I think those of us who have Chronic Fatigue Syndrome can agree that we need extra rest, a good diet, persistence with recalcitrant doctors, and to maintain as positive an attitude as we can.
Right? That said, please, can anyone provide any tips, remedies, activities, Anything, that you have found that work to increase your energy level? Anyone?
far less headaches with vitamin D (D3 supplements) = optimal level is 60 to 80 (see vitamin D council's website for recommendations)
far less breathing issues & heart palpations with iron supplements = keep Ferritin level above 50 (test for it if you haven't yet), even if/when HGB tests in normal range, your Ferritin level is important
I hear you Pam! If only we could bottle that!☺
I would say acceptance, listen to your body (ie don't keep fighting it as doesn't help, worsens). Definately a healthy diet and support, understanding group of family/friends.
Also, don't lock yourself away from society (easily done, danger of depression).
x
A healthy environment.
- house not full of any contaminent - test everything you can think of that is used in the house (yes this is difficult, it may be crucial) includes favourite cosmetics, cleaners etc woodworm, rot treatment for house.
- locality , are you down wind of chemical factory (disvoered this whe I went on holiday to Algarve where there is unusually clean air)
- contaminants at work.
- test all food and drink for reaction
Hi
I agree with Pam! I call it PMA! 
When the pain and tiredness looms, give in to it.
The sooner you do, the sooner you get back to your 9/10 feeling.
In the early days,....find the time to record things...not easy I understand but it so helps, especially if like me, you forget things easily.
You can then reflect in a positive way.
if you know something works, persevere with it!
My physio exercises are so simple to do yet every day I forget them so now I use stickers in my diary whenever I do them. Haven't decided what rewards those stickers should be.
Any ideas on rewards would be gratefully accepted ???? 😍💝🎈
Jinny x
That sounds interesting! I've just last week had my Vitamin D results back and I scored 18 (minimum should be 50 apparently). So they are giving me a 10 week mega boost and then I will need to stay on a higher than normal continous weekly suppliment. My doctor thinks getting my Vit D level up might reduce my pain levels. Hearing that my headaches might reduce too is brilliant news!
I'll pop my Gp a note regarding the Ferritin level checking as I have a lot of problems with heart palpations with the Cardiac unit don't want to look into. Thanks for the advice x
For me I accept pushing myself sometimes in order to still get out and about with people. I can't do the amount with would be nice but it's nice to get out there a bit. x
I have just started the Dr Gupta Amygdala Retaining programme. It's early days but it is starting to help me. Fingers crossed it will be a total success. If not total, it would be nice to have an 8/10 good feeling sometimes.
I am not familiar with that, but I will definitely learn about it today. I really wish you success and try to let us know how you do with it . Thank you and good luck.
George,
Really good advice and to be honest probably overlooked by most. So, allergy testing by Dr. or GP as you in the UK say, for foods and molds etc, but are there test kits or something for substances in the home? I've been thinking of having my tap water tested and am drinking bottles water only. How do you test cosmetics, cleaning products? Thank you very much for this response, I know it is something I thought about and failed to pursue, myself. If you have time to tell more about how to get this testing done it would be great.
Plant yourself some flowers if you have the space, or buy some fresh for the house of not!💐
jinny23,
Forgive my ignorance, I'm not sure of some terms. When you say physio exercises does it mean exercises prescribed for you by a physical therapist or is it a general term? Again, I'm in the USA and must apologize for the confusion sometimes.
And for totally forgetting about the time difference!
Chocolate is definately necessary. Great mood elevator. Waist line elevator, too, but that's okay if I feel better.
I agree, too. When the pain and tiredness looms, give in. It is probably the most difficult thing we have to do. Especially when one goes from a very active life to a sedentary existance. But, if giving in is not done, the repercussions are horrible.
For me:
1. Give in and don't overdo anything. Even reading a book can be overdone. Pay attention to your body, know it's systems so that you can tell when you are about to overdo.
2. Allergy testing
3. Check for vitamin and mineral difficiencies. I have to take iron and Vit D.
4. Find some way to get out of the house on occasion. If this requires getting an electric wheelchair, go for it. If you spend too much time in the house, you will start to go bonkers.
5. Meds. I know lots of people don't agree and would rather go the natural way, but for me, without prescription pain and allergy meds, I would be a sobbing mess.
6. Mental health therapy. No, I am not saying this disease is mental. However, I needed help to learn to accept that I was sick. I needed help to learn to give in. If you have a similar problem, I would suggest therapy.
7. Get a good support person. Someone to unhook your bra. Someone to help put your socks on when your feet are suddenly 20 feet away and you can't reach them. Someone to hold you when you cry. Someone to nuture your life.
8. Finally, I would get a mess of sticky notes. I can't remember anything anymore. Once I go to sleep for the night, if I haven't written down something that I wanted to remember, that information if gone.
Hope some of this helps.
Some fab suggestions!
I'm on your page all the way.... Miss Ravenwood.
Am sending you lots of love, something to reach your socks....start wearing a bra that you just slip over your head!! So much easier.
😍
I love my diary book even though sometimes it's hard to keep up to date...and I love looking back. I pat myself on the back when I make progress although Chocolate could be on my next list...
Jinny 💝