I Know this is a big peri symptom on the 66 symptoms list but just wondering if anyone has it so bad that spicy, alcohol,toothpaste,and different drinks and foods at different times, burns so bad!!! My tongue is also very red on the tip and looks kinda cracked at times, no one else can see this but it can also be very imbarrassing when out and all of the sudden it hurts bad!! also does anyone have any helpful coping skills or anything… THANKS ALLXXX
Hi Beverly
yes i unfortunately got the burning mouth syndrome amongst a lot of other terrible symptoms. it really is painful and distressing. as i have the burning face and scalp and arm on the left side i was given an anticonvulsant medication called carbamazepine and it has mostly stopped the burning except right before and during a cycle as it breaks through the medication. i cant up the dose as carbamazepine interferes with the HRT and i cant up the HRT as it gives me uncomfortable migraines that make me feel like I’m going to have a stroke. I don’t know if there are other medications or natural remedies that will help you as nothing else worked for me and as carbamazepine has mostly worked for me i haven’t looked further. if you do find something else that works i would be interested to know. i do hope you find some relief soon.. i am going through an episode of it now at the start of hormone fluctuations as well as a monster headache that will turn into a migraine so i need to sign off but i wanted to reply. good luck you are not alone.
thanks shy, I really haven’t heard anyone talk on this on the forum one thing that I think helped it because it went away for awhile then came back, I have had this for a year now, I took zinc and it went away but I really don’t want to take zinc everyday forever with all the other stuff I take I have hashimotos and siezures and sometimes i think it has to do with my autoimmune hugs xxxx