hi all just been told this week that it looks like i have cfs/me!i have been trying ever since to join on here but cant seem to do that so far!well hopefully soon i will be able to come on here and tell you all about whats been going on in my life as i feel like im alone!many thanks and chat soon!matt
Hi Matt,
you're totally in the right place to feel supported, this forum has been a lifeline of understanding and support to me and I am sure you'll find it useful too. Since joining this site I no longer feel so alone
Hope you are doing ok
Michelle 
Hi Matt
Welcome on board.
Look forward to hearing from you soon - we are all here to help when we can - either that, or to have a good old moan!! That's what's so nice about this forum - everybody understands - and we can all sound off if need be. :evil:
Take care
Katie
Hi Matt
Welcome to our group glad you are joining us. Maybe thats the wrong thing to say, I should say welcme but sorry you have found the need.
Feel free to ask anything your not sure about or just to have a good moan.
Lou Lou
Lovely to see you Matt, poor Jay has been a bit outnumbered by us girlies so far.
Sorry we have to meet under the cloud of illness but it is nice to meet you.
Hope to hear more from you soon.
Hey matt
Glad you found this forum m8, its good to see a guy on here at last, but as said before its a shame you had to find it at all, just remember all of us here are in the same boat so dont be scared to talk about anything you like, but a good tip m8 just watch the girls !!
Take care m8
Jay
Hi Matt
Keep in touch with this site becasue as mentioned we are all singin from the same hymn sheet as you!
As for Jays comment about us girls well........We are jsut pussycats! :D
Donna x
P.S As a matter of interest how old are you and your occupation? Dont want to sound nosey but many of us have now given up stressful jobs and wondered if there was a link :roll:
You don't have to worry about us girls, Matt. Jay keeps us all in place!
(at least he likes to think so ............ :wink: )
Just had a thought - I have a girlfriend we call Matt - short for Mathilda!!!!
Take care everyone
Katie x
hello matt i'm rachel & i have been diagnosed with CFS/ME 4 yrs ago, u are not alone, it can knock u so much u don't know where to turn, please keep in touch & you'll have a good circle of friends, talk soon.
hello again everyone,il start by saying thanks for replying back to me!also my spelling is shocking so forgive me for that!well i dont really no where to start i could go on and on and on about whats been happening to me in my life but not sure if thats ok?just afew things about me im 26 from bristol and i think this all might have started from some sort of illness i got about two years ago(throat problem that never went away)since that time i have had so many scary things happen to me!i really do feel like going into it but might do that tonight when im back on here if thats ok with everyone?hopefully your all not bored with me just yet and wanna here abit more!lol also just to let i think it was donna who asked(sorry the brain isnt what it used to be when it comes to remembering what i just read haha)i used to work in a cold warehouse where i was ran off my feet all day long!i had to give that up in november when i just could not go in no more!well i think this is more then enough haha and i am really intrested in other people here and would love to see if any of my problems and worrys with this illness are the same!i really do think im the only person in the world with it(untill now haha)sorry to go on but its nice to at last be able to talk about it and feel like someone is taking me serious!thanks again!
Hi Matt
Firstly welcome to the forum, as said before its a shame you had to find us, but you are in the right place, this forum has helped me as much as everyone else, here is a link to a list of symptons related to M.E/CFS
http://experience.patient.co.uk/discussion.php?t=19380&sid=ded122c8313b34ee8375833912504d2f
we are all in the same boat here so you can talk about anything mn/cfs related, any concerns or worries just ask and im sure you'll get a few good responces, i too when first fell ill was very scared and alone so know how you feel, although ive learnt to live with it now, hope this forum will atleast give you alittle peace of mind
Take care m8
Jay
hi matt rachel here my CFS/ME was down to doing 16 months of nite sift at asda, feeling ruff all the time the symptoms i was suffering & got the answer from that, i read that u worked in a warehouse, i hope u can keep in touch & no not board with what your writting, talk later rachel xx.
Nice to hear from you again Matt, you are only as old as my son, which makes it all the more sad that you have this illness now, when you should be living your life.
Do you live at home? Have you got people to support you?
I think the doctors who say that ME is middle aged woman syndrome ought to log on here and read what Matt and Jay write then they would stop fobbing us all off with antidepressants or HRT.
Matt, never think you are going to bore us with what you want to tell us. It is good to share with each other.
Hi there Matt
You are free to discuss absolutely anything with us on this forum - don't worry, we won't be bored.
We all write about all sorts of things on here - as you will see from all our previous postings - if you get a chance to look at them.
We are all very supportive of each other, and you can always be guaranteed a reply (or six!) from us. We all suffer from the same wretched illness (mine, too, started almost two years ago with a throat infection), and all our symptoms are very similar - which, in a funny way, is quite comforting.
Don't worry about spelling mistakes or anything like that - we don't mind and we understand muddly brains too.
Look forward to hearing from you again.
Katie
Hey matt!
Read my latest posting and forward your email addy for m s n.
DONT BELIEVE A WORD THAT KATIE says cos when she says you can talk about ANYTHING well she has told us all about her hemeriods?? Vericos Veins, voices in her head and dodgy rashes :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol: :lol:
Joking aside, feel free to off load your concerns becasue sadly there aren't many people who truly understand the implecations ME has on sufferers both physically and emotionally :cry:
I was diagnosed last October after a few years of suffering but for me the cognitive stuff has declned more so recently and bad night sweats but I try not to let it set me back becasue tommorow I may wake feeling like a daisy.............or a dandelion :?
Donna x
evening all,thanks for getting back to me again,theres a million things which i feel like talking about and iv wrote and deleted afew times now cause i just cant find the best way to put in to words what has been going on with me!As i am now i feel tired all the time heart races when i even walk alittle bit!what is going on in my head iv got no idea but really cant put that into words!up untill jan this year i didnt have any muscle problems but then i just got hit with aching pains all over and my skin feels kinda different!iv now got little lumps on my fingers which have come up and my hands are kinda stiff i had bloods taken but nothing showed and have now been told that with this illness anything goes and that one person to the next is different!i have been to about 5 different doctors over the two years and was told first it was in my head then by another that i need to go out and get pissed up more!And one put me on strong antidepressents which made me worse at that time!well im gonna shut up now and sorry if this is abit depressing i really wanna talk to you all and see if this is kinda what you have sufferd?iv added my msn addy to my profile for anyone who chats on there but im gonna be on here very often now!lol many thanks
Hi Matt
This forun is excellent but I have a book called Living with M.E bt Dr Charles Shepard, I class thid book as by bible. It's good to read about many of your problems from a doctor. The doctor has M.E it started when he wasd at medical school and he had problems being believed he was ill.
Here Here
Take Lou's advice and if you spend your money on anything buy the book she has mentioned.
I was very scared until I read it but liek Lou quotes is "my bible" too. I think :nurse: Katie told me about it.
If you are out of work then Amazon do them second hand or try e b ay
Donna x
i will give that a go i think!i was just on you tube and saw a vid saying how m.e shortens lifespan by 25 years!!i really am shocked as i have been told its something that you can get better from!
Well I've never heard that one before and I must say I will take it with a pinch of salt otherwise we will all be dead by the age of 55 :shock:
Some people do get totally better from it, others get differing degrees of recovery. A few remain profoundly disabled. Nothing is set in stone.