My dr just told me that EBV is bogus ? Shook her head didn’t believe anything I was telling her .. that I’ve been in bed for almost 5 months ! I’m saying ‘I’m not imagining this’ I’m exhausted all the time ! She then said your thyroid is good but didn’t do a full panel .
Well, your doctor is an idiot! But I think you may have suspected that. Get yourself to an endocrinologist and don't waste any more of your time. Best of luck to you. xxx
Well we know how many doctors also deny perimeno symptoms exist, so does it shock you about EBV? It’s a viscous virus that causes havoc in your body if it reactivates. I also believe there are different strains. When I had mono I was extremely sick, hospitalized for a week. Some teens only get a mild sore throat. So it makes sense that I got so ill when it reared it’s ugly head again.
You know how ill you’ve been, and it’s not in your head. Go see an endo who can do the proper thyroid testing. And just keep hanging in there. It takes time.
Hey Lori
Just wondered how you are doing? Hope you are well x
Hi sassy
Thank you for asking .... I’ve been AWFUL this past week sooooo fatigued . was in bed by 6pm last night . Bouts of hysterical crying ... just not doing well . Hopefully with all the pills I’m on to get rid of the virus it’s leaving my system and that’s why I feel worse .
It’s been 6 months and now after trying to handle it and be strong .... I’m breaking .
Even my 82 year old mom is planning to come from England as so worried about me .,
Hi Lori
I thought you may be struggling today, I'm so sorry you feel so bad. I know this process feels absolutely endless, but I think finding the right hrt or treatment has to be key. Not sure you've found that relief yet, but it's out there - you just need someone to change something. I think crying is good for you, the frustration and worry has to go somewhere doesn't it, and you've been strong for so long. This will just be a blip now Lori, you'll dust yourself off, keep going until you find what you need. In the meantime just go with it, get rid of any expectations and focus on any little thing that makes you feel better. Everyone needs their mum for a hug, that'll help! Could you come to England for a change of scenery? Big hugs to you love xx
Oh sassy I’d love to come to UK but I’m bedridden ... I’m so ill . I think if it was ‘just hormones’ I could handle it and I’m back on the patch now which did help me the past few months .
You’re so sweet and yes it’s lonely doing this all alone but have to think that having somebody here is expending more energy even just talking wipes me out .
I manage just a few tasks around the house ... the minimum and then it’s back lying down . But I definitely have CFS and only for you bringing the subject of EBV and CFS I would never have figured it out 🙏🏻
Hiya Lori
I know what you mean, and have everything crossed for you to feel better. Stick with the patch regardless, so at least you've got the hormones in your system and who knows.... Next week you may feel better than this week. What did the naturalpath give you to take? I'm not familiar with this at all, but just wondering if everything combined is make you feel worse at the moment. Xx P. S you're not missing anything in the UK, the weather will be awful and we are just as hormonal on this side of the globe ♥ xx
Yes sassy cannot hurt can it ... and yes I’m on a load of pills for antiviral all natural but from a good brand so .... fingers crossed . My mum coming from Manchester October and yes the weather here September October is lovely and warm . I’ve warned here though that I can only do the minimum and mostly in bed but that’s why she’s coming so .... she can cheer me up a bit . Some Manchester humor may do the trick .
That'll do the trick Lori. I'll be seeing my mum tomorrow, and trust me, I don't care if I'm 43 and she's 75...ill be on her lap! Something for you to look forward to. In the meantime watch TV, eat chocolate and be good to yourself xx
I’m running out of things to watch 🤣 seen everything 5 times ! But just gotta breathe suck it up and picture myself better. How I’ve got through this I’ll never know ....I’m sure there is a big life lesson in there somewhere .
My mom says I’m not dying although have felt like I am . Our lovely mums so wise so comforting ....hate be such a burden as she’s old but she’s there for me and so youthful with more marbles than me right now !
Here my list for comfort TV Lori (afraid there isn't anything of depth)
Real housewives... Of anywhere
Gilmore girls
Dance moms
Marriage boot camp
Goodnight mister Tom
The apprentice
Comfort food (if I wasn't on a diet!)
Potatoes
Pancakes
Chocolate
Pies
Potatoes (love them)
I also love an audio book Lori, I'm finding that quite helpful during the day, just to distract myself from the worry. Also, those therapeutic colouring books are good to relax your mind.
When it's a bad day Lori, it does feel like we're dying but it's true, this won't kill us. You're super strong, it'll come good again you'll see xx
Good ones sassy! Watch all the real housewives too!
Any baking show
Ozzy and jacks world detour ( for a laugh) ozzy Osborne is hilarious
Bloody Kardashian’s !
Anything on bravo or E
Going to try to watch a movie tonight . Trying NOT to workout and seeing if it helps me get better . I’ve worked out hard during this fatigue and always felt better afterwards but it may be doing more harm than good . So going for a boring short walk 🙄
Boring short walk sounds good Lori. I'm trying to get the balance with exercise too, since I've been running I don't feel as good as I did. Think my bhrt may be a low dose, so hoping to get that checked. Glad you are doing what you can, and you have a solid list of all my favourite shows to keep you company! Xx
You should feel great . My problem is over working out ... I love it ! I wonder why it’s not giving you a high ?
What doseage are you on ? I’m on 5mg of estradiol low dose testosteroneand leavong our the progesterone for now as can make you down
Hi Lori
I'm on 1mg estrogen, 200mg pregesterone and 5mg testosterone. Who knows if the dose is right! Hopefully having bloods next week and I can check back with the specialist xx
Hey Lori... jumping in here to just say I love most of the shows you like too! Kardashians, Houswives, Food Network. We've got Apple TV and I'm able to watch old season of holiday baking championships and kid baking shows... I just love them! World Of Dance has been on and I loved it! It just ended, so I've got a gap to fill on Wednesday nights! I've watched all the Harry Potters and Jurassic Parks so many times, I can recite the lines with each character! 😜 Have you seen the new Murder on the Orient Express movie? It's really good! One thing I did when I was feeling so dreadful was make a playlist of some of my favorite songs from my teen years. I'd put in my headphones and just lay flat on the floor and close my eyes and just listen to the music and not think about anything else! Some of my favs were Duran Duran, INXS, The Cure.... I'd even picture myself dancing to the songs in my mind, feeling good and pain free and even go back to being 15,16 yrs old in my mind sometimes. It helped me feel better while I was listening to the music and even carried over a little energy afterwards. I also made a calming playlist. Put only music that I find soothing on it and would go curl up on the outside couch and close my eyes and try and just relax and clear my mind... maybe open my eyes and focus on things right in front of me... like the clouds and the leaves on my plants. Id actually get tingly and feel the energy ( anxiety) leaving from my fingertips. Just maybe some things to try while you're trying to survive these tough days.
Im so happy to hear your mom is coming to visit soon! That will be awesome and I know she will be more than happy to hold and hug and take care of you while she is here! Moms are the best!!
hang in there!