I have an appointment with an endocrinologist in a few days because my tsh is high. And I was wondering if anyone ever had the same symptoms as me. I've got swollen lymph nodes, raspy throat that comes and goes, random body aches and pains, chest pain, migraines, aches in the armpits, thighs, shoulders, behind knees. tingling in the extremities that comes and goes, VERY thin/fine hair, issues losing weight, constipation, and when I don't have constipation I have diarrhea or almost like ibs symptoms. I have had TONS of blood tests. I have seen like 6 different doctors. I had someone say gerd then Lyme disease then lymphoma. I had multiple panels of bloodwork that were normal, scans on my neck and chest (chest was clear). Now I am absolutely paranoid because I feel undiagnosable. Finally a doctor tested my tsh and it was high. My grandma has hypothyroidsm and I know that you're more likely if it's genetic. So let's hope I find an answer.
I just want to read your experiences and stories. Maybe it'll put my mind at ease... most specifically, did anyone else have some swollen lymph nodes?
I have Hashimoto's that caused hypothyroidism and also have swollen lymph nodes everywhere. They are enlarged in my armpits, groin and left side of neck. I would imagine it is the immune process from Hashimoto's that can cause swollen lymph nodes.. My endo told me that it is not normal to have swollen lymph nodes with Hashi's, and was diagnosed with generalized lymphadenopathy. But I have read many stories of other people with Hashimoto's, that also have swollen lymph nodes. It makes sense, as with all other autoimmune disease, enlarged lymph nodes are a symptom.
Do you also ever get the "lump in throat feeling"? I have it all the time.
Yes.. sometimes.. Also, a lot of the time , I feel like I have to keep clearing my throat, like there's something in there. It's so annoying. It also bothers me to have any kind of clothing, scarfs..ect. touching my neck, as it just gives it a very odd tight feeling.
I had most of your symptoms.
Most have now gone including lymoh mode swelling in the groin.
Tiredness remains although no longer debilitating.
Weight is very slowly going downwards after an almost 3 stone gain.
Voice is now normal and lumpy feeling has gone.
Restless legs no longer a problem.
One year on thyroxine and it's been a trial but I am slowly getting better.
I too have been tested for everything else including liver, kidneys, cancers etc.
Hang on in until they get your treatment right.
Did you ever have rib cage or chest pain? And we're your places where the lymph nodes are achey at all?
I'm just so nervous now after the one doctor mentioned lymphoma. My lymph nodes are definitely not huge. But they do cause achiness and pains, mostly in my neck. A few in my groin. And I'm not sure if there are any in my armpits because I don't feel anything but my armpits do ache like crazy. What was your tsh at? Mine was 7.26 and the doctor told me it is high but everyone's "high" is different. So that could be high for me but not for someone else. I haven't had any of the other routine thyroid blood tests yet. I'm just so nervous. I'm in so much pain everyday. My insomnia last night was insane.
Yes, I get random aches all over my body, from sharp pains, to achy feeling, and even weird sensations, such as tingling and tickely feelings. At one pint I even had what I can only describe as a feeling of cold water running my legs, but nothing was there and my leg was not wet at all either. Very weird stuff..lol. Now.. if this has to do with hypothyrodism or not.. I'm not sure. There are a lot of vitamin deficiencies that go along with hypothyrodism, such as low vitamin D, low iron, low ferritin, low Vit B-12, low magnesium and some others.. so I'm sure these may contribute. I would say a good multi-vitamin may be helpful. Also.. about if tthe areas were the lymph nodes are enlarged ache.. yes, but only the ones that are on the left side of my neck. They feel sore pretty much all the time. I can feel them when I turn my head, touch that area, and even chewing food. Hope this helps.. I would also like to mention that most hypothyrodism is caused by Hashinoto's which is an autoimmune disease, so not only do we all experience symptoms from the hypothyrodism itself, but also from the process of our immune systems going haywire too. Symptoms can vary from person to person and can also effect the whole body. When taking levothyroxine, we are only treating a symptom of the Hashimoto's, not the cause. A healthy diet, good sleeping patterns, low stress, staying away from pesticides, herbicides..ect, and all other toxins, such as mercury, processed foods, sugars, and for some people.. gluten and dairy products, can all help to slow down and even sometimes stop the fauly prosess in our immune systems...
I have all of these symptoms too, terrible pains at times under armpits and groin I can't feel lumps under armpits but very sore to the touch and ache all the time, I can feel glands up in groin, neck and jaw. Terrible pain in rib cage and sternum paranoid I have a heart problem ! I too have been checked for cancers and told glands shouldn't be a symptom of hypothyroidism but I have read so many people who complain of this. The list of symptoms certainly for me are massive, I believe hypothyroidism can affect just about anything especially if left untreated and is more advanced if you like .. my biggest paranoia is my heart constant palps and awareness of heartbeats with irregular bpm but ecg show no problem, sometimes the anxiety takes over for us
I read all of your symptoms and had to laugh to myself. Not that it's laughable...it's not. But in the land of hypothyroidism it's all a mystery. I've been to some of the "best" endocrinologists around and quite frankly...they're worthless. Maybe 5 years ago I was diagnosed with hypothyroidism (my TSH was over 200....yes, over 200) and since then it's been a wild ride. I didn't do well on Synhroid so was changed to Armour Thyroid, which I did better on for awhile. My TSH has gone from .5 to 64 in one month, and vice versa.
I found a lot of useful information (more useful than any doctor has advised me) from Stop the Thyroid Madness.
And all of the symptoms you've mentioned are things I go through pretty much all the time. There are good days and bad days - and basically I just try to cope as best I can. My biggest help has been cutting out ALL gluten and eating very carefully.
Good luck
Hey guys. I have just been told I have sub clinical- hypothyroidism. My levels are currently 10.55, I have not started medication as I feel I am not ready yet. I have been having chest pains in the middle to both sides and sometimes feels like it's in my ribs. I also have a lump in my armpit but only one side. I have been to doctor who ultra sounded is and said it was just a swollen lymph node. But it's not going down? Is this normal with this condition. My mum had breast cancer so I'm really worried. Any help would be great
Hi Elsie
when I was first diagnosed last year my TSH was around 26 so fairly high as is yours, I had almost the exact same symptoms as you describe, went to docs with chest pains and pains under my arms too .. my GP told me that hypothyroidism won’t cause this however many people seem to have this symptom. These pains did start to go away a few Months after I started treatment. Pains in chest .. odd one I had several ECG’s all came back ok and eventually had a holter monitor over 24hrs again came back ok, told it was anxiety. Try not to worry too much pains and aches are very symptomatic of hypothyroidism. I felt like a hypochondriac at times but I do feel from personal experience that you will not get better without medication, every cell in your body needs this hormone and you will feel unwell until you are at the correct level. As I said I started treatment last April and I’m still not there yet TSH around 8.4 on last blood test, yet others respond very quickly
Hey Matt. Yeah I'm 22 so all very new to me had never even heard of it before! Really REALLY reassuring that you have had the same symptoms! I've not started treatment yet, was in a debate about starting them because doctor said I could wait too see if they get high. I do suffer from anxiety so this could all be equalling to chest pains etc.
Hey Matt. Yeah I'm 22 so all very new to me had never even heard of it before! Really REALLY reassuring that you have had the same symptoms! I've not started treatment yet, was in a debate about starting them because doctor said I could wait too see if they get high. I do suffer from anxiety so this could all be equalling to chest pains etc.
Hi,
I have been having hypothyroidism for 10 years now....there is a long list of symptoms...go to www.thyroiduk.org.uk and view the full list of symptoms. The symptoms developed in time not all at once....and you learn to live with them. Diet and exercise is of great importance in managing the disease. I also have lots of nodules on my thyroid gland which I will have taken out later this year. I also have been at high risk of getting type 2 diabetes....which I got now, also an auto immune disease.
Stammering rarely in public....forgetting words and not remembering it right in a middle of a sentence, carpel tunnel....very painful, I have to wear splinters on by both wrists at night and looking forward to having surgery on my left wrist.
I am very active, eat lots of greens....I never eat cabbage....and peaches in any form. Research about diet for hypothyroidism. I used to have painful legs and feel very tired...not anymore because of my diet and exercise, have more energy and eating very low carbohydrates, small portion meals, virtually bread free, gluten free, sugar free, no potatoes, rice or pasta. Lots of salads.....no sweets, biscuits or cakes. I lost a lot of weight, feel lighter, have more energy.
I have been on levothyroxine 50mgr once a day, have regular blood tests and scans.
I would see another doctor in my opinion, not many GP’s really understand it is n my experience there is no way you should not be on medication with a TSH of over 10. There’s no doubt in my mind you will feel poorly, tired anxious and even depressed at this level, sub clinical is probably near high 1 to 2 - have a look at thyroid uk to see the long long list of associated symptoms. My chest pains started and then got tingling in my arm and hands was petrified I was having heart issues lol like you, both my mum and Dad have had cancer and it is always at the back of your mind. It will only get worse if you don’t start your meds as your thyroid can’t produce enough thyroxine for your organs my biggest bug bear even now is breathlessness, when TSH drops it gets better but for some reason it then goes high again however GP won’t text me for autoimmune antibodies to see if I have hashimotos trying to get referred to an endocrinologist
1.What is Hashimo's thyroid?
Ans: Hashimotos thyroid disease is really loss of ability in the thyroid to manufacture and balance hormones.Inactive thyroid is Hashimotos. It is unable to do its balancing jobs properly.
2.What is hypothyroidism symptom?
Ans:The hypothyroidism thyroid balances hormones, temperature and chemical movement in the body. temperature is applied to inflamation so it is all over the body. hormones are used by the brain, reproductive system, skin and most body functions.
Wondering if anyone here with hashimoto's/hypothyroisism and swollen lymph nodes came to any conclusions about the connection.
I have had several enlarged lymph nodes in my throat for many months now. I first noticed it seven months ago along with more common hypothyroid symptoms like fatigue and muscle aches. My thyroid tests came back normal, but the nodes increased in number and size (from 1 to 7 over 1cm within a few months). I saw several specialists (ENT/allergy-immunology/infectious disease) and did extensive testing on the nodes with the only results being that they are "reactive". Now my thyroid tests show subclinical hypothyroidism with TSH at 6.
I can only assume the lymph nodes are related, but also have the experience of most doctors telling me it's not related, with the exception of one ENT with a background in thyroid conditions saying people with Hashimoto's sometimes present with enlarged lymph nodes in the neck, but he's not sure why.
Hoping an adjustment to my levothyroxine level and dietary changes will fix my symptoms, but I would also really like to figure out the cause of the swollen lymph nodes.
Hello, it's been 18 years since I was diagnosed with Hashimoto HypoT.
I feel unheard by doctors, so far I have not find one that will take different approaches on diet and meds.
I have been on Sinthroyd for most of the time, the present dosage is 137 mcg, I notice that when I am close to the ocean ,or sea I feel better, more energetic.
I'm currently in Germany and my TSH it's been unstable it will go up and down after the doc. change the dosage. Every now and then I experience vertigo (since we got to Germany, I did so many test but they don't know why).
I did also a bunch of test and vit.D was a bit low, TSH was 6.2 so doc.increased the med.and prescribed high dosage vit. D
I have been experiencing migraines, discomfort in groin areas, legs aching, sometime discomfort under arm pit, I'm pretty much on and off full of energy.
People don't seems to get how bad it can get at times! I eat pretty much healthy, but I struggle losing weight, I walk a minimum of 2 miles, drink water 1.5 liters/ 2 a day.
I tried gluten free before, and I didn't felt any different.
I am glad to be part of this Forum because I felt alone, and worried, probably my doc. thinks I am hypochondriac 😁 I really don't care! If you have any advise and tips I would be glad to hear it!
I was told I had subclinical Hashimoto's Disease because the usual thyroid tests were normal including thyroglobulin antibody. However, the thyroperoxidase antibody test was Hi at 200 when it should be below 35. You should ask for this test nevertheless.
Before, I continue (because I do have painful lymph symptoms like you) the lab note for thyroperoxidase states that these levels (200-250) are see in 5-10% of the normal population without demonstrable thyroid disease.
Still one cannot ignore symptoms. For years I've had a hoarse voice, depression, ups and downs in energy level, as well as bradychardia - slow heart rate of 48 at times which I find frightening.
I had no noticeable pain until after 2 CT scans that used iodine contrast. After that I started experiencing bouts of extreme pain all along the front of my throat and to the sides and down to my collar bone spreading out to my shoulders. And, like you pain in my armpits and down my arms. Right now I have tingling in the palms of my hands in addition.
My endocrinolotist told me to take an aspirin for the inflammation, That did not work, nor did Naproxen, nor Curcumin nor and other natural anti-inflmmatories like Omega 3s. What worked was prednisone, and corticosteroids are a recommended treatment as per the info on the Internet. It is important to control thyroid inflammation to avoid permanent damage.
I had the prednisone for poison ivy. I took one 5mg pill in the night and in the morning another 5 mg pill this morning as there was till pain. I know we're not supposed to medicate but I know uncontrolled inflammation is a sure way to destroy tissue. I will be asking my doctor for a new prescription as I want to hang on to my thyroid and don't want artificial hormones because several of my friends who take synthroid are still overweight and can't lose their fat. It is also tricky if you have irregular heart beat which I do (again from time to time).
In my case, I don't know about yours, I noticed the flare-ups occuring after eating seafood, or soy products. The internet gives good info on what foods to avoid. Oh yes, the endocrinologist told me to take selenium and I do. One recommendation is to do aerobic exercise - I suppose that gets blood to the thyroid but lying on a slant board achieves this just as well - yoga practitioners recommend this.
Hope I have put your mind at rest somewhat. Do what you can re: diet. Have your estrogen levels checked because high estrogen leads to low thyroid. (Estrogen has to be balanced wtih progesgterone and there are bio-identical hormones for this) Good luck.