Well xmas cometh once a year , and by the letters of cancellation that keep dropping thr my letterbox looks like my appt with the consultant will be just as long !!!!!!
Physio appt is in January , but had a letter today to cancel my appt for March ( that was long enough) but now its the end of April my patience is running out !!!!!!
So whilst struggling round i spied in the Charity shop a wheelchair , got my Daughter to give me a ride in it whilst in the shop , so I think i will go back tomorrow and treat myself to a xmas present , cos the way the appts are going I am going to need one , I am really struggling to get around in the house my muscles just do not respond, so doing anything is difficult , but i wont give in , feel sorry for my family as my temper sometimes gets the better of me with frustration , but they take it all in their stride , and my grandaughters just say "has nanny got one of her heads on today " and just laugh .
I wish you all out there a very happy xmas and also a pain free one (if thats possible )
God bless x
Hiya good for you I know only to we'll how u feel I struggle on a daily basis even with light duty like hovering I go to my pain clinics every week but spend 3 days in bed after due to the pain iv got occupational therapist physio therapist iv got walking stick scratches a perching stool a frame around the toilet and have just had the go ahead for a walk in shower the council tried to move me out ov my flat but was unable to fine a place suited for me every day is a big struggle and I feel for everyone who has it there r so many ppl that say there is nothing wrong with u it is a invisible illness just wish ppl could take my pain for one day and see how it is good luck with ur wheel chair and have a merry Xmas x
I had the guy around from the Council to measure up my bathroom , I was surprised that he said it would be a wet area with a shower curtain and the area not as long as my bath !!!! , not sure how this will suit but I shall await his plans and see .
I'm waiting on a start date I live in a first floor flat so surprised there fitting a wet room hope all goes OK for u x
I can so empathise with you. I was referred to the rheumatology consultant to verify that I have Sjorken's syndrome along with my fibro. I was delighted when my appointment was made for Dec 9th. The week before this was cancelled and I was asked to contact the appointment centre to make a new appointment, the earliest I could have was January 12 th, not too bad. A letter was sent out to confirm, the following day a letter came to cancel this appointment and asking me to contact the appointment centre again to re book. This was duly done, but this time I was told they couldn't re-book, and as it was a Saturday, would I phone back on Monday, when they had a chance to speak to the consultant's secretary. When I phoned back, I was given an appointment for May the 17th!! Apparently, the rheumatology department are not taking any more new patients until then! In the meantime, I am expected to wait patiently and put up with the symptoms!!!
I just wait for the next cancellation!
Sorry, rant over!
I too would like to wish you a happy Christmas and as comfortable and pain free one as possible. X