, citrus, spicey foods? Wine is a culprit too, but vodka seems to be ok, just don't drink it with OJ or tomato juice. Also, stress can cause a flare-up
Anna
Hi Guppy
Yup I full intended to just put the baby cream on the bun area but was putting the Clob near VG and thought lets just try a little on the bum. DUMB. I should have listened to you but I guess had to learn the hard way. Like it is not hard enough. I really appreciate your advice
Anna, The hair loss in the pubic area is a symptom of Lichen Sclerosus, and not because of using the Clobb. I have a small patch missing down below. If you Google this you should find plenty of info on it.
Dear Guppy,
Thanks for your comment. I had hair loss on my head, which by the way, is listed as a potential side affect for this drug. I also discussed it with my doctor, who said that tiny amounts may not affect the hair on my head, but to be safe, I chose to discontinue it. I have found help with the diaper rash ointment with zinc (I'd mention the name, but one of my posts was removed because of that) and also, if needed, anti itch cream with diphenhydramine, which helps with the burning too.
So nice that we are all working together to find relief!
Anna
No paste! All I did was forget to stir the bicarb in the bath, so I sat on the pile of it. Burnt tailbone area.
My opinion is that 2x a day is too much.
There is another cream called pro topic (tracolomas) not sure if that's spelt right. It's works in a different way. I got burning with pro topic but it only lasted for 24 hrs then it was gone. This cream can have other side effects and when you read about in on google it seems scary but I spoke to my gp and he said in the amounts needed for Ls he was not worried and felt it would be beneficial. It's a bit like the risks of the contrceptive pill and thousands of women are fine on that. Hope this helps xx
Surprised that a side effect of clob is hair loss as clob lotion is used for an associated condition which, in itself, causes hair loss! I suspect you are, like me, suffering hair loss as one of the many symptoms of LS itself. I take Viviscal tablets and sometimes a top up of Biotin tablets which seem to help. With regard to the burning
Start again! With regard to the burning,Sue, I get this a lot and just use Vaseline between the cheeks. Works a treat in my case.
Thanks Anna, I will try the cream.
Yeah, sometimes it's easy to forget that people use this stuff for cleaning ovens.
Most people start off on the cream twice a day, and then reduce it to once a day, are you saying that you think even that is too much?
I started off twice a day, I think for about 5 days and then reduced it.
Hi Anna
I know you cant name products here but does the nappy rash cream you mention start with a S and end with a m and have 7 letters in it?? I have some of this and was thinking of trying it for the burning?
My prescription never sad 2x a day. But doctors vary so widely... It just doesn't seem so surprising if people react badly to clob if they start 2x a day.