Can someone answer me tonight?

I just joined the forum last nite and am thankful for it.. Don't know what is wrong with me yet but I am due to have testing tomorrow at the ENT.... I am feeling anxiety about this because of what I read about the Caloric testing.

I also feel dizzier and barfy already and with Easter coming up scared this will set things off..i also am in the process of getting into a Neuro-Otologist. My questions are how bad is the Caloric test and should I just cancel with ENT and let the Neuro-Otologist check me out? I'll have to cancel immediately if that seems the wise thing to do.

Thanks

Cheryl

Hi a quick one to let you know about the caloric test.  I was fine with it to be honest.m It,s,all according where and who,is doing it. The neuro Otologists  will probably want to,do,it anyway, so,if yo ,feel better  cancelling and getting them to,do,it then go,for that option!

Cheryl, do what you think is best! If you are not already sick of the merry go round, see as many people as possible as they may each have something to help shed light on your condition. All the best with this.

Cancel and wait for the Otologist visit.  Even if the ENT finds something he is not going to know what to do for you unless you have fluid in the middle ear or something that is easily detectable.  The Otologist is going to want to do his own tests.  I saw an ENT and had an ENG that indicated that I had vestibular damage.  He referred me to VRT and after not progressing is when I went to the Otologist.  I told him that I had an ENG earlier and he told me that he would do his own tests if he felt they were needed for his diagnosis.  One thing for ongoing vertigo here in the States that Otologists look at for relief is Intra Tympanic Injections.  My Otologist said that was the only thing that relieved ongoing vertigo.

I was thinking that too.. I have had other drs for different reasons that wanted their own tests done.. UGH!! What a waste of time and money. Plus I am hoping being a specialist is going to have more knowledge and better techniques.

Thanks for all the responses.

Hi Cheryl,

I had the caloric test twice.  They blew cool and then warm air into my ears alternately but in both cases it did not hurt at all, it was just strange, but no hurt at all.  

As far as a waste of time and money goes, accuracy and integrity are the keys to a methodical approach to diagnosing a problem.  I would say your time is worth something of course, but regardless of who is actually paying for it, each individual doctor that you see should want to do each test over again, that is a good thing.  I will tell you why. It's called a "double check" for a reason.

I have been a do-it-yourselfer all of my life and I know one thing for sure about diagnosing problems and that is if you take another person's word for something you are leaving yourself open to the mistakes the other person may have made.  Hence the term "double check".  Not everyone does their job exactly right, and sometimes they do things that defeat the purpose of a test and it alters the output data and they don't even know.

  

This is painfully obvious where I work ( worked befor I came down with this "vertigo" thing).  In an effort to get the desired results sometimes people will make an adjustment to a piece of equipment , or interpret an outcome wrong and thereby alter the data output which gives a false interpretation.  This is why in my case I asked for a "2nd opinion".

  

For sure I don't know as much as those with the degrees, but sometimes things  just don't seem to add up right, and in my case they said I had Meniere's disease the first time but after a lot of research and evaluation I decided it couldn't be.  The second battery of tests ( some repeated, some new, but all new people) gave the diagnosis of Vestibular neuritis.

It may not seem like much of a difference, but it is.  With Meniere's I was cut off salt, caffeine, and sugar.  I was given a drug called Lipoflavonoid and then with a couple weeks of therapy I was expected to be as good as new.  After I used up two bottles of the drug and their entire repertoire of exercises, I was still lost in the fog, so I suspected something else.  The Vestibular neuritis diagnosis required a different approach.  Although I have read about injections into the inner ear          ( something I won't do unless it is the last resort) I was not offered injections.  The new group gave me a different set of exercises to do and monitored my progress.  They felt that I was making progress, and to a small extent I agree, and although I am still looking for a different possibility, I am going with the neuritis diagnosis, and things do seem to be getting better, albeit a tiny little bit better, which leads me to wonder if time isn't just healing what ever it actually is.

So, Please try to relax about the caloric test, and stay the course of the professionals-but watch them for integrity and accuracy, ask a million questions and make sure the answers make sense.  

That's my opinion.  Good luck to you.

ben   

 

Thanks Ben for all your information.

It all makes sense and gives me more to contemplate. I too, have had second opinions and been misdiagnosed or had more than one diagnosis.

I'm glad to hear that the Caloric test was not bad and will try to think about that when it is my turn.

That's good you can tell a difference in getting better. I can't wait for that day.

Hi - could you tell me if you have other symptoms as well?

Just curious Ben, are you seeing an ENT or Otologist for your treatment?

Hi Cheryl, i just wanted to see how you are getting on and what dicision you made. ???

I canceled the appointment with ENT and testing, now in process of finding an Otologist.

Make sure it,s a Neuro Otologist, not just anOtologist 

OTOLOGIST/NEUROTOLOGIST

Otologists/Neurotologists are otolaryngologists who have completed 1-2 years of additional training. They specialize in the ear and its connections to the brain. Evaluation by an otologist/neurotologist is appropriate when a person has been seen by a primary care physician or otolaryngologist/ENT, but needs a further opinion or a more specific diagnosis.

I'm trying to find a Neurotologist.. I have to drive 2-1/2 hours which is fine but then they called and said they don't take my insurance and referred me to an ENT... I don't know when this is going to work out with the right dr.

The reason for that will be that ENT,s are cheaper!  However in Your case they will be ineffective.,,who referred you to ENT, the insurance company or doctor?  the doctor should know better and the insurance won,t know the difference in treatment, only the cost!

It was the dr that referred me. I was shocked because he is supposed to be the best around and should know better.

Well somehow Cheryl,u need to Find a way of 'challenging' him as to why he has gone 'backwards' and refered u to an ENT when you actually want and need to see an Otolgist, at the very least.  Maybe just say you will see  an Otologist to get your foot in the door (as opposed to a neuro one) and see what they say?!