Hello all! First off some info, I am 51 and I have 3 MRI’s scheduled (2 brain and 1 lumbar) and an EMG and Nerve study test. All test are set for 2-9 weeks out. Problem is I am impatient lol. My Neuro thinks I could have a narrowing of the spinal column (and I get lower back and leg pain that jumps around )or it could be my Sjogren’s or something else. All I know is when I stand or walk from anywhere between instantaniously to 30 minutes my legs want to cave and the numbness is profound! I do have some neuropathy and unexplained electric like shock sensations a lot. It’s actually scary and causes me to panic at times though I am getting better dealing with it. On rare occasions I get some numbness while lying or sitting but it is rare. I just started 25mg of Lyrica and am due to double it in a few days. It isn’t helping at all so at times I take my hydro also.
I just don’t know what I should do in the meantime??? Honestly, I can’t do much and it is so frustrating! ANy suggestions what could be causing this (started last Jan and progressively worse) and what I should do? I feel terrible laying in bed or a chair most of the days. Thanks so much! p.s. I posted this on the back pain page also even though that isn’t the main concern.