Hi David, any improvement with LDN yet, or side effects? How much are you taking per day, and do you take it once or twice?
Hi mate,
Only been on the LDN 12 days, i started at 0.5mg but felt pretty terrible the first week, so cut back to 0.25mg and that was ok with that, i am now doing 0.5mg (taken once/day just before bed) without any problems. Lots of people say you can feel worse in the beginning with LDN, certainly true for me. got to build the dose gradualyl and find what works for you. Can't say i am cured or anything, but it's only been 12 days. Not expecting to be. I'm looking to get upto 4.5mg day. I see LDN as a long term thing to help with my CFS alongside diet and supps. I read lots of people with CFS/ME/MS take LDN and it helps ALOT. Only side effect was intense dreaming, which i actually really enjoyed. I think everyone that has had CFS over one year and feels not much better than when they first became ill needs to try it.
I definitely agree with that - everyone with CFS should try it, because quite a few people get considerable help from it. Finding out the correct dosage can take quite some time. It may be that 4,5 mg is too much, but you'll see.
To my knowledge it is recommended to take LDN in the morning, but as you don't seem to have any sleeping problems, it doesn't matter.
Do let us know in a couple of months what your situation is.
Certainly will.
Hi
Two years ago I could do all your friend does and more.
However after a bad ending in work after 23 years . Having stress / depression. A bad relationship. Glandular fever and then to be diagnosed with cfs and fibro . Well I am lucky to do a twenty minute walk a day. I always try but often the pain is unbearable.
I feel your friend may have been misdiagnosed.
June x
Alison44235 I have ME now for 25 yrs. I was in the gym 4 days a week before getting sick. I've tried several times to go back and do light workouts but I can't. At the time I feel great! The next day I was bedridden. I've tried a bike for 5, 3, and 2 mins with the same results. I break out with blisters in and around my mouth and I can't get out of bed for at least a week.
Your lucky that you can still ride. I'm jealous. lol
I might be able to ride my bike but I suffer for it afterwards. At the moment I have had enough of this M.E. and feel as if i just can't go on.I am sick of feeling so exhuasted and feeling this pressure on my head, going on my bike relieves stress. I am kucky I can do it but only just it is such an effort. I am alos very sick of family and friends lack of undertsanding even though I try to explain.
Good luck to you you sound really bad. At least I manage to stay up in the morning but I try to have a 10 min lie down every hour or so.