Hi, just wanted to talk with people who understand as not many have so far my end! My 'story' began 10 yrs ago at 22 when I was diagnosed with ME/Chronic Fatigue (usual cop-off from GP's), but I knew there was more to it. For a year I couldnt walk, had to make provisions for a downstairs loo,etc. Fatigue was an understatement and also had terrible muscle pain and numbness. Since then had episodes of similar problems. Whilst at Uni, was the laughing stock as I always fell asleep during class or had to get up and move around every half hour. Also had severe constipation which is still with me now.
4 yrs ago developed visual problems, fancy lights and headaches - thought was migraine.
2 years ago I had the most awful pains in my legs with numbness in the left. Also very cold extremities. Saw GP who thought my problem was related to my back. Had physio which helped none. The more excercise I did, the worse my pain became. Sometimes when I walked my leg would drag or give way (backwards!)
Then over the last 6 months, things have got very bad. My fatigue is terrible, unrousable at times. My family just though I was lazy. I also have days of severe tremor and slurring words, was even accused one day of being drunk at work - I havent touched a drop for years. I walk around in a fog and I'm terribly clumsy. I just drop things and have bumped my car 4 times in the last 8 weeks - something again, I've never done. My legs are driving me mad, want to chop them off at times, feeling now in my arms too. My left leg just flops, along with severe cramps in feet and calves. Most freaky is the way my toes jump and move around on their own - again, much to my families amusement! I cannot walk any distance as the effects later are unbearable.
Today, I saw my GP (new one) who after listening to my history, thinks it might be MS.....AT LAST!!! Someone has even dared mention the words!
He want me to have blood tests to rule out other things even though I have already had some done recently anyway which were OK. I asked if there was a definate way in diagnosing MS and he said there wasnt.
I therefore wondered if anyone out there has been diagnosed with a GP visit alone or even with a normal MRI result?
Would love to hear from anyone who has been through similar.
With best wishes, X