I was diagnosed with Central DI 30 years ago, but it likely onset as a result of a childhood head injury 50 years ago. I've struggled with weight all my life. My pituitary problem also extends to the other hemisphere and I have reduced production of both vasopressin and testosterone. Even with exercise, I struggle to build muscle tone and weight gain and it seems to be escalating. Is anyone aware of a connection?
Hi
Not many of us around. I was diagnosed
With central DI at age 6. I’m now 72. Its cause was also thought to be traumatic but I have my doubts because it was so minor. Another child jumped on my neck in a playground setting. I had a stiff neck for a week or so. Enough to see a doctor though. I think it might be genetic although no one in my family has ever had it.
Personally have never had weight issues. Just fortunate. Was always thin and probably underweight as a kid. Still thin as an older adult so far.
Never have had any issues with testosterone levels or muscle tone either.
But that’s just me. Don’t really know anyone else with this condition.
Was treated with
Vasopressin injections as a child into
Young adulthood supplemented with
Various nasal sprays. Eventually was put on Diabinese(Chlorpropamide) around age 30. Been on it ever since with excellent control.
All the best
Tom
Thank you Tom.